EEG results

Patty - posted on 03/11/2011 ( 5 moms have responded )

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Hi. My son had an EEG done in September 2010 that said he had generalized seizure disorder. Since then he has had multiple seizures so they did another EEG. THis EEG came back with bifrontal generalized spikes and short waves. THe doctors just tell me it is generalized epilepsy and to increase his medicine. Has anyone had different results on the EEG before? I guess I am confused because his seizure pattern is changing and the doctors are giving me conflicting information. I guess my questin is has anyone had this happen to them before where the EEG come back different and if so is it normal? If anyone has, can you please share your story with me because I am scared, frustrated and tired and I feel so helpless. Thanks in advance.

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Patty - posted on 03/16/2011

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Thank you so much Christine. I am glad that they were able to find the right meds for your child...this gives me hope since this is all new with my son. I was so concerned because everything kept changing with his seizures and I didnt understand it. Thank you for sharing your story and letting me know that I am not alone.

Christine - posted on 03/16/2011

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Hi there! My daughter has also been disgnosed with generalized epilepsy. Her EEG reports also read "generalized spikes and short waves in the frontal region". I know her seizures start in the left frontal region but then they jump so the Dr told me to expect different seizure types. My daughter has had many types of seizures: absence, tonic clonic, and complex partial. I know how scary and frustrating this can be for a mom. Hang in there... with the right meds, my daughter stays seizure free for long periods of time. Wishing you all the best!

Patty - posted on 03/14/2011

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THanks you everyone. It makes more sense to me now... I appreciate it.

Jessica - posted on 03/14/2011

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My sons first EEG at 18 months was normal. His second EEG last year ( March or April?) came back showing slowing and a single spike that could have been normal. His third EEG in September came back severely abnormal. His latest Neuro. told me that the EEG can change over time and in response to some meds. That is why it is only a part of the evaluation of children with epilepsy.

Meridith - posted on 03/12/2011

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my daughter had an EEG at one month old that came back with spikes and wave activity in the left side, right side and cerebral cortex of the brain. the doctors said the effects could be as little as: she has seizures for a while then outgrows them with little lasting effect :or anything as serious as cerebral palsy. she was only a month old so they said it would be a couple years before they had a better idea of her prospect. In the mean time I moved to illinois so i could get her in to St. louis childrens hospital system. (neorologist in san diego said they have the best pediatric neurologists in the world) right now they have her on medication she takes twice a day. at 6 months she sits unnassisted and plays with her toys, pulls her self into standing with minimal support, rolls both ways, has a very healthy appetite does baby talk non-stop. as far as milestones go things are looking good but it is still worry some knowing the damage could go away, or take affect at any point and time. I think if it were a very serious problem she would be having developmental delays. We expected her to be very delayed due to the seizures, medication, and torticollis from a very complicated delivery. Basically I guess im trying to say that none of the doctors wil give me any type of prediction as to her outcome since it is a very broad range of possibilities, and possibly traumatic. It would be proffessionally irresponsible to say that a child is going to have CB and then them be ok, or vice versa. My only recommendations would be to inssit on getting him into a VERY GOOD neurologist. you dont want your son to be a guinea pig for some guy that just got out of grad school, this could affect his entire life. Do whatever it takes to make sure he is not blown off. I have had to go to some pretty extreme measures to get her seen in a timely manner, and thank god, because now the doctors say she wouldn't have stood a chance if the seizures hadn't been under control so early on. Best of luck, and everything will work out for the best, epilepsy is very common in children and may be a minor set back but still something you will all get through.