how do i balance caring for my epileptic son and working and his 5 year old sibbling

Diana - posted on 09/15/2009

hey girl, hang in there. I have been through some tough times too. I am a single mom of three rowdy boys and my oldest who is 10 now started having siezures when he was 5. I did'nt know he was eligable for ssi until he was 8 and thats because a company called Human Arc contacted me to help me file all the paper work needed to get us some money every month to help out. It has been a life saver. Look into it. Every little bit helps.

Jenniffer - posted on 09/04/2009

I understand the feeling. I have a 8 year old daughter who feels so left out because her 6 year old brother has so many health issues and has since he was born at 31 weeks. We changed docs at the age of 4 and found out that he has parcial complex seizures. We had done the working up the meds every two weeks and blood draws everything we all have gone through. Ia lso took in a little girl who was born into a family that couldnt do it. I had her for a year and a half now dealing withher going home. Throwing in the towel sounds great at some points, yet when i lay my head down tio go to bed I feel liek wow tomorrow will be better and then when my kids crawl into bed to sleep with me cuz they had a bad dream it makes it all better. Look in your area call the DSHS office if thats what it is called were your from and find a daycare that can handle this. They hvae caregivers that come to your home and the state will pay for that at least here. Good luck and I would love to help you

Christine - posted on 08/28/2009

I completely feel for you. My daughter was born with a stroke across her frontal lobe right side being larger than the left. Hours after she was born she started to have seizures and was flown to another hospital, she is now 7yrs old. You just have to remember that GOD only gives us what we can handle and unfort. he feels that we can handle alot. My daughter had to go through physical therapy,speech therapy and did not start talking until she was almost 4yrs old.Just remember to keep the faith and that you are not alone. She is still having seizures but as of now they are only in her sleep it is just a matter of time before they will be while she is awake. I pray to GOD that, that day will never come!! ~Christine~ (mother of 2)

Danielle - posted on 08/27/2009

You're absolutely right when you say that no one will care for your kids as well as you do- not because they may not love them but because you know your kids better than anyone!! My daughter is almost two and has been through a lot in her little life... she sees a neurologist, an ophthalmologist, and has 3 (soon to be 4) different kinds of therapy twice a month. I am married and am really lucky to be pretty much a stay-at-home mom- I can't imagine how having to work full time would put that extra stress on you but I respect that so much!! There are times when my daughter is at my moms or something and I just think, 'I could get in my car and just drive somewhere and start a new life all by myself...' Of course I would never leave my baby but the fact is, nobody, not matter how much time they spend with your child, understands what YOU'RE going through until they've experienced having a child with so many different needs. You are one strong person! I don't really have any advice for you since I'm not exactly in your situation with work and daycare but keep your chin up! You're the best mom for your kids! God doesn't make mistakes when He sends those little spirits down here! :)

Sade - posted on 08/12/2009

I KNOW WHEN U TALK ABOUT IT IT IS STRESSFUL... SO I'M HERE CAUSE I HAVE BEEN IN ABOUT THE SAME BOAT... EVEN THOUGH U WILL HAVE YOUR TRIALS AND TRIBULATION U WILL SEE A BRIGTHER DAY BELIEVE ME I KNOW WHAT U GOIN THROUGH. MY SON IS THE ONLY CHILD BUT HE SEEMED TO BE LIKE 5 KIDS IN ONE WITH ALL THE THINGS THAT GOES ON IN HIS LITTLE LIFE... BE STRONGE MY SISTER AND TRUST IN THE MAN ABOVE AND GOD WILL TAKE CARE OF U AND YOUR FAMILY..... REACH BAK OUT TO ME CAUSE LOVE, INSPIRATION AND TRUST IS WHAT IS NEEDED IN THIS TIME AND POINT!!!!