emergency seizure releif??

Teresa - posted on 05/03/2010 ( 44 moms have responded )

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I was just wondering if there was a form of emergency seizure medication like they have for asthma you know....My daughter has non-focal epilepsy and one of her triggers is the heat and we are planning a vacation to Florida this year and I worry that the heat may be to much for her to handle...She has never been anywhere to warm besides home and in the summer we really just stay inside....If anyone has any information about anything that may help so I can run it by our neuro I'd appreciate it!!

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Sandy - posted on 08/12/2011

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If they administer Diastat in school, they have to call 911 to protect themselves and the child. At home ... I would assess him myself to see if he needed to go to the ER or not. When you do it as long as I have ... you learn to know what you need to do. As always though ... if YOU are not comfortable after giving Diastat .. go to the ER!!! Joey's seizures were so severe that the Diatstat dose calmed his seizures without affecting his breathing. Good luck!! Sandy Lora

Kylie - posted on 08/12/2011

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I also have diastat if her seizure goes on for 5 min. But I was told you had to seek medical attention after using it b/c it is a gel form of Valium and it will slow all their systems down.

Sandy - posted on 05/11/2010

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Diastat would probably be a better option. It has stopped my sons seizures without having to call 911. Ativan has also been a good option. Just a note: Joey had behavior issues with Banzel, to the point of violence and horrible behavior.
Sandy Lora

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Sandy - posted on 12/21/2011

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Hi Shayna ... you can get Ativan which is by mouth and Diastat which is rectal in the USA. Joey has been using them for 12 years.

Shayna - posted on 12/21/2011

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Anyone know why the oral emergency medication is not presribed in the United States?

Patti - posted on 11/09/2011

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We used to use Diastat, but find the sublingual ativan just as effective. (hello fellow tiger mom!!)

Kristin - posted on 10/16/2011

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yes there is i was on it before i had my brain surgery is there any certain time of day u see seizures more often my seizures are complex partical seizures but before my surgery i used to have some drop seizures but they always happened in early morning when i was first waking up my neurologist put me on it got to check and see if i still have the name in my paper work ill get you the name how old is your child

Amanda - posted on 09/26/2011

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Diastat is great for seizures lasting longer than 4 to 5 minutes and the Kolanipin is good for the short and cluster seizures... I have both as backup and emergency seizure medicines. One time when I took my daughter in for break thru seizures they gave her Adivan and the seizures stopped immedately but I dont think they give those out as a script.

Andreina - posted on 09/21/2011

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I have the Emergency suppository but we were not able to use it :(. When Daniela had her last cluster of seizures (thank God more than one month ago!) we tried to put the Suppository but she is very big girl, bigger than me and she was fighting back, so no chance. We ended up with Lorazepam. I have a tablet with me and in case of emergency I can put it under her sub lingual. Just hoping I will never use it :) (since she started Lamictal with her Depakine has been without seizures).

Kristin - posted on 09/17/2011

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my neurologist gave me a med that i was supposed to take when i got a seizure headache if i felt one was coming on but only taken it once and then hadn't used it since so i threw it away cant remember the name how old is your daughter can she tell when a seizure is coming on some times i can tell b4 i will get a major head ache in the temprol lobe region on right side and i will know that a is a warning to keep eye out usually if i get that head ache i will try to get around friends or family but dont always know

Betty - posted on 09/15/2011

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Diastat, klonopin are both seizure meds in case of emergency its good to have. they are Valium aks suggestion is talk to your neurologist.

Betty - posted on 09/15/2011

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No not really just talk to her doctor... in my case my daughter should not be out when is really hot it can tire her out much quicker and may trigger a seizure.We have had that happen several times before... We took a trip to Disney World and she had a seizure twice... so we don't let her out in the sun for long period of time since then..

Kandy - posted on 09/12/2011

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my daughter on kepper,topamax,lamactail,and we have diastat to we take it every where we go,so maybe ask your dr.about that

Sandy - posted on 08/24/2011

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Good luck on the diet. My son is 12 and it would never work for him. He can find anything that is hidden so he would be breaking the diet. lol Sandy Lora

Holly - posted on 08/22/2011

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We were prescribes Diastat. Its rectal as it get into the blood system faster. Have any of you looked into the Modified Atkins Diet. We just started 4 days ago. Wish us luck!!

Sandy - posted on 08/12/2011

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Jeanette M. ~ If she is getting too tired from the Ativan, maybe you should try a smaller dose. With my son I will give him a 1/4 or 1/2 a pill, depending on the severity of the seizure. Sometimes he 'earns' a whole pill. The Diastat is much quicker than Ativan. If you are at home or in private .. there should be no 'age limit' as to giving her Diastat. It's all about stopping the seizures!!! Good Luck! Sandy Lora

Kristi - posted on 06/03/2010

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I agree about the Diastat (Diazepam). My son who is now 3 was diagnosed at 13 months with epilepsy....He is on Keppra 2x a day and has the Diastat which we are to give at the onset of a seizure (he has gone into respiratory failure due to the seizures). Usually though they prescribe it for seizures lasting longer than 5 mins. I carry the Diastat everywhere, it has been a lifesaver (literally)! I would talk to your neurologist and see what they recommend. Good luck!!

Tracy - posted on 06/02/2010

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Diastat (rectal gel) is a wonderful rescue medication - we also carry it with us everywhere -

Jeanette - posted on 05/31/2010

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how old is your daughter? my daughter who is now 9 yrs old has been having seizures since she was 6 months old. the only emergancy medication for epilepsy that i rally know of is diazipam in either oral or rectal form. my daughter was on rectal untill last year then had to change to oral as she was to old for the rectal form. the only down side i have found to this drug is that it makes my daughter very sleepy and when she has to have it she is doped up, which may not be very good if you are on holiday. hope you find some thing that works and have a great time xx

Deana - posted on 05/28/2010

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Yes, it's called Diastat...ask your physician, it's expensive (about $100) but has a long expiration date and is a life saver if you need it.

Sandy - posted on 05/26/2010

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To all my Mom's: Remember one thing. Take the emergency drug with you where ever you go!! It's hard to admit but it seems that every time I let my guard down and relax a little ... Joey throws me a few seizures that are more severe than I was use to. Yes, use to!! Sad to say it that way but we all know what I mean. Always be prepared like a Boy Scout. : ) God Bless each and every one of us!

Roxie - posted on 05/26/2010

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My son takes Keppra, Trileptal, and Topamax for his seizures. Like many of the other parents who has responed we also have Diastat. I take Diastat with me eveywhere I go.

Elizabeth - posted on 05/22/2010

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They had my son on a medication that was just as needed if a seizure lasted over 3 mintues. I never had to use it on him because his seziures were febrile sezuires. I just forgot what the name of it was also I really never liked it from the start because I would have to give it to him anally.

Rachel - posted on 05/14/2010

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My daughter has Diastat in case of emergency as well. She used to take keppra like many kids that have posted here but it made her EXTREMELY angry and irritable. She is now on lamotrigine and Trileptal and with the trileptal, her neurologist has me give her an extra 2ml if she is showing her normal signs of an upcoming seizure.. sometimes it helps head them off.

Tanza - posted on 05/14/2010

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Our son is on Keppra daily but we have a prescription for Diastat in case of emergency and we are not close to emergency help - i.e. road trip, airplane, etc.

Hope that helps! =-)

Kathy - posted on 05/11/2010

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my son is on celontin, banzel, dilantin, and felbatol, we have Ativan for his real bad siezures, I have the type you draw up with a syringe, take the neddle part off, and squirt up both of his nostrils, most of the time it works, the times it don't I have to call 911 (unfortuntley, they know us well)

Betty - posted on 05/09/2010

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Hi, my daughter is also epileptic and is on seizure meds... you should have her checked by neurologist and they can give you the right meds to treat your child. my daughter is on diastat as an aternative in case her seizures don't stop but that medicine is control substace you can only get it threw a physician.

Kathi - posted on 05/08/2010

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We have a Diastat kit also. It is in a pre-measured rectal dose syringe. By syringe, I don't mean the type that you give a shot with, it doesn't have a needle on it. The medication is in gel form, so it is easily absorbed through the rectal mucousa. It is very easy to use in an emergency. The doctor writes you a prescription, the pharmacist makes sure that the rectal syringe is set to the correct dose, this way you know you are giving the correct dose. You don't have to keep track of how much of the medicine in the syringe you give, it automatically gives the correct dose. It comes with a pack of lubricant right with the dosing syringe for ease of use. The doctor will tell you, and write on the prescription, how long the seizure has to last before using the Diastat. Praise the Lord, we have not had to use it. The expiration date on the medicine is very good, in case you don't need it often. My feeling is, better to have it and not need it, than to need it and not have it. I hope this helps, I'm an RN, so sometimes I write things technical.

Beth - posted on 05/08/2010

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they make DiaStat, a rectal valium delivery suppository that will stop prolonged seizures or seizure outbreaks. Your neurologist can reccommend at what length of seizure you should intervene, it varies with different children. Also, it is easy to travel with and good with stopping most seizures, although I have seen it not work in Status Epilipticus.

Angela - posted on 05/07/2010

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I am in Australia and use nasal midazolam. We give drops in the nostrils. This works wonders in stopping seizures for our daughter who is 4.

Sandy - posted on 05/06/2010

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I use either Ativan by mouth or Diastat which is a rectum injection. Both have helped Joey.
Sandy Lora

Marguerite - posted on 05/06/2010

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Diastat was also what I was going to suggest. It is administered rectally and for that reason is much easier to use than the similar medication which is placed under the child's tongue. We've tried both and the Diastat is a much better choice for our son.

Tammie - posted on 05/06/2010

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My son is on Keppra, Frisium, Dilanton & tergratol.... all 3 times a day and he is still having regular seizures.... I've come to just believe that you won't control all off them but the majority is good.... We also use nazal midazolam in an emergency situation or if we are a bit to far from a hospital..... but even with this he is still required to go to hospital if emergency drug is administered as his airways are usually very close to shutting down....

Michelle - posted on 05/05/2010

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my daughter was on sodium valporate for about 3 years but has since been changed to clobazam with better results also she has epistatus(buccal midazolam) if her seizures last for more than 5 mins

Clair - posted on 05/05/2010

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i asked the pead consultant to put my daughter on sodium valporate but i also carried around with me buccle madasalam..(spelling might be wrong) to put inside her mouth if the seizures lasted more than 5 minutes

Alana - posted on 05/04/2010

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Both of my sons have been given Epistatus (buccal midazolam) as a 'remedy' for seizures. Whenever one of them has a seizure, I give them the prescribed dose between the cheek and gum to stop the seizure. I am from Florida and now live in the UK. The heat can be a problem for one of my sons, but I carry the Epistatus wherever I go. We have had good results with both boys.

Kimberly - posted on 05/04/2010

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As your doctor about tegretol and topomax. My daughter is on both 3 times a day and so far no seizures. My thought and prayers are with u.

Jamie - posted on 05/03/2010

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We have a prescription for Diastat for my 19 month old. It's a rectal gel that treats break through seizures. We carry it with us every where just in case she has one. She takes Keppra daily.

Teresa - posted on 05/03/2010

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My daughter wa sjust taken off Keppra and put on Toppamax with Colanipin(sp?) and she takes both everyday since she was 4 months old we cannot get a handle on her seizures yet I just dont want to take the risk of her having a bad seizure while were so far from her neuro we would be almost 20 hours away from the doctor and I know that Florida has great hospitals and good pediatrics but as a mom I want the doctor who has known her all her life you know..

Brandy - posted on 05/03/2010

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My son was put on Prednisone in December of last year this might be a option it might help. Sice he has been on this med he hasn't had any seizures at all. the med did it's trick in just two weeks of being on it talk to your neuro and see if that could be helpful. good luck.

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