Chelle - posted on 11/16/2010 ( 12 moms have responded )
So we had a bad appt today and were given the official, official diagnosis of epilepsy today. The majority of our sons seizures (his grand mals) are in his sleep and a lot of time I am woken up to him having them. The doctor told us flat out his fear (and ours) is that our son will die in his sleep. WOW! What a smack in the face! You know? So he has said to keep a baby monitor in his room so we can hear his seizures and get to him quicker.
Well, that just isn't going to give me enough peace of mind I don't think. I looked into maybe the angelcare monitor but it alerts when there is no movement and I dunno if that would be sensitive enough to tell us when he has stopped breathing. I am scared to death right now! I have been thinking about possibly getting a dog for him maybe (service dog) so they can alert us to when he is having one, or hopefully when he will have one so we know in advance. What would you do? What do you do? How do you monitor their seizures in their sleep? Any suggestion of monitors? Or how to ask the doctor maybe to help us get insurance to pay for a monitor for our son whether it is an apnea monitor or pulse ox one?