Jennifer - posted on 06/09/2009 ( 12 moms have responded )
My youngest son Wesley has a rare and terminal form of cerebral palsy known as Lissencephaly! Although the doctors said he wouldn't live to be two, thanks to the grace of God he will be four in Aug. God has really helped me with this difficult time but I worry so about having to give Wes so much attention and my other children feelin left out! Wes has recently started having seizures again and though, Thank God, they are not bad and are short, I still get really nervous and scared whenever he starts because that is what is so terminal about his diagnosis! The children with Lissencephaly usually die from seizures or pneumonia! I just wish I could keep him forever! Does it get any easier?