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Melody - posted on 03/05/2011 ( 6 moms have responded )

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Hi, I wanted to introduce myself. I am not a mother of an epileptic child or one who has seizres, but this is why I joined this community. I was thee caretaker of a child with seizures. He had microsephelis(sp?) and had seizures regularly from the time he was 9 months until he passed. He was a very big part of my life, and I loved him very much. I wish there was something we could have done, but I would like to be there to offer support to the mothers of children going through what my good friend went through with her child. I was his sole babysitter, and I was definitely nervous te first few times watching him, but I grew to love him like a son. And my son is named after him, in his honor. He also had low muscle tone, so at 2 years old, he was not able to sit up by himself yet. I just wanted to share this story with you, and offer my support.

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Cherri - posted on 03/09/2011

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Thanks for sharing your story. I have not posted much in this site, because I don't want to discourage anyone. My daughter, Laura, who developed epilepsy at the age of 10, died last year. She had a seizure while taking a bath and drown. She was 28 years old when she died, and the mother of two beautiful children. It has been a tremendous loss for our family. Thanks for caring for your friend.

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Cherri - posted on 04/20/2011

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Thanks for your encouraging words Lora.
I will keep you and your son in my prayers.

Cherri

Sandy - posted on 03/09/2011

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All of us need to know the good, the bad and the ugly. We need to be prepared to deal with anything that pops up. I know I am still showering or bathing my 12 year old son because the bathtub is the most dangerous place for them to have a seizure or even just fall and hit their head. We need to be here for each other through the good and bad. Helping or advising others makes my heart feel so full of love and satisfaction. Sharing my experiences with my son has helped others around the world!!! God Bless you Cherri. I am so sorry for your loss. Your story may help others and help you deal better with the pain since you know you are helping others.
Sandy Lora

Sandy - posted on 03/09/2011

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Melody ... thanks for your input and interest in helping others. It fills my heart with love and joy to have people that are so caring and willing to help my moms, dads, etc. on here. God Bless!
Sandy Lora

Denise - posted on 03/07/2011

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That is very kind...there should be more people in the world like you. What a shame...I dont know of that he had but we cant help but ask why anything could be wrong with our children. God bless you and his family.

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