Eating causing seizures

Eunice - posted on 12/26/2010 ( 8 moms have responded )

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I have a question or want to know if anyone else is having same triggers. My son has seizures when I feed him. He is nonverbal and developmentally delayed. I would say about 40-50% of the time while feeding him he has either a drop seizure ( his head drops suddenly) or he goes into a full blown Grand Mal seizure. Any one else experince this? My friend who helps watch him has noticed this also. Any ideas or info would be great. He is getting scarred to eat because he doesnt want to have a seizure, which I don't blame him.

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Yesenia - posted on 05/24/2013

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Have you tried get an tested for allergens?
It might help finding out if your son is allergic to some foods.
There's been researches done on food colorings that cause very bad
side affects. My son also has seizures the doctor still doesn't know what
is causing it, so I told his doctor to do an allergy test on him and found out he's
allergic to wheat, gluten, cats, and mildly to dogs, black walnuts, light on shell fish,
but what he's most severely allergic to is dust mites he's ten times more allergic
than the doctor ever seen. And sense he only has seizures when he sleeps we
think that's whats causing it. So we wash his sheet everyday and keep his room dust free, and we also have an air purifier. He hasn't had a seizure for awhile now.
He also takes meds. So please try get him tested that might help, get the detailed one, because there's one only does the lower spectrum allergies that one will not really tell you much. Hope that helps

Kelly - posted on 05/23/2013

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Hello Eunice, I se you posted this a long time ago, but i was just doing a search on children who have seizures while eating and I found your post! My daughter just started having seizures while eating as well. It usually consists of a few second of dropping her head, or head bobbing. We are on our 3 medication with no success.
What is going on with your child now? Any success?

Terry - posted on 12/29/2010

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Have you tried eliminating sugar from your child's diet? We have eliminated sugar and limited foods which break down quickly to sugar and have noticed a definite change in the type of seizures. We also have eliminated caffeine. We have only been doing this for the last couple of weeks. My son has been having many grand mals and when we took the sugar out, his seizures have been simple and partial complex. This may not be the trigger for your child. but it is worth a try. Anxiety is a huge trigger for my son. If he is having an aura and tells me, I look into his pupils and speak Jesus' peace and love. 95% of the time the aura stops. Out of everything we have done this has been the biggest help for him. The only problem is I can't be right by his side every moment to speak into him. He would have grand mals in the bathroom, etc. Your child may have anxiety associated with eating because he has had seizures in the past while eating. Sometimes patterning comes into play. Just the thought of it can trigger a seizure. I pray blessing and peace to you and your child.

Sheri - posted on 12/29/2010

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Another possible explanation...maybe he was too hungry? My son has a seizure if he is not fed in time. Anything physiological with mine triggers his. He does have sensory but I have not seen that trigger his. But I will look out for that. Had not heard it before.

Eunice - posted on 12/29/2010

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Shelley,
My son is 13 will be 14 in March. Sam can chew his food but has to be helped eating. Lately he has been on soft foods. Thanks for the info about Reflex seizures I will look into that. Thank-You and have a Blessed New Year!

Shelley - posted on 12/29/2010

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Hi Eunice, just looked it up, "Eating Seizures" are a form of reflex seizures like the auditory seizures my youngest has. Go to the Epilepsy Foundation's website. There are discussion boards with many people with your son's condition. I think talking to someone who's actually going through it and getting their advice and opinions might help.
God bless you and your family......Shelley

Shelley - posted on 12/29/2010

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Dear Eunice, how old is he? My 7-year old son has a multiple seizure disorder, but his triggers are auditory. Does your son have to chew his food or is it liquified? With seizures, it's all about the sensory triggers. If he has to chew his food, you might could try pureeing his food, the texture of the food might be triggering the seizures. I know this might sound strange, but when you learn about all the different things that can cause seizures, you are amazed. My oldest son has Sensory Integration Disfunction, it didn't cause him to have seizures, but trying to get him to eat was a battle. He could not stand the way the food felt in his mouth. I know it must be very hard on you and his other caregivers trying to prevent him from choking every time this happens. I will pray for you and I'll also research and see what other information I can find for you. God bless you and your family......Shelley

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