How to "get over" the 1st Grand-Mal seizure???

F.A.S. - posted on 09/01/2012

my son got sick and was running a high fever he began to seize we carried him to the hospital and i was petrified that they would not admit him i went thru the same thing u are going thru it was only one thing that helped my hubby is a minister he laid hands on our son and prayed his sickness away he is eight now and havent had a seizure since he was 2 the power of god came upon him and healed him start praying take her to a god feering church and let the people pray for her

April - posted on 08/31/2012

My daughter is 2 she had her second grand mal seizure yesterday her first one was 10 months ago i was very scared i need help i dont want to loose her she is my life

Debbie - posted on 10/27/2010

I can totally relate! I am a special education teacher and an EMT, but the first time I witnessed my daughter having a seizure, I fell apart! I have had lots of "experience" but when it comes to your own child, it's just different. My daughter is grown and married, and I still worry about her - especially when she is driving. I do a lot of praying, but I don't know that we ever 'get over" that first seizure experience. As far as doctors not listening to us, I write down all of my concerns and questions, hand the paper to the doctor when I enter the room, and say that I expect answers written down before I leave!

Kimberley - posted on 10/27/2010

My daughter had her first at just over 2 years it was in the day not in her sleep and it was the scariest thing I had ever seen and even as a mom who has seizures it was very frighting if u are very unsure of putting her to bed and having one make sure she is sleeping on her side nothing around her to sufficate on and put a baby monitor in her room I know it is hard to keep children in one spot when they are sleeping but see if this helps relive some stress for u it is a very hard thing to deal with but have no fears u will get through it

Alexa - posted on 10/25/2010

My son is only 2 years old and just had his first Grand Mal seizure. I am at a loss. I spent the entire night barely sleeping and watching him every time he moved. I don't know how to get over it. Then again this is my first experience with it. I'm at a loss.

Lisa - posted on 10/21/2010

I don't think you ever get over the first seizure, regardless of what kind it is. My daughter has been having seizures since she was 3 weeks old. She is now 8 months and I still have nightmares every once in a while about the grand mal seizures she had in the hospital while we tried to figure out her meds for her endocrine disorder. The only advice I can give is that your daughter most likely doesn't even know what is going on. I agree it is much worse for the parent watching,

Shawn - posted on 10/20/2010

I don't know if this is helpful. I am an adult with epilepsy. I had clonic tonic seizures for several years even when I was pregnant. It wasn't always pleasant but it never stopped me from doing anything I wished to do. When people thought I couldn't do something, I was able to prove them wrong. I know I scared my mother several times and others. My family and husband (especially him) never let me use my seizures as an excuse but always supported me. When my children were very little, we had to modify several things to protect them and me. Seeing a seizure is one of the scariest things a parent can see a child go through. As a person that has experienced them, I never understood the big deal. Experience them and seeing them are different for me. So what is scary to you, your daughter might not even notice if she is seizuring in her sleep. I did this and if my husband hadn't told me that I had seizured, I just woke feeling really tired. Your daughter knowing she has your support will make all the difference. My advice take precautions where you need to but encourage her to be as "normal" as possible. Its ok to break down worry. I have a special needs child and 2 normal children and I worry all the time for all of them.

MARINA - posted on 10/19/2010

I don't think you ever get over it. I am strong and in control while my daughter is having a seizure and do everything that I am suppose to do and once it is over I just break down. It just breaks my heart everytime it happens but she is my main concern and after I have to release.

HEATHER - posted on 10/18/2010

Thanks! It seems like the doctors do not even listen to what you say to them. I almost feel like I have to beg them to listen. Hopefully this new medicine will work. He is more like hisself so far. I guess I have to overcome my fear. I will look into getting one of those monitors.

Heather - posted on 10/18/2010

hi Heather, have you looked at the side effects of your son's meds? Shortness of breath can be a reaction to the med. Also, headaches and seizures are closely related- talk to your neuro. Check out the link I posted for emfit. It's a seizure monitor for the bed, detects rhythmic movements and alarms.

HEATHER - posted on 10/17/2010

I know how you feel, I am in the same situation. My 15 year old just started out of the blue on July 28 about 30 mins after going to bed, thank goodness his brother was awake and heard him. We went to neurologist and had cat scan, MRI, EEG, 24 EEG and all came back normal so they did not start meds then on October 1 he had another one about 30 mins after going to bed, he had two more that day both when laying down to sleep. We took him to another Neuro at the Medical University in Charleston SC and they did not do anything but blood work and another EEG which they said was normal. He was started on Keppra but it was making him very moody, tired and dizzy so they switched him to Lamictal. I worry so much that there is something wrong they missed. He complains with a headache, sometimes seems short of breath and complains with chest. I live in fear and do not want to sleep or eat. I am a basket of nerves. Every noise scares me to death. I pray everyday for strength to get through this and be strong.

Heather - posted on 10/17/2010

It's not something you ever really get over. It's more like "learn to deal with". That hyperawareness you feel will just settle under your skin, like a 6th sense. You will learn how to stay calm and assess the situation- if it can be handled at home with emergency meds or if it's time for an ER trip. I know what you feel like- it's like constantly waiting for the other shoe to drop, worrying about every little noise until you're worked up into an anxious state. Our son has been having seizures for about 6 yrs. His first grand mal was 3 hrs long. Yup, 3 hrs. I recommend a few things.

http://www.emfit.com/en/care/products_ca...

we've never used this, but i've heard good things about it. And
http://www.amazon.com/Summer-Infant-Hand...

this is a fantastic monitor- gives us a lot of peace of mind that we can check on him anytime. Hang in there- take some time for yourself, because if you don't take care of yourself, it will be harder to guide your daughter through this process.

Chelle - posted on 10/16/2010

My son only has seizures in his sleep. We believe he has myoclonic ones in his sleep but we aren't sure. But we have been through 2 grand mal seizures. The longest was a minute that I witnessed (but they wonder if it had actually been going on for 20 minutes or so b/c of the way it happened). The only thing I suggest is don't look back and just keep moving forward.