I have the seizure disorder not my babies just worried that they might get it

Ashley - posted on 03/13/2010 ( 11 moms have responded )

4

3

0

worried that my babies might inherit my seizure disorder because it runs in my family and the doctors said they cant test for it until they have a siezure I just dont want them to have to go through the things I have to

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

11 Comments

View replies by

Linda - posted on 05/12/2010

1

9

0

I had the seizure disorder and was always afraid my children might inherit it. They are both grown and do not have it. As far as I know, there was no past history of seizures in the family.

Elizabeth - posted on 04/23/2010

23

86

1

I totally understand your fear. When my eldest son started to have seizures it really scared me. I have them when under extrema stress and so does my youngest son. but the eldest is so bad he was put on disability and now is living back at home with me. He can not hold a job due to the severity and frequency of his. I am only hopeful that when they finally get him on some meds that work maybe he can have some sort of normalcy to his life. He is also the father to my grand children and they also run the risk of getting them later. So I understand your fear.

Julie - posted on 04/23/2010

72

42

11

I don't know what phenobarbital does to a fetus, but it does interfere with Calcium absorption in your body, especially if you do not have enough Vit. D. I'd talk to your dr. about being on it, especially if you have a family history of osteoporosis. As far as the family history - you inherit the seizure threshold. How many family members have passed down the trait and if it's a recessive or dominant trait will also determine how likely the child will inherit the trait.

Amy - posted on 04/11/2010

11

30

0

This post is exactly what i was looking for. I have epilepsy but they don't run in my family and i had no head trama when i was younger. I have had them since i was 11. I worry about passing them on more because of the medicine i am still on and was on when i got pregnant. I am off Dilatin but am still on phenobarbitol. They have put me on lamictal. I have small seizures almost every other day and i have had 2 grand mals since being pregnant. They just keep raising my dose phenobarbitol. That scares me.

Karyn - posted on 04/10/2010

63

11

2

i too have epilepsy have been concerned from start that they will get it too have 2 little boys at moment 4 and 2 so far so good i really suppose it depends if your willing to take risk i read up on my medication to see if it would have any effect on my babies but bigger risk going off them it also is in my family terrible as it may seem to say but its a risk like every other risk you take when falling pregnant so don't get too worked its not worth now pregnant with my third and nearly due i have had bad fall in week 14 given morphine been operated on and still they tell me baby is nice and healthy so they are always stronger than what you think

Julie - posted on 03/26/2010

4

5

0

I have had epilepsy since I was 7. My son turned 4 in October and we just found out that he has it too. I felt really really bad. I was told that females can't pass it on. I was told wrong! It took us 2 days to figure out what was going on. He has the staring spells. He would just stand there and then wet his pants. As I have petit mals, I had no idea what was going on. They put him on Keppra and the seizures are under control but he is going crazy it seems. The behaviour side effects with this medicine is really bad. Sorry I couldn't give you better news. I also have a 1 year old and I dred her getting it too.

Leah - posted on 03/22/2010

35

61

2

I have had epilepsy since I was born. My daughter is now 9 years old and when she was small, she suffered two februal convulsions, but after that there has been absolutely no sign of anything else. I was lucky, epilepsy is actually in both sides of the family and my daughter has no ill effects from it at all. My son is only 4 months old, but he also has shown no sign of any problems. I know that it is scary and I really didn't want my children to go through what I went through either, but to be honest, we would have coped. If it does happen ( and fingers crossed for you that it dosen't) you will llearn to cope and you will be able to help them too, because you have already been through it all. I wish you the very best and I am sure things will eventually be okay.

Karen - posted on 03/21/2010

2

20

0

I have 2 sons. One has them and the other does not. I had seizures when I was younger but have not had one since I was 8. I would not worry about it and just let things run their course and handle it when and if it comes. My son is doing fine and yes it is scary but you learn to live with it.

Karen - posted on 03/15/2010

1

23

0

i have elpilapsy, but my son does not, it is something that i have to keep an eye out for but it is not something that i will let it run my life, or his, if it happens it does, i am the only one out of over 50 grandchildren who has seizures, my uncle died with grand mal seizures, but i have not let it run my life, if you do you will not have a life. be aware of the possiablilty of it, but live your life like it is normal, because it basically is, or as much as it will be. my son is 7 and he has no seizures yet, and he may never have any, when and if the time comes that he does, it is something that we will have to handle, and we will. but he will never be made to feel like he is something wrong with him.

Stacie - posted on 03/15/2010

9

25

2

a girlfriend of mine has epilepsy and her daughter had her first seizure around 5/6 y/o she is 12 now. and she is starting to think her younger one (who just started kindergarten) is going to have them too she is seeing some of the same signs she saw when her 12y/o first started having them. My son had one 3 weeks before his first birthday, i later found out that they run in his fathers family luckily they are only febrile so now every time my son has a temp of 98 i freak out lol. Things will work out my suggestion to you is to get a monitor that senses movement for your child's bed so that if your baby does have one you are alerted and can take care of it right away. I hope that helped sorry i have no other information to give you.

Chanel - posted on 03/14/2010

16

25

1

I know exactly how you feel,I've had seizures since I was 8 years old. It runs in my family aswell. My son is 13months old and I worry about it every day. It's the worst thing in the world to me and I would hate for my son son to go through this!!!! I had 5 seizures during my pregnancy with my son,it was so scary every time,to rush to the doctor after every seizur to see if my baby was ok. Lucliky I have not had 1 seizur since he was born. I just hope and pray I don't get any more seizures,cause I'm a stay at home mom. We just have to hope and pray that our children don't inherit it......

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms