Has anyone used the Medication Keppra!

Kaydee - posted on 12/14/2009 ( 462 moms have responded )

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Has anyone used the Medication Keppra? For Seizures... Our daughter is only 3 and after a long battle with several seizures with no known cause or diagnosis at this time. I have been resisting putting the poor little angel on medication due to her age. Well I finally caved about a week ago. So I need to know if anyone has used this medicine before and if it works or if you have seen any side effects. Any difference with the generic? Please help!!



Update:

Since I wrote the above comment a month ago my daughter has been on Keppra and still having seizures and her neurologist keeps increasing the dose. Her seizures seem to be increasing I don't know what to do we are so worried.

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Angela - posted on 03/07/2010

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My daughter is on Keppra. She has had seizures since she was 5 months old and is now 5 years old. I like the Keppra. It is one of those meds that can be increased if needed because it has a lower toxicity rate. It is also a broader spectrum anticonvulsant. My daughter is also on Tegretol. I think you might need to give it a little time to really work for your daughter. My daughter still has seizures evry once in a while, but sometimes an episode is inevitable. They are often called breakthrough seizures. Granted it is still scary when they happen; I strill cry for my daughter when she has them. I don't see side effects of the Keppra except fatigue until they get used to the medication.

Jean - posted on 03/07/2010

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My son now age 3 1/2 was put on Keppra after a severe seizure 2yrs ago. It seemed to help the seizures but over the course of 1 1/2yrs of taking it. He started having serious aggressive behaviors on the internet it is called Keppra Rage (biting himself until he would bleed, crying all the time like, he was is pain, banging head, scratching head, up all night screaming) He truely was like a little wild animal in a cage going crazy. We finally had him switched 6 months ago to Trileptal which has worked great for him so far. He is like a new kid sleeps all night,happy, no biting, no head banging ect. Not all kids experience the side effects.

Tanya - posted on 03/07/2010

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hi, my daughter is epileptic and diagnosed at 6months of age she is almost 5 now and has been using Keppra for about 2yrs, for the 1st week of using it she didnt sleep but after that it did control her seizures to a certain extent, she also has to take clobazam and lamotrogine, this cocktail of medication has really improved her seizure activity, she used to have 20+ seizures per day and we are now down to approximately 5 a week,i really hope that you find something that helps your little one soon, best wishes Tanya xxx

Tiffany - posted on 03/06/2010

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My son takes Keppra and it took us a year to get to this point. He also takes a small dosage of depakote with the Keppra...Keppra was a miracle medication for my son...Today it is going on 2years since he was placed on this medication, and has not had a seizure. We go the end of March to see if he can be taken off...Good Luck and be patient. It was so scary for us going through the process of finding the right meds...It came to the point were my son's was having every seizure in the book and it was a nightmare...But in the end God is good and he will help you make the right decisions and find the right meds...Trust and believe and ask questions and read information for yourself. You are your childs biggest advocate...

Robin - posted on 03/06/2010

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Hi, My name is Robin and my daughter Hailey, will turn 4 March 8. We added Keppra to her medicines, because she was still having seizures when on the topimax. We got rid of the topimax, and now she is on Keppra 4mls twice a day. She is also on Clonopin .5mg for the anxiety. She hasn't had a seizure in over a month (finally a break!!) I hope it lasts, but only time will tell. She is also on other medicines for her sleep problems: Trazadone, and Clonodine. She was on Repirodol for a short spell, but she became too aggressive and would scream all night so I took her off it and we added Seroquel yesterday and last night was the first night of sleep that she has gotten in a very long time. We still don't know what is (was) causing her seizures, but she had a hard time sleeping from the time she was 9 months old. She started developing seizures when she was about 14 months old. It's been a hard road with lots of different medicines, but right now at least, we have a calmer child. I hope this belps.

Nadine - posted on 03/06/2010

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My daughter was 2 years old when we started using Keppra. We used it for about six weeks and she had a reaction to Keppra. When she was taking Keppra her seizures did increase. The type of reaction she had was a rash. We did stop and tried another medication. Just from our experience when you start a new medication you are so worried with the side effects more than trying to get the seizures under control. When you start a new medication you might as well at least give it two weeks because it does take a good week for the medication to get in there system. My daughter has used many anti-epileptic medications in the past 4 years. We have been dealing with different medications since she was a baby. The most frustrating part about the whole deal is trying to get them under control. You also have to take in to consideration that there are not very many medications out on the market that are recommended for children of her age. We had that problem in the beginning because of my daughter's age. I am just curious how many medications has she tried already? If she has tried more than 3 medications and nothing seems to be helping. You may want to consider trying a VNS Vagus Nerve Stimulator. My daughter has one and she is doing very well with it. She also still takes two medications on top of it. I hope this is helpful information.

Allessandra - posted on 03/06/2010

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Kaydee,



My son has had seizures since he was a week old. When the children are young the doctors have other choices and so do you. I took my son to a Childrens Hospital that specializes in only children, their illnesses and knows what will work and will not increase dosages if it doesn't.



My son was on Depakote for his seizures, they have it in liquid form for small children. Please check with your doctor or get a second opinion. If your doctor thinks he is the final word and knows what he is talking about, then he is self-serving and arrogant. Get a second opinion; from a Dr. that ONLY treats children.



Good luck and God Bless.

Allessandra

[deleted account]

Hello Kaydee my name is Neiko - my son whose 21 now has used Keppra (now generic brand) for several years now. For most part it has worked for him, but the Keppra was initially given as a support med for the Depokote he takes also. I never imagined having to put him on med's, but right now they are what helps - I haven't noticed any true side effects for the keppra, but we have to take him for lab work about every 3 months, to get the Depokote levels. I pray that both our children will one day not only be med free, but seizure free as well. But for right now the med's help stabilize the seizures, so until God moves they are a must. Please be encouraged, because they are our babies and we only want what's best for them; even if it hurts us to make these decisions for them. Be blessed and I pray that this will help you. Neiko

Kimberly - posted on 03/06/2010

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Hi Kaydee,



My son takes Keppra but, it never controlled his seizures by itself, Keppra works well when it's taken in combination with another drug. Depending on what kinda seizures your daughter has, she may need an added med to go with Keppra. My son takes Lamictal and Keppra for his complex partials. It has worked for about five years and continues to work. Hope this helps.



Good Luck, Kimberly Bailey

Jessie - posted on 03/06/2010

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My son was on topamax and currently on depakote. He has had the epilepsy surgery and since late Aug he has been seizure free.



Good luck :)

Alison - posted on 03/06/2010

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Hi



I'm an epileptic & take keppra. It did work for me and controlled my fits. I even stayed on it whilst pregnant and so far my 17 week old little girl is fine.



Keppra is relatively a new medication, but its done its tests and has prooved to be quite affective. Unfortunately, i wasn't on it when i was a kid, so i'm not as much help in that sense. But i was diagnosed at the age of 10, so can offer so insight.



feel free to contact me, if you want someone to talk to.

Alison

Janice - posted on 03/05/2010

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Hi Kaydee,



I always feel sad when I read posts like yours. It's that wishful thinking that my child will be the last to endure siezures. Sadly, I learned years ago that this would not be so.



I have heard good things about keppra, howvever, my son has not been on it. Having said that, my son has been on a wide variety of meds for seizure conrol. What works for one won't work for all. My son is currently on valproic acid syrup, sublingual ativan, and zonisamide. He also has the vagal nerve stimulator. My son has a history of having the adverse reactions to his meds so I can't really talk negatively about any med . His docs and I know that he reacts differently than most not only with anticonvulsnats but with other meds as well. My son is 19 now - first identified sz at 6 mos. My advice is trust yourself, always go to emerg/doctor if you feel there is something wrong, even if no symptoms -that includes any concerns about meds. Mom's notice things that aren't apparent to the "professionals". I wish you and your daughter all the best.

Shannon - posted on 03/05/2010

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I also had a very bad experience with Keppra not only did it not seem to work well but the side effects for my son were horrific. All children react different to different meds but if you are not happy with the results your best bet is to find a second opinion. I have come to find that a lot of neurologists have god complexes and no matter what you say they are right. Any how I have heard great things about the lamictal. Just a suggestion if you haven't already tried this and if your doctor isn't responding to your concerns keep looking for one you feel comfortable with and has your childs best interest in mind not just the drug companies. It is your right to interview as many doctors as you'd like and your right to seek another opinion. You are her MOM and MOM always knows best far as i'm concerned we have a phd. in everything. lol... Hope this was helpful

MERCEDES - posted on 03/05/2010

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My son was 2 at the time he tried Keppra and it made him sleep practically all day and kind of developmentally delayed. Now he is 4 years old and is on Depakote which almost totally stopped his seizures but unfortunaltely he gained alot of weight he is now in a 7 in clothing and a 13 in shoes.

Dianne - posted on 03/05/2010

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Hi Kaydee, my daughter is seven and has cerebral palsy. She has been on Keppra for many years now with little to no adverse affects, and while it seems to help her, it's not for everyone. If your daughter's seizures are increasing it's time to tell the doc you want to try something different! There are many, many different meds out there so there's no use keeping her on Keppra if it's not helping. Trust your instincts, they are usually correct.

Diane - posted on 03/05/2010

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My garnd daughter has used Keppra for 5 years. She is 6 now. The side effects was aggression for her. I HATE giving her her anti seizure meds but she has to be on it. She hates it too. God bless your little one. You're going through such a tough time right now. I pray that those seizures STOP in the name of Jesus.

Linda - posted on 03/05/2010

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try a vnstherapy.com it is a pace maker for the brain it helps with seizures. and yes I was on Keppra and within a six months I was off Keppra and know I only take 2 Topamax a day and on level 7 with no seizures for nearly a year.

Shelly - posted on 03/05/2010

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my daughter takes keppra twice a day it has helped with her seizures she still gets them but not like she did my daughter has complex partial onset seizures. Thats ware she gets a blank stair on her face and then she comes back out of it. My daughters doctor said she will out grow them my daughter was 3 when she was diagnosis she is 12 now .

Carole - posted on 03/05/2010

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Hello I work with a 13 yr old boy who suffers many seizures a day. He too was on Keppra for a long time and the seizures kept increasing. Finally after increasing the dose with no success he was taken off of Keppra and put on a drug call Gabba Penten..( Not sure if I spelled this right) It seems to have calmed his seizures- the frequency and the severity. I hope this helps

JoAnn - posted on 03/04/2010

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Hi, My name is JoAnn and my son Danny passed away on June 27, 2009. He died from a very large tumor in his brain. His doctor kept him on Keppra for 6 months but also had him on dilantin 3 pills 4 times a day and the Keppra was 3 times a day. He said that Keppra is not know to stop seizures on its own. You might talk to your doctor and ask him or her if they should be on something else with Keppra. Once the Keppra was in his system, the seizures almost completely stopped. Hope this helps you.

Alice - posted on 03/03/2010

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Well, (not to worry you) but my daughter at the age of 31 months had to have brain surgery due to her intractable epilpesy which was due to cortical dysplasia (neurons not lining up in her brain when her brain was developing). She had been on tripliptal at the beginning of her diagnoses with no luck than they had her on Keppra which she still remains on for the past 2 1/2 years. This medication seems to be doing it's job. She has been sieuzre free going on 6 months now (well the 5th)....They switched her to the generic and I haven't notice anything different. I hope this helps you. If you have any questions I will try to help you.



Also just remember what you might be seeing might be just the seizures it's self. I am not sure where you are at. but where I am from I choosed Cincinnati Children's and to my experience they were the best for my child.

Angie - posted on 03/03/2010

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I am soo sorry to hear that. Did they diagnose her with a certain disorder? My son Collin has Doose Syndrome which is 3 different types of seizures. He was having hundreds of seizures a day which were known as drops where he would loose all muscle control and drop right to the ground. We went through our share of knocking teeth out to stitches. Those are the seizures that are under control with the Keppra. Collin does still have Tonic Clonic seizures about 2-3 times a week in the early morning hours - always while either going to sleep or coming out of sleep. We have tried multiple different medications to get these under control including pushing his Keppra dose really high (2500mg a day at the age of 9) - this only made him very sleepy where it was hard for him to wake to go to the bathroom at night. We have since brought him back down and are thinking of trying a drug that is not approved in the USA. They are in the process right now of doing tests here but to get approval would be another 1-2 years. My pediatric Neuro says there is a great success rate for this one - its just the thought of trying something not approved here is what is scary for us. I really hope your neuro can find the right medication for your daughter. It is just heartbreaking to watch our children go through this at such a young age. Good luck to you and sorry I was so windy! LOL

Connie - posted on 03/02/2010

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My son has been on Medication since he was 6 months old for seizures. He first started on Topamax then they added Depakote, weened him off Topamax and add Keppra, in 05 they put in a VNS (Vagal Nerve Stimulater) and since then add Lamectal. I have seen more inprovment since the VNS was implanted then I have with medications no matter how high the dose goes. So currently he is on 3 meds and we still have a constant flow of seizures on a daily basis. Some worse then others, With Seizures it is pretty much hit or miss and you kinda have to test the waters to see what is going to be best for the child some respond well some don't but use your best judgement as a mother, after all no one knows your child better then you. My son his 9 and has been having seizures since he was 2 months old its hard nut I take it day by day sometimes minute by minute. ~Connie~

Angie - posted on 03/02/2010

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Hello! My son Collin who is now 9 years old was diagnosed with a seizure disorder at age 3. We started Keppra and it was wonderful, it took the type of seizures that he was having away after just a few days. The only side effects we notice is irritability, but it does get better after being on the medicine for a few weeks. We have also tried putting him on the generic and for us, it was not good. He was very, very, very angry and he was making gestures that he was going to cut my throat - so needless to say we went off that and only have name brand!! Good luck with the Keppra and I hope it works out for you!!

Jess - posted on 03/02/2010

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Hello My name is Jess Wilhite-McIntosh and I am a mother to a 4 year old that has had seizures since I was pregnant with her she has been on EVERYTHING UNDER THE MOON & she is on Keppra and Phenobarb right now we have went from 15-20 a day to 5 a week who is her Dr.?? I think that it's self makes such a big deal I have fired I dont know how many but I love love love Bryces Dr. now her name is Dr. Lisa McGuire and she is with Capital Neurology they have a downtown office & a carmel office. Feel free to call me if you have any ?'s perhaps I can help 317-586-7837. And just remember it takes a while for these meds to get in their system. So hang in there and call if ya need anything because I have been there and back tears, sweat, and fighting mad!!!

Sincerly,

Bryce's Mom

Jess

Jamie - posted on 03/01/2010

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My 17 year old son was on Kepra for 5 months. We just switched to depracote. He was experiencing horrible depression. The seizure have stopped. He was experiencing 2 or 3 a month.

No one wants to medicate their child. I fought it for a long time. We tried to recognise triggers and decrease the odds of a seizure. That didn't work.

It has been a relief the past few months. My son could have been badly hurt. I received numerous emergency calls. He would seize at school, while running, and at friends homes. It took over his life. So medication seemed the less of the 2 evils.

May God look over your small one. Take care.

Heather - posted on 03/01/2010

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My daughter is currently 11 and she takes Keppra.. She is currently on Topamax, Lamictal, Keppra and Phenobarbital.. For almost a year she was having severe seizures every two months with breathing problems... The Keppra was a nice adder for her and we have increased the dosage as well.. The Keppra does also make them a little moody for awhile after increases until they adjust... Is she on any other medications? Have they done any additional testing? Of note, she has been on the phenobarbital since she was 1.5 and then added in the Topamax when she was about 3 or 4 I believe. It has been over a year now.. (knock on wood) and adjusting very well to everything.. please feel free to contact me..

Lisa - posted on 03/01/2010

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I take Keppra. My only side effect is sleepiness. It works for me. but I'm 31 yrs old. If your childs seizures are increasing with the medication, it isn't for your girl. Ask about other medications. Keppra is too new for a 3 yr old to be on. My 7 yr old takes Zorantin and it works for him. There is many medications out now for epilepsy for your daughter's doctor to be sticking to one that is so new. Just my thoughts about it. Good Luck

Della - posted on 03/01/2010

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I have been reading the replies and my 11 yr old has found a combo that works for him. My son has been having sezures sinse he was 2, been through several meds, in 2005 he was diagnoised with status epilepsy during sleep. He was having sezures 75% of the day and all they time he was sleeping. The docs finally found a mix of meds that helped him he is now only having seizures 25% of the time. Deprakote, Keppra, and klonipon plus we have a rectal diastat for major break-throughs. we also had a vns inplanted (it didnt help so we had them turn it off). We did not see any side effects from the keppra and to us it was a god send. We did see a big difference, after they found his dose, in the seizures.

I know how u feel, when they found out what Devin had, my heart broke and I couldnt stop crying, I'm sure that ur docs will find what ur daughter needs to get past this point. I will be praying for you and ur family. I'm not what u would call a bible thumper, but I believe in prayer and thats the only thing that gets me through all of this each day.

Jodi - posted on 02/28/2010

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Hi Kaydee,

My son is 18 yrs old and was diagnosed with a seizure disorder when he was 10months old. Three years ago he started seeing an adolescent Neurologist, who switched him to keppra, we had not been impressed until he was referred to Oregon Health and Science where he started seeing the head of Neurology, and found that keppra works best WITH certain other types of seizure meds. as a support, not so much by itself.

I will continue to pray for you, and the wisdom for the Dr.

Bless you

Robyn - posted on 02/28/2010

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My name is Robyn Buie, and I was deathly allergic to Keppra. I have been diagnosed with epilepsy since I was 14 and have showed symptoms since the age of 12. When I was put on it, as an adult, I almost immediately became unresponsive. I was on it less than a week before my mother pulled me off of it because I was not eating, drinking, or moving and the doctors would not listen. As soon as she took me off of it, I began to vomit and had to be hospitalized for dehydration. If you do decide to take her off of it, please do so gradually as this was the reason for the vomitting. There are several wonderful medications out there for seizures and you must continue to look for the right one for your daughter. I am now on Topamax, which works amazingly well for me. Good luck and God Bless You and your family.

Keeya - posted on 02/28/2010

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my son is on keppra. it worked well for him for a couple of years before he started having break through seizures. we are in the process of changing his meds to find one to help control them better. i do know a lot of people can't take keppra due to the mood changes. it can cause irritability more so than some ot the others. our doc suggested taking b6 with it to help decrease this. it is a challenge having to increase the meds after a seizure has occurred. it seems to be the only way for them to get the correct dose for each individual. too much you cant function, too little you still have seizures. it does take time to find what works unfortunately. also keppra has a dosing max of something like 3000mg so considering your daughters weight and other circumstances the dose could keep changing for a while. good luck

Bernice - posted on 02/28/2010

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yes i have tried keppra. It works as long as u dont miss a dose and be on top of your game. Now i am not go to say it stop the seziures, but there are less seziures

Angela - posted on 02/28/2010

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Hello Kaydee-

My name is Angela and I have a young child on Keppra. She takes 4ml 2x a day. She has been seizure free since August 2009. Keppra is safe. My child has had no side effects or problems since going on the drug. My child is 21/2 and started on keppra when she was 11 months old. It is normal for the doctor to have to regulate the amount. I am also a special education teacher. I have worked with many students who have seizure disorder. As children grow their meds have to be adjusted. My child's meds have to be adjusted everytime she see's her neurologist because of her growth and weight gain. I have a wonderful neurologist. It is important to have a good relationship with your doctor. Seizures are scary for many reasons. You can also talk with your pediatrician but the neurologist is the seizure expert. Ask questions, get a second opinion if it will ease your mind. But keep this in mind...when dealing with the brain it is difficult even for the experts. Keppra is one of the best new seizure medicines available now. Do research because knowledge is power. I will pray for you and your precious angel.

Beth - posted on 02/28/2010

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My son started on Keppra about two years ago, after Topomax failed to control his myoclonic seizures. He switched to the generic over a year ago and we've had no issues with it. Jason's actually been seizure-free, thanks to the Keppra, for well over a year now.



The one thing I've learned about seizure medications is that there is no easy answer! What works for one child with any given type of seizure may or may not work on another child with the same seizure type. It feels like such a crapshoot!



Good luck!

Julia - posted on 02/27/2010

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My daughter is 4 now and she used different kinds of medications. Her first seizure was when she was 4 days old. They told me then in the hospital it was because her calcium was at a risky low and it was dropping fast. She was seizure free for 3 year and she took an immulation shot that she didnt take because of her seizures. 2 weeks later she had a bad one. Now we have ran so many test and found out from her MRI that she had a stroke before she was 4 days old ( either when I was pregnant, stress from birth, or before she was 4 days old). Her left side of her brain is damaged. It is hard because of the seizure and her being so delayed on everything.

Julia - posted on 02/27/2010

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My daughter is 4 now and she used different kinds of medications. Her first seizure was when she was 4 days old. They told me then in the hospital it was because her calcium was at a risky low and it was dropping fast. She was seizure free for 3 year and she took an immulation shot that she didnt take because of her seizures. 2 weeks later she had a bad one. Now we have ran so many test and found out from her MRI that she had a stroke before she was 4 days old ( either when I was pregnant, stress from birth, or before she was 4 days old). Her left side of her brain is damaged. It is hard because of the seizure and her being so delayed on everything.

Christine - posted on 02/27/2010

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Yes, My son who is now 13, was put on Keppra last month along with weaning his dose of trileptal. I can't believe the difference in him so far. Not one seizure. He has complex partial seizures, but with puberty kicking in, his seizure activity seemed to be increasing and worse. I was very reluctant to try or start him on any new medication but I am so glad we did. We did do the change during a hospitaliation, while he was under continuous brain wave monitoring. He has been diagnosised since he was 2 years old. We have tried Depakote, phenobarbital which neither helped for as long as the trileptal did, but we were told the longer you take trileptal the worse some people get on it. Christine Berry

Debbie - posted on 02/27/2010

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My Son is on Keppra.Has been since he was 2. DONT USE THE GENERIC!!!!!!!!!!

He has not had any problems but it hard at first to get the dose right. They are young and change all the time. It took about a year before we got a correct dose.

Patricia - posted on 02/27/2010

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Hi My son is on Kappra and toplamax for his serzures. He had a grandmal serzure when he was 8 years old. He is 27 right now. But he started his serzures when he was 3 years old too , they did put him on anything at all. And that really made me mad i wish they would have maybe he wouldn't have had the grandmal serzure. My e-mail is momsafan2_bsb@yahoo.com if you would like to talk more about it. I have been through this for a very long time now. I am more then happy to talk to u about everything that u need to know. My name is Patti

Stacey - posted on 02/27/2010

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My 3 year old has been on keppra for 7 months, she's finally at a dose where she's tapered off & she hasn't suffered a seizure since 10/23!!! The first 3 days were the only "side-effects" we'd seen where she went thru periods of extreme sleepiness & then bouts of what seemed like confused laughter/screaming/crying episodes..finally now her dose is working.



She's extremely small for her age and so this last dose increase was the max they could do until she grows.



Email me anytime!!!

Stacey Maynard

Daughter Lauryn 7/24/06

ps. I have seen no difference in her behavior between name brand or generic

Stacey - posted on 02/26/2010

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Kaydee - our son was on Keppra for about 5 months. It helped a little bit in the beginning but then the seizures just continued like before the medicine. When the Dr. increased the dosage the same thing happened to him - the seizures got more frequent and worse. The Dr. then put him on Trileptal. We didn't realize it at the time but once we weaned him off the Keppra he was like a whole new child. More active, engaging, alert. The trileptal hasn't really worked either so we are headed to the hospital next month for a 3 day EEG. We just have to remember that we are the parents, the Dr.'s try but they are not with our children every day. You are your daughter's advocate and if it doesn't seem to be working then let the Dr. know you want her off the medication. The general rule is to keep your child on the full dose recommended for at least 14 days. Good luck, follow your instinct!

Krystal - posted on 02/26/2010

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My son was diagnosed with infantile spasms a day before his first birthday! We used Keppra for a while, and swirched meds and doses often... Just when I thought our luck was running out we found a combination and dose that suited him! Everyone told me that it was beyond unlikely that we would be seizure free and that even if we did they would likely breakthrough eventually. He has been seizure free with no break throughs for about 18 months!!! If you'd like to chat you are more than welcome to email me kryssolovely@yahoo.com



Best wishes,

Krystal

Dolly - posted on 02/26/2010

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I know what you're going thru. My son also suffers from seizures and keppra is just one of three seizure meds he is on. He's been on them since he was one and is almost three now. Thank God I have not noted any side effects and as of May 29th of last year he has been seizure free. The doctor did have to be increasing his meds as the seizures continued and also as he grew and gained weight but now we are finally at a dose that has worked for him. As a matter of fact I believe the dose he gets of keppra is the highest it can go that is the reason he was placed on a third one. If all continues as it is up until now I'm hoping the doctor will start to slowly decrease them and maybe take him off at least one. As far a the generic one my son has taken it. When I asked my doctor if there was any difference he told me that at times genetic medications can have a little more or a little less of the active ingredient so that is why he always asks for the name brand since he bases the dose off of it. Talk to your doctor about it I'm sure all your questions and concerns will be answered.Hang in there and be patient your baby will be just fine.

Tracy - posted on 02/25/2010

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Hi my name it Tracy! I have a baby girl named Abigail. She is my third child and at 31/2 she had her first tonic seizure in my arms. She just turn 1 on January 3rd and she has been on Keppra since she was seven months old. She is at the max for what she can have daily which is 5ML twice a day. She still has seizures almost daily. She is also on Pheno, Klonopin and now her neurologist started her on trileptal(not sure of the spelling). We just haven't found the right drug combination for Abby. My daughter has complex partial seizures. She also had infantile spasms but she finally out grew them around the age of one. The most important thing I can tell you, which you probably already know, is to be the best advocate you can be for your child!!! I have found that my own research on the internet is helpful but it can also be very scary and overwhelming!!

JoAnn - posted on 02/25/2010

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I have 14yo twins, nonverbal, epileptic...who we tried two different meds on to see which would work better after lamictal gave us a horrible time:(.. cringe thinking about it. The liquid keppra did the trick for one, so we are about to switch the other twin over to it. The fussiness/agression was hard for me to deal with but in his defense, it was summer time and hot and they don't do the heat well. Good luck and many blessings.

Jenny - posted on 02/25/2010

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I went through the same thing with my daughter. She is 14 and takes keppra along with another medicine called zonegran. She takes the generic on both. As far as side effects their don't seem to be any. My best advice is to try and video tape one of your daughters seizures and take it to your next doctors appointment.That was a huge help for my daughters doctor. I used the video function on my digital camera. I know how frustrating it can be to keep having seizures and keep increasing the medicine.Don't give up and don't be afraid to get a second opinion if you can. Let me know if this helps you. I has been 2 months today since my daughters last seizure. So the medicines do work once you get the right medicine and dosage. I also have a cousin who has epilepsy and she takes keppra and she has a 2 year old daughter, so I can tell you that it is one of the safest medicines for seizures, because she took this during her pregnancy and as a mom you know how picky they are about what you take during pregnancy.

Tricia - posted on 02/25/2010

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My son was on Keppra from about 11 months to 1.5 years old. It is a very mild medication, but it didn't really work for him. There were no real side effects that I saw, except for that he was a little lethargic, but that was also from his seizures as well.

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My son has been on keppra since he was 5mos old he will be two this April. Its works ok for him but he is also on another medication called Trileptal. He take both twice a day and the combo works well for him he has been seziure free for 5mos (knock on wood). your daughter may need another medication as well or she may be growning and the med can't keep up. Have they doen a EKG on her? or MRI or any kind of test of such. Maybe knowing why would help with stopping them my son has a smoth spot in his brain that he was born with that cause his seziures. The doctor said some kids are found out quicker then others that some are born with it go fine in life and then in their teens they start having sezuires and then they fined it. I ve also read that some kids have them do to their deits and changing it can stop them. I would try to find out why its happing not knowing is like trying to fight something in the dark. my son is also delayed by his sezuires but with them getting stopped and under contorl he has picked up on some of his delopment; but is still behide, I would put him to be at a 1 year old and not an almost two year old level. please feel free to email me or anyone else who's child sounds like mine or has seziures. It would be nice to have another mom to talk to that knows what it feels like to time your child annd watch it happen and not be able to make it stop. my e-mail is tabitcre7@yahoo.com

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My 5 yr old has been on Keppra since January 2009 with fairly good results. She also has no known cause and her official diagnosis is Uncharacteristic Epilepsy...meaning they don't know. She also had increasing doses over time to get the correct level for her and it occassionally changes as she grows. While the dose was going up she also had more frequent seizures which is normal...one of the side effects of any seizure med is seizures. My daughter was put on Keppra originally when she was 3 months old (fall of 2004) and the 1st month was really rough until we got her dosage correct...lots of seizures. Then she never had another on so after 2 years (2006) they weaned her off the meds. No seizures until January of 2009...we have no idea what causes them and why they started again. I really do not notice any side effects, maybe a little extra sleepy the first week or so but the increases in dose don't seem to trigger that again. Feel free to ask me anything else and try not to get too frustrated. Trust me...it does not help. Good luck and God bless.

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