Melissa - posted on 06/03/2010 ( 26 moms have responded )
I wanted to post something because I wanted to "talk" with other parents who have epileptic children.
This morning my daughter fell over and hit her head on our bookshelf while getting ready for school. She was rounded over and having a larger than usual seizure. She was drooling a lot and I was so so so scared. I held her in my arms because she was only mildly convulsing. I get so afraid. I wish I had never heard about John Travolta's son. I think about him losing Jett to seizure activity. I wish with all my heart I didn't know that. She woke up this morning and said, "I heard someone call my name!" She even went to the window to look outside. This sort of thing plays with my head. I keep it together in front of her. She was spacey, but was doing OK after about 5 minutes. I dropped her off at school and felt SICK! Just SICK! She said she was having trouble seeing. She's about to finish 2nd grade tomorrow and I didn't want her to miss out on the party today. I thought, "HOW STUPID!" I called my mom balling my eyes out...."Mom, I can't believe I just dropped her off at school after such a horrible seizure!" I felt like the worst mom in the world! She told me to go back and get her and bring her over to her house for the day. She lives 5 minutes away (THANK THE LORD!) and so that's what I did. Leahness was herself again, but I felt like she needed to be with people who really and truly loves her today. I have to work (I don't have a choice).
This isn't a real post I suppose, but I just needed to get my thoughts and worries 'out there' to some others who can understand and maybe sympathize. I can't stop crying. Luckily I have a private office at a small firm and I can be pretty much alone while I get out of this funk.
Thanks for listening...