Daughter recently diagnosed with epilepsy

Heather - posted on 05/04/2012 ( 4 moms have responded )

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Hi All - My 8 year old daughter was recently diagnosed with epilepsy. Drs. recommended Keppra does anyone have any feedback on this drug? She has had some very bad side effects and we are trying to figure out other options. She was most recently on a 1/2 dose amd exhibiting some extremely bad behavoirs. We stopped meds and seizures resumed within 24 hours. Dr is now recommending Tegretol. We are very worried about trying anything new but know we have to do something. Her seizures are only at night and last about 30 seconds. Any advice or suggestions would be appreciated! Thank you! Lynn

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Karina - posted on 05/10/2012

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Ask her pediatrician to take blood work. To check everything, her count, sugar, liver, and see if they find anything there.

Dawn - posted on 05/08/2012

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Depakote can cause Polycystic ovary syndrome. Madisons epileptologists took her off the depakote at our first appointment. He said it causes alot of other issues with girls, they shouldn't use it.

Dawn - posted on 05/08/2012

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Im so sorry to hear this, epilepsy has forever changed our lives. It awful to see your child suffering threw this and you can't help them. My daughter has lennox-gastaut syndrome its severe epilepsy and different types of seizures started before she was one year old and she is 9 now and is developmentally like a 2 or 3 year old. Except, she is 75 pounds of solid muscle when she doesnt get her way. It is a struggle for us. We had a terrible doctor that didn't even want to touch her, he would move a way when she would come near him. He said she will never be a canidate for surgery or any medicine she will never be normal or near it. He started her out on these medicines and they didnt work for her. Since our new doctor we have had 2 brain surgerys and vns put in her chest and completely different medicine. I know this doctor has gave us much more time with Madison she is learning to talk now and she only made sounds before. My advise to you is find a epileptologists and if you dont feel like they are doing what they should get another and another until you do! This is your childs life follow your gut you will know what feels right. You family will be in my prayers!

Alma - posted on 05/06/2012

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Hello Heather. My daughter was diagnosed with E at the age of 5. She experienced her first grand mal seizure on her birthday. First things first... what type of Epilepsy does she have? This is vital in determining her meds. My daughter is on Depakote sprinkles ( for generalized and absence seizures) and it has worked great . You also have to find a Neurologist willing to listen to your concerns, especially if the medication is not controlling the seizures. My husband was diagnosed with Epilepsy at the age of 13 and after suffering a fall at work (caused by a seizure) he was given generic Keppra and unfortunately, he experienced seizures once every three months, which was uncommon. His Epileptologist was absolutely useless but fortunately, his original physician was still practicing. He was put on Depakote ER for his generalized Epilepsy and has not had any seizures in over 5 months, thank God. If nothing else, ask lots of questions and do your research. The internet is chock full of useful information. Hope this helps and good luck to you and your baby girl.

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