Elaine - posted on 08/26/2010 ( 8 moms have responded )
My son has been on the ketogenic diet for about a month. It's helped greatly with his seizures but the side effects of being sick are making my little boy and our home miserable. About half of the time either right after he eats or during the feeding he starts to get very upset. He then either gags as if he's trying to throw up (can't fundo surgery) or he just cries without stopping for over an hour. He's tube fed and nonverbal and so trying to play detective can be a challenge. They have him on Miralax to keep from becoming constipated but his stools are the consistency of water or pancake batter. Not anywhere near constipation and yet his dietician still wants to UP his Miralax.
Has anyone had any experience with severe stomach indigestion with this diet? I'm at my wits end but this is the only thing that has offered us any hope thus far of my son having a semi-normal life without a helmet. His seizures come often when off of the diet, many times a day and meds have been only partially effective.