Help with seizures...I have lots of experience

Robin - posted on 02/24/2010

definately make sure not to panic...that is the worst thing to do...when a seizure occurs, the only thing you can do is let it happen..but make sure that they are in a safe place where they won't hit anything and if you can't help where they are (which happens alot) then, quickly remove any hazards that are around them. talk to them and soothe them during and after the seizure...many seizure patients can hear during seizures, tho they may not realize or understand what you are saying, it helps to hear a calm, soothing voice. turn the lights off after they are done and avoid loud noises as the person likely has a headache (i always have a bad one). if they are having full grand mal then they likely have muscle aches too. a warm bath once they are up to it will help with this. i hope everything goes okay.

Priscilla - posted on 02/24/2010

hie thanx so for your offer - i have a 2 and 1/2 old son he had a seizure just as he turned 2 and i didnt understand but unfortunatley he just had another one day before yesterday i am still trying gather as much knowledge as possible so that i dont panic wen the next one comes

Robin - posted on 02/19/2010

thank you janice, i honestly was not sure about the tegretol, i had asked my nuerologist and was waiting on a reply

PATSY - posted on 02/19/2010

hi janice ,Thank you so much for your reply,I have been beating myself up so much over my Sam and I am sure people judge me for it,please can I add you as a friend so we can natter,many thanks patsy ,ps hope you and your men folk are keeping well

Janice - posted on 02/18/2010

tegretol does make you gain weight and then they have to up your dose because it no longer works because my son and his father was taking it. His father still takes it and he is a good 260 lbs.

Brandy - posted on 02/13/2010

I have a little boy that has seizures and has been put on a very strong med it's a steriod he gains alot of weight and also has a bad temper while he is on these it's very scary for me. He is only 2 1/2 yrs old its very hard to understand cause he doesn't shake he has what u call drop seizures.

PATSY - posted on 02/11/2010

does tegretol make you gain weight ? my daughter has been on it for years and I just cant get her to loose weight .she is autistic and has global developmental delay so I am in control of whatshe eats ,but no matter how hard I try we are not making progress.patsy

Robin - posted on 01/30/2010

it's no problem, i know how scary the seizures can be and it's even worse when the people around you get scared too. my hope is to help parents understand more of what their children are going through so that maybe they can make the experience a little bit easier to handle.

Ree - posted on 01/27/2010

Thank you for your offer to help. I have a 2 and 1/2 year old who has epilepsy as well as autism.