Beth - posted on 12/13/2011 ( 4 moms have responded )
My 5 1/2 year old son has had Partial Complex Seizures since he was almost 3 yrs old. He has been on Trileptal ever since he was diagnosed. I am not sure if there is a relation, but his behavior issues started at the same time he started the medicine. I would get calls from the Daycare to pick him up for bad behavior (spitting, hitting, kicking,not cooperating, etc.) I switched Daycare's and the same thing happened. Then he got in the lottery funded Pre-K at the elementary school, which he was in last year. He was sent to the Principal's office 3 times for us to pick him up and on the 4th time was suspended from school for a day. They suggested an Interventionist meet with us, the Principal and Teacher. Would you believe the Interventionist was NOT told my son had a seizure disorder?! We started the IEP and he was evaluated where they said he had a Receptive Language Delay. Towards the end of Pre-K he seemed to be better behaved, so I removed him from the IEP. Now he is in Kindergarten at the same school and has been to the Principal's office 3 times and just TODAY he was kicked out of the After School Program (like a Daycare at the school) because he has had 4 "red slips" for behavior issues....throwing a shoe at a child, hitting a child in the stomach, pushing another child. Just this past Sunday at church, the Youth Pastor said he had issues with my son wrestling with other kids, which he said was fine, he's a boy and it was play time, but the issue was that he wouldn't stop. Otherwise, his behavior is fine. When we go to party's etc, he does o.k. Not perfect, but nothing less than what others describe as typical boy behavior. He is otherwise very sweet, kind, loving and giving. I have been told he is very smart, as well.
As I am reading other posts on this wonderful website, I am seeing that this is very common. Has anyone else experienced anything similar with the Trileptal? My Peds Neuro will not switch him to anything else because she says the side effects are worse with the other meds. I don't know what we are going to do for after school care and he has been "labeled" a bully at the school since Pre-K. This can't continue...any suggestions? Can you believe a school can supsend a 4 and 5 year old for behavior issues? None the less, a child with Seizure Disorder! Can they do that? I have seen FAR worse behavior in children than what he has exhibited! UGH!