EPILEPSY..NONE OF MY 3 KIDS HAVE IT,,,,I DO...

Caroline - posted on 08/07/2010 ( 1 mom has responded )

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I have had epilepsy since the age of 14, never been allowed to drive because of it, have had 3 children, and i am on medication for the seizures, i dont get any disability allowence, although epilepsey is classed as a DISABILITY.
i dont get the benefit, because, I DONT HAVE ENUF SEIZURES,....who wants them, NOT ME,,,
My eldest is nearly 14, and then i have 2 more, aged 10 and 9. i am a single mum, and when i have a seizure in front of them, THEY ARE AMAZING, THEY ALL 3 know what to do, and always stay calm, i hate having the seizures, believe me, but, i cant help it,
THANKS KIDS, YOU ARE ALL AMAZING, YOU ALL 3 DESERVE A MEDAL,....

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Kimberly - posted on 08/17/2010

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I am now 20, pregnant with my first... and I have had seizures since I was 12. I have peti-mal and grand-mal more so peti-mal (about 200ish a day) but my grand-mal are kinda undercontrol. If you have at least more than 1 grand-mal in a 3 months time you are eligable for ssi. or if you have peti-mal at least 1 a week you are eligable. I have been fighting this also, I am finally comming upon my court hearing. Reading between the lines on the internet for fighting the case is very helpful. Also having doctors back you up.