Teresa - posted on 08/25/2009 ( 13 moms have responded )
Hi my name is Teresa and my 16 yr old son was recently diagnosed with Juvenile Myoclonic Epilepsy. He had his first seizure in Dec 08, second one in April 09. He is on medication and as long as he takes it, he has not had any seizures. If he misses a dose.....well, he has one. I am a nurse and have taken care of many patients with seizures, but its a different story when it's your child. I have learned many more things than I thought I would ever need to know. Most of the time I have no problem dealing with this but there are some days when all I do is cry. Will he be able to lead a normal life, have a job, have a wife, have kids, ever drive a car, etc.... I know the answers to this as I know many people who have epilepsy and lead productive lives. Is this normal to feel like that??? I feel so helpless alot of the time and often alone. I guess I just need some encouragment from other moms and advice on how to deal with this. Thanks for your time and appreciate any and all advice.