Keppra

Dawn - posted on 03/31/2010 ( 34 moms have responded )

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Anyone have there child on Keppra? My daughter is 2 and we just started her on Keppra. Looking for side effects or any postive/negative feeback.

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Jackie - posted on 02/14/2011

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My daughter who is also 2 is on keppra, but the generic brand. Started out on the brand name, but switched to the generic and so far hasn't had any problems with it. She has been on it since she was 8 months old, but was on phenobarb before then. But that is another story on reason for the switch, but back to the keppra. So, far since being on the generic keppra we haven't noticed any side-effects to it, but she also is one of those kiddos who has the "unknown seizures" too. But now, after reading your responses on here, I'm starting to wonder about the appetite thing, because here lately she doesn't seem to really want to eat a whole lot. Don't know if this is a side-effect that is now starting that we haven't noticed before or if it is that she might be just coming down with something. Anyway, we are at least getting closer to her 2 year mark of being seizure free while being on the medication. So, now we will have to wait and see what her nero will want to do once we hit that 2 year mark. Anyway, don't know if this has helped or not. But it sure has made me think more too about the possible side-effects she could be having that we haven't noticed yet. Good luck and hope this helps some.

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Dawn my daughter is 16 and been on Keppra for 3 years now. She has had fatigue problems when her dosage has been increased and she does have irratability when she gets tired!! Of course she is a teenager so who knows what is causing that!! LOL I would say her overall experience with Keppra has been positive except for one thing. She seems to have developed an acne problem along with it. It is severe and was obviously caused by that as it was within 2-3 days of her starting it. She has to use prescribed meds for that issue. Otherwise keppra has worked well for her. Good luck!!

Heather - posted on 04/01/2010

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hi, my son is on Keppra. there's a few things- it's been known to cause nasty mood swings. Our neuro prescribed vitamin B6 for this, and it worked like a charm! Also, in Jacob's case, the generic version was not as effective as the brand name. Let me know if you have any questions.

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Mandi - posted on 03/02/2011

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I have a Trent too, like you we were on MANY combos of drugs and I found a drug in Canada that you might want to give a try. It's Clobazam.

Veronica - posted on 03/01/2011

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Hi Dawn
My daughte is 2 1/2 years old and we also just started her on Keppra. We were really reluctant at first but after her last seizure on Friday there really was no choice. Thankfully she has responded well, she's been a little more cranky than she normally is but that could also be that she is 2 1/2 years old. We have noticed though that she is extremly thirsty. She is also on a low dose but her neurologist said that the dose will most like go up. I know exactly how you feel, I am really worried about giving her a higher dose but if it will stop the seizures that is what we will do. Good luck, hopefully the seizures will stop and she will do great on the Keppra.

Elaine - posted on 02/25/2011

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Heather you know the patient must get use to keppra, going off would also have effects. As long as his seizures don't come back, he should normalize in a few days.

Heather - posted on 02/23/2011

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My son is much older 20 but he was just taken off kepra it made him very moody and it thru his balance off

Elaine - posted on 02/11/2011

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I also started my son on B . He was becoming depressed occasionally from the keppra. It has definitely helped. I believe his seizures are associated with him eating well, he has been in a excessive growth spurt for 2 yr. maybe a multivitamin would be even better.

Christine - posted on 02/11/2011

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son has been taking keppra for over 3 years after 1st year..dose was increased and started acting out at school and at home. I researched it online and kept reading about vitamin b so went out got some multi vitamins...havent had a problem since...when we were waiting for the dr appointment like 2 months away so I bought multi vitamins and started him on a routine. The days I would forget to give him his vitamin he would have a siezure. I am a strong believer in vitamin b

Elaine - posted on 02/07/2011

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My son started keppa last fall at 16 yrs old. He had some issues with kind a little groggy at first, and now occasionally has a bout of unexplained depression. We believe his seizures to be linked to extreme growth accompanied by a concussion, he does bike tricks. It is best to look up the side effects of the drugs the dr's prescribe for your daughter and any family member. You can google search for the drug name to find it if you didn't get copy of the side effects with your prescription. If you hightlight/select what you what to search for then right click on it the computer usually will give you a search option in the pop up menu.

Melissa - posted on 04/18/2010

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Yes, my son is on it and has been since he was 2. He is now 5. He hasn't had any seizures since he was put on it. However, his recently EEG showed that he was still having seizures, so his Neuro pumped it up from 2ml twice a day to 3ml. We started giving him a little more at a time. My son hasn't had any changes in his behavior, he's always been a bit "Hyper." However, we found out that he has iron absorption issues--which causes hyper activity!

Amanda - posted on 04/16/2010

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hiya,my 3year old daughter is now on keppra having tried lamotrigine and carbamazapine.its controling her seizures but still having slight vacant moments and arm shaking.may need increasing we are waiting to see consultant again.hopefully we have been told she will grow out of it.fingers crossed she's been through too much in her little life so far.was 3months prem weighing just 2lb 1oz.good luck.x

Jerri - posted on 04/10/2010

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It stopped my daughter's seizures immediately. However her mood swings were unbearable. Created almost an obsessive compulsive behavior in her concerning things she wanted. For instance if she wanted a blue crayon............no matter where we were or what time or even what we were doing (church, sleeping, shopping, at the park, restaurant). She would be persistent in asking, crying, clinging and driving me crazy until she got that blue crayon. This could last for HOURS and there was no trait to identify when it would happen. However, as soon as she got whatever was her object in mind she would go to sleep. Unfortunately it was never the same item twice....sometimes a pair of paints, sometimes a certain color of popsicle or even a person. Would have tried the b6 medicine if I had known about that at the time. This even would happen within the first hour of waking in the morning so it was not an overtired issue, did not follow a seizure or happen prior to. I contribute it to the medicine as since she has been weaned off of it this behavior rarely happens. She is back to being a sweet happy child that can be reasoned with.

Elaine - posted on 04/09/2010

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It has stopped my seizures just had a problem when first started no side affects since except weight loss and nausea when first started them, I am also on combi drugs.

Courtney - posted on 04/08/2010

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My daughter is on keppra. She has been on it for about three months. Her appetite has improved a bunch. She hasnt had a seizure in five weeks maybe a lil longer. The only thing i have had a problem with is she is on more then one drug to keep her seizure free. My daughter hates taking her medicine by mouth. That is the one medicine she will. I hope this was helpful

Dawn - posted on 04/08/2010

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Thanks for all your posts, she did have some aggressiveness and irratibility so the doctor reduced her dosage, that seemed to help. From what I am reading this medication doesn't really stop the seizures that occur when there is sickness, anyone have any positive news for me on this subject?

Elaine - posted on 04/08/2010

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I'm on keppra but older I found I lost weight and my appetite decreased as well, certain foods I went off, but on the plus side they are a good drug and seem to control well.

Claire - posted on 04/07/2010

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hi dawn my son was put on keppra 6 wks ago and it has stopped his fits completely. at first he was very irritable and would hit and be very aggressive also he would not eat. but 6 wks on he is a changed child it is really good. hope keppra works for ur daughter.

User - posted on 04/07/2010

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My 5 year old, 31 pound daughter, has been on the generic for Keppra for a month now and is up to a 750 milligram daily dose now. We have not noticed any side effects and she is not due for another seizure yet so we are not sure if it is helping either. She only has short complex partial seizures every couple of months, but doctor is hoping her being on meds will help with her ability to learn and retain it. We will be doing another sleep deprived EEG next week to see if her brain is responding to the meds. I am hoping they are working because I am thrilled that we are seeing no side effects to the medication and would hate to have to change to one that might have them. It is a pain putting a child on medication twice a day when they only have short infrequent seizures though.

Nikki - posted on 04/06/2010

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My daughter has many dissabilities & seizures were the biggest concern she went from having hundreds of seizures daily to next to none. It's a miracle for us as we tried so many different meds, she is 4 now, and we have no known side effects and she was 6m when Ned began. She combines keppra and phenobarb and we have managed to control seizures on small doses.

Kerry - posted on 04/06/2010

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My daughter, now 8 is on Trileptal--had been on Keppra three years ago--not really happy with it, due to mood swings. Her neurologist didn't suggest B6--would have tried it, if suggested. Instead the doctor weaned her off of Keppra and onto Trileptal. The side effects have been less--still lighter mood swings and tireness, but better. I will ask her doctor about B6. These medications work differently on different patients, so sometimes it is just a process to try different ones until you find the best 'fit' for your child's body.

Elaine - posted on 04/06/2010

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I found it hard to sleep with them unless I had bath and no caffiene before bed or anything sweet I've also cut down which helps an hyperactivity.

Elaine - posted on 04/06/2010

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Not children but on it myself only side effects I had was loss of weight, nausea when first started, found I went off some foods. No other side effects that I have had with them.

Kim - posted on 04/05/2010

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My son has been on Keppra now for about 1 1/2 years. I have noticed a decrease in appetite and he can be very hyper his Doc has also perscribed Vit b6 which seems to help.

Katie - posted on 04/05/2010

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My son Nathan is and has been on keppra for 2 yrs now and they only side effects he's had is alittle extra hyperness and a decrease in appetite. Some days he snacks all day long and others he'll go hours between eating. He kinda picks at his food now after he's had his medicine. He gets it twice a day. In all honesty if he wasn't on the keppra he'd probably out weigh 1 of his older brothers, he can eat..lol. But he's only 3 1/2 too. The only time he's had break through seizures is when he was sick and when passport made me change him to the generic version of it. I immediately got the doc to get him switched back to the keppra due to him having more seizures. I hope this helped :o)

Lori - posted on 04/05/2010

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My son (23) started taking Keppra 2 months ago and from what I have read and heard, it is one of the best meds available for seizures, as far as negative effects on the body. Even though we expected some drowsiness when he initially started it, he was fine after one day. I have not noticed any mood swings or anything else negative. As an added bonus, it is actually WORKING ... :)

Janice - posted on 04/04/2010

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My son has been on Keppra for 2 1/2 years, since he was 2 years old. My son also has other medical conditions and autism, so it sometimes hard to figure out what are side effects and what can be attributed to other medical problems. Things we are concerned about with the Keppra, are the effects on his liver (labs showed that his liver is under stress, but we don't know for sure if it's the Keppra or other issues). He had some thyroid issues (particularly the Free T3 numbers being off) that the endocrinologist blamed on the Keppra. He is very low energy, so we feel like there may be some sedating effect but it's hard to tell since he's been on them more than half his life it's like we don't know what our child is like without seizure meds. He has not had any grand mal seizures since starting Keppra, but still has blinking spells that I am told are seizures...these happen every few weeks. We've been pleased with Keppra.

Tracy - posted on 04/04/2010

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my son was put on it last fall and he was 6 then he did not hav any side affects, he stop having a sizure everyday now he has had only 2 since last fall. i think the meds work they do for him. he can do normal things now without worring about his sizuires

Bobbi - posted on 04/03/2010

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Wish I could help - Trent is on 4 diff. anti-seizural meds. But I'm with the other moms about few side effects. It's his other meds that cause the side effects - mostly his clonazepam. I'd be careful with the name brand/generic also. We've had to make sure his Zonegran and clonidine (for sleep) are name brand b/c the generic didn't work.

Carolyn - posted on 04/03/2010

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My daughter has been on Keppra for seven years and there have been no side effects at all from this medication. It works great! My Beth went from 110 seizures a day to sometimes no seizures but she can have up to 6 a day. I am very happy with the results. Of course every child is different and results will be different for everyone. But for Beth this medication worked with virtually no side effects!! Good luck.

Crystal - posted on 04/03/2010

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My son is now 11 months and has been on Keppra since being diagnosed at 4 months old. He tried the keppra alone to control his seizures. If this medication alone works for your daughter, that is great. I guess it has the least side effects of any other seizure meds. Did not work for my son alone, so he still takes it along with a few other meds. Ive never noticed any side effects with the keppra alone for him. Hope that helps!

Jamie - posted on 04/02/2010

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My 18 month old has been on it for 6 weeks now. She had some break through seizures after the first week so she was on the full dosage by 2 1/2 weeks instead of the initial 5 weeks. Even with that, I only noticed mild side effects and that was probably for the first 2 weeks or so. She was mostly tired and a little bit irritable. But the irritability could have been age related....darn terrible two's starting early!

Tracy - posted on 04/01/2010

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Hi Dawn...my son has been on Keppra XR for over a year. So far, I haven't noticed any mood swings, or any other side effects, which is a blessing. He is 20, so his body chemistry is obviously different from a 2 year old, but we have been told that Keppra has the fewest side effects of any drug out there. He is a college student, so I don't have constant contact, but I do monitor phone calls and emails for any noticible anger, depression, etc. He is also very healthy, works out, so he hasn't experienced weight gain or other side effects that can come with seizure meds, which I think helps.

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