Lana - posted on 08/30/2011 ( 2 moms have responded )
My 6 year old daughter was just diagnosed with Rolandic epilepsy after having her second grand mal (tonic-clonic) seizure last week. Her first seizure was 10 months ago. I am interested in hearing about your experiences to help me cope with ours as I am feeling scared and alone.
Things that would help to know about other kids w/ Rolandic Epilepsy:
How many seizures has your child had?
Where they partial, complex partial or grand mal (tonic-clonic)?
How often do they occur?
Have you noticed a trigger (i.e. overtired, stressed, sick)?
How do you know when they are having a seizure if you are not in the room?
Thank you in advance for any and all replies. I am hoping that talking to other moms might help me deal with the constant anxiety/fear!