Loss of oxygen during seizure

Leslie - posted on 02/27/2009

also my son is on disability he is now almost 6 i applied for it in new york state when he was 23 months was denied twice keep fightin and finally got it 4 months ago. in ny i know that your child has to have at least 1 grandmal a month or 1 partial/peti/absence a week but hey if your patient and dont mind waiting then definatly go for it. but remember if you income level is high they will just deny you anyway

Leslie - posted on 02/27/2009

i actually have to keep oxygen in my house for when my 5 year old son has a seizure, how it was explained to me was that its because of where in the brain the seizure is happening. there are certain nerves and if the activity is next to those nerves then the dont respond as well causing the o2 saturation to be lower they can still get oxygen just not in the concentration the need. hopefully this helped a little

Amber - posted on 02/24/2009

Breathing in his mouth probably dosent help but I dont think it hurts him. Have you told this to your doctor?  5 minutes is a long time! You may be able to get disability, depends on what they dignose him with.  My daughter is on disability, among other things but, she has multiple problems besides just seizures.  You may want to ask to see a Neurologist too. Hope this helps!

Charity - posted on 02/24/2009

Also everyone keeps telling me to get him on disability. Are any of you? Is that nesessary? Area most epileptic children on disability?

Charity - posted on 02/24/2009

I'll ask about oxygen at home. I've been breathing in his mouth with each seizure, is this helpful or harmful?

Charity - posted on 02/24/2009

Yes they last up to 5 minuites. WITHOUT OXYGEN. That scares me.

Amber - posted on 02/23/2009

Sometimes they "forget" to breath or cant during.  If its a long going issue ask for oxygen at home. It helps.

Annette - posted on 02/17/2009

Nick (14) typically has his lips turn blue, but a couple of weeks ago, he's whole head was blue. It scared the crap out of me. They just don't breathe well while having a seizure. They told me to make sure he takes deep breaths when he comes out of it, but if it got bad, to call 911

Lora - posted on 02/16/2009

My son would turn blue during his seizures. Scariest thing that I have been through in my life. He started having seizures when he was a year and a half...he'd have them about every 6 weeks, a couple at a time. Even though we were in and out of hospitals we didn't get any answers really either. Very hard to feel like your son isn't going to start breathing again. He's 3 years and 5 months now and has been seizure free for a year. He's on Trileptil and Keppra. The Keppra is what stopped them finally. Thankfully.

Lora - posted on 02/16/2009

My son would turn blue during his seizures. Scariest thing that I have been through in my life. He started having seizures when he was a year and a half...he'd have them about every 6 weeks, a couple at a time. Even though we were in and out of hospitals we didn't get any answers really either. Very hard to feel like your son isn't going to start breathing again. He's 3 years and 5 months now and has been seizure free for a year. He's on Trileptil and Keppra. The Keppra is what stopped them finally. Thankfully.

Lisa - posted on 02/15/2009

Yes it happens a lot with my 7 month old son. He has been having seizures from about 2 weeks old and has been on the yale new havens childrens hosiptal ward about 20 times already... He turns blue from loss of oxygen when they seiz they can't breath that well. The doc's don't tell you much I know it's crazy we are the moms but yet know nothing it's le we a kept in the dark

Jennifer - posted on 02/15/2009

Yes we have a 15 month old boy, Alex who has seizures and they last anywhere from 20-30 seconds.  He turns blue with them.  We have oxygen at the house and we put it on him immediately during a seizure and it really helps.  Does your child have long seizures?

In my prayers...