First grand mal seizure SO SCARY!!

Connie - posted on 09/21/2010 ( 7 moms have responded )

20

0

1

My daughter had her first grand mal seizure today. It was so scary. It lasted about 20 seconds but her lips turned blue and thank God I had read about these seizures and was somewhat prepared for it. I had noticed several petit mal in the last few weeks and started a jounal. What do you do if they last longer and she's turning blue? I checked out CPR videos on Utube today. It's so so scary!

MOST HELPFUL POSTS

Celia - posted on 09/22/2010

2

63

1

My son was 4 when he had his first seizure. We were in the Shark Tunnel at Sea World. Scaries thing I have ever seen in my life. His lips also turned blue but the seizure only lasted about a minute. They are now controlled on Depakote. If the seizure last longer than 2-3 minutes, call an ambulance.

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

7 Comments

View replies by

Ann - posted on 06/29/2011

2

17

0

My daughter had her first seizure when she was 3 months old, the drs tried alot of different meds to control it. Shes nearly 3 now and she is on Keppra, vigabatrin and nitrazepam. She is pretty much seizure free unless she is ill or puts on weight, but she is on the maximum dose for all the meds. She also use to go blue alot when she was younger and i have resusitated her twice, but she has breathing problems as well as epilepsy so so not sure her stopping breathing was related to it or not. Go on a course for CPR if you can its well worth it.

Jamie - posted on 06/29/2011

8

60

4

If the seizure goes over 5, administer the diastat if you have it. My daughter started having seizures at the age of 10 months at the time thought to be febrile, but later found out that she was epileptic...took to the age of 5 to find out she was epileptic, she has grand mal and absent seizures she is on Keppra and Lamictal...Keppra controls the grand mal and Lamictal is for her absent seizres..she is now 13 and before Feb she was seizure free for 6 years....hitting puberty sent her body into hormonal imbalance I guess which is what brought on the seizure. They have upped her dosage and is now doing fine.

Grand mals are very scary....I always talk to Tori until she comes out of it, her doctor once told me to pinch her toe and if she responds you know she is out of it. She has also at one time had a cluster of grand mals....something I never want to see again!!! Scared me half to death. I wish you luck and find a good neurologist!

Debby - posted on 06/28/2011

98

17

6

I feel you both! Mine was 18 when he had his first GM--21 now and we've had a total of 9. Found this site really helpful for tracking:
http://www.epilepsyfoundation.org/
wonderful charts and info. Our Neurologist also says 5 minutes and more than 3 per day, fortunately all have been single episodes.

Kelley - posted on 06/24/2011

1

0

0

Talk to your doctor about a script for a diastat injection. It's for emergencies only and is administered rectally. They gave us a script for it because my 17 year old son just began having grand mal seizures in April - he had 4 in 2 months out of nowhere - his seizures are usually 3-4 minutes of super hard seizing. If it hits 5 we were instructed to administer the diastat - luckily so far we haven't gotten to that point. Hang in there.

Chelle - posted on 09/22/2010

322

47

78

They told us if it lasts to 3 minutes that he is supposed to get diastat in his bum and we call 911. My son has had 2 grand mal seizures and he too will turn blue briefly, luckily the longest he has had has only been a minute though. Is your daughter being treated for her seizures?

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms