lamictal??

April - posted on 05/11/2009 ( 17 moms have responded )

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Hi! I'm looking to find out any info on Lamictal. My 8 year old daughter is being weened off Keepra after 1yr and starting the Lamictal in hopes that will stop her absence seizures. Because I know nothing or no one that has been on this med I have a big concern of this RASH! that could be a side effect. I know it is life threatening but don't know if the risk out ways the seizures at this point. Any comments will be great. Thanks!

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Sue - posted on 05/12/2009

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Please be very careful about using Lamictal, my daughter was 5 when the specialist put her on to this drug.The result was 8 weeks in intensive care at the austin hospital she was losing her kidney and liver functions as well as it caused a reaction that was eating her body away, plams of her hands, souls of her feet and alot of other areas.The roof of mouth caved in and she could only go to the toilet in a bath.It was a horriable experiencefor a 5 year to go through.good luck.

Melissa - posted on 02/16/2013

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I just started my daughter on Lamictal , now its only been a few days BUT no seizures or side effects at all, Ive had seizures most of my life, but to see your daughter have them is a whole different story!!! I was very concerned because of my life experiences with meds and doctors, but its seems to me things have changed since my time LOL, Im so happy that the medical field has come as far s they have, very encouraging and because of all of your posts about the good, your the reason I allowed my daughter to take it, thank you all so much!! I will keep you all updated

Alexis - posted on 05/11/2009

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hi april,

my son has been on lamictal for nearly a year,( he is 3 1/2) he is also on epillim.... i havent had any problems at all..... no rash and no side affects...

my son had a couple of absent siezures when he was first diagnosed with epilepsy when he was 11months old.. in feb just gone he had a couple of drop attacks... since being on the correct dose of both medications he has been really good...

my son would go hypo on a high dose of epillim so if he does happen to have a siezure we tend to increase the lamictal... their are quite a few of side affects as thier is for all medications, i suppose different kids can take some things and others cant... i found a website that may help....http://www.lamictal.com/



just keep a note book and note everything that your daughter does that is out of the ordinary...

hope all goes well for you...

alexis

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Jamie - posted on 06/07/2009

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My daugher is 13, and has been on lamictal since she was 4. In the last two years we added Lyrica, and she is only having seizures once a month, and the intensity has gone down since adding lyrica. She was on a diastat due to her seizures last 15 to 20 minutes at a time. The ones she is having now may only last 30 seconds to a minute. She is still unfortunately suffering with developmental delays and cannot speak more then 3 to word utterances and is mentally at a 3 year old level. The siezures is just a small part of her challenges but it is good to have one part under control.

Holly - posted on 06/04/2009

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Lamictal is awesome!!!!!!!! My daughter was having over 200 seizures a day, they did an agressive round of ACTH and introduced the Lamictal. Once the ACTH did its job and got her seizures somewhat undercontrol, the lamictal finished the job and she was seizure free for almost 2 years before we began to see anymore! She has been on lamictal for almost 3 years and she hasn't had any side effects of the medication.

Priscilla - posted on 05/31/2009

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My daughter lasted only 1 1/2 years on this before it stopped working. She has Generalized Tonic Clonic and Absence seizures. The next drug was Depakote which she is currently on. During the transition from L to D she was overdosed and ended up in the hospital for about 5 days. It's a risky transition between these two drugs so if/when you have to make a change from this drug to another, be very aware and question question question, did I tell you to question...question the doctor on this. It's hard to see your child seize but even uglier to see them overdosed.

Jul - posted on 05/31/2009

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Hi April

My son is now on lamictal 150 tab in morning and 200 tab. at night plus tegretrol liquid 3 times a day and hasn't had any problems yet. He has been on it for 2 years with increases as he breaks through. He just turned 10 .

Teri - posted on 05/28/2009

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My son, Justin (20 yrs old) has been on Lamictal for ..... 3 years. He has partial complex seizures. He first started on Depakote and it didn't help - he was having up to 3 seizures in one day. He then switched to Keppra - and gained 34 pounds in 30 days! Then he started Lamictal - what a (great) change! He now only has a seizure about every 5-6 weeks and the length/severity is a very small fraction of what he was previously experiencing. No rash , no negative side effects.

I think if you know what to look for (signs of side effects) you will be fine.

Best of luck to you.

[deleted account]

We also went from Keppra (huge behavioral problems) to Lamictal -- he has been on it over a year with no problems!

Melissa - posted on 05/20/2009

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I hated keppra my daughter was allergic and had extreme behavior issues. I love lamictal and she has been doing better. She also has the absent seizure Complex partial epilepsy. The rash is very rare .

Stephanie - posted on 05/15/2009

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my son Conner in on week 2 of weening off lamictal. he has been on it since 9/11/06. we have had no problems or side effects

April - posted on 05/14/2009

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Thank you for your stories. We are starting the lamitctal very slowly, over a 3 month period so I hope this is the trick. It's really nice to know people somewhere went through or are going through some of the trials that we are now. I'm very happy for the success story.

Charlene - posted on 05/13/2009

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Hey, I know my daughter and I both take lamictal. All medications depend on the child taking it and how good their health is and tolerance to other medications like it. Your doctor usually don't recomend a medication if it would not help your child's condition. My daughter is 9 1/2 and was born with seizures she has a genetic condition called Tuberous Sclerosis which is a cause of her epilepsy. She has been around the block with her medication. Lamictal was started in the fall of 2007 and I could not be any happier as long as the doctor monitors your child properly and does not put the dose on too quickly or too strong the medication will work like it should as long as the medication responds well with your child and makes your child comfortable. My daughter is very well awake during the day sleeps at night and very happy. She's not drugged up, which a lot of drugs can do to children. Lamictal is an excellent drug. I also take it for my seizures I went onto it from Depakote, and it made a big difference. Just give it a try, and if you have to you need to ask the doctor some questions and if you don't feel comfortable it is your ultimate decision whether your child is placed on a drug or not.

Holly - posted on 05/13/2009

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My son had been on it for I don't even remeber how long i think about 2 years we have had no problems with it at all.

Sharon - posted on 05/11/2009

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April, my 12 year old daughter took lamictal for 2 years. I too was concerned about the rash side effect. When my daughter was up to her full dose, she came to me on a Friday night complaining she was itchy. Saturday morning she was worse and we took her to urgent care. I was really concerned, but it turned out it was scarlet fever. That was a nightmare, but I was glad it wasn't the side effect. She recover from the fever and never had a rash caused by the Lamictal. Hope this helps.

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