Fran - posted on 10/15/2009 ( 1 mom has responded )
Hi everyone, i am a mother of a soon to be fifteen year old boy who has been having seizures since he was six. this has been a very hard road. i was told he had a stroke in utero, that turned out to be untrue when he had brain surgery in 07. the doctors we saw thought they had foculized the seizure area. they were wrong. my son has tried tegretol, lamictal, keppra, zonegran, dilantin to name a few. he is currently taking depakote, phenybarbitol, felbatol, banzel, clonazepam, and seroquel to combat the lack of sleep and attitude. of course i guess i would have attitude as well taking so many meds. also did i mention vns. it did not work was a big disappointment. the docs r saying to wait and try the new implant like vns that sits directly on the brain. has anyone heard of this, if so can i get some opinions. it wont be available for a year or so i believe. any help is so greatly appreciated. sometimes i feel so alone. thank you very much.