Christel - posted on 04/09/2009 ( 1 mom has responded )
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My daughter may have this. There still not sure. We are on our second hospital and this is as close to finding out what is wrong with her so far. We hope it is not this. Do to babys not making it. I hope it is something eles. So I was wondering if there are other people out there, and if any one nose the % of people who have this. Thank you Christel (Madilynn's mommy)
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Connie - posted on 04/10/2009
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My son was diagnosed with Infantile Spasms when he was 6 months old. I am not sure if it is the same thing that you are referring to but you can ask your neruologist and if so you can contact me at LollyFrog1256@aol.com. My name is Connie. (Deklynn my son) is now 8 yrs old and is doing well. The doctors have told me that Infantile spams are one of the hardest to control and the one that very few infants have. So if I can help feel free to contact me. Anyone feel free to contact me!
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