Chelle - posted on 11/20/2010 ( 10 moms have responded )
So as most of you know, this is all new to us. My son is 2.5yrs old. He is speech delayed so he can't tell us anything. We are still learning what all seizures he has. The only ones the doctor seems concerned with right now are his grand mals. Which I don't blame him, those are the scariest for us. But, we told him about 3 other episodes our son has had that were not the gm but something else.
1) he was eating eggs and all of a sudden his arms would shoot straight up in the air with his hands in fists and he would stop breathing, blinking, chewing, eating, everything just stopped. He did that about 6-7 times in about 15 minutes. 2) the very next day he was close to his nap time and was tired and he was walking to my bedroom and his right arm would jerk out in front of him. He began yelling at it and every time it happened he would yell and it was frustrating him. I know he wasn't doing it on his own. 3) Same jerking issue but during speech therapy and he was holding a small toy. He was walking and then would stop and same thing as when eating. Would stop and stare and do nothing then the toy would shoot from his right hand and he would yell "NO!" and was getting very frustrated and irritated.
We brought these up and the neuro said most likely they are seizures but never told us what type they could be. But I know his main focus right now is getting the grand mals under control (especially since he had 2 within 2 weeks).
Anyway, my point is everything my son does now I find myself scrutinizing. I ask myself if he is being goofy or is there something wrong? He has done some things lately that really have me questioning. I have no idea how to tell if this could be a possible seizure or if he is just being a goofy 2yr old!? And the doctor right now really wants us to keep a close eye on him and told us that by upping his Trileptal he could begin having other types of seizures and if so we need to let him know. The problem is I dunno what I am supposed to be looking for! HELP!?
If you want and ask, I can tell you guys what the t hings he has done recently have made me a little concerned or look closer at him. Anywho, this is long, sorry. I just need help and feel lost.