Night seizures

Michelle - posted on 10/15/2009 ( 7 moms have responded )

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A little background:

I have a 7 year old son who has partial seizures, learning delays, and speech delays.

I have a soon to be 6 year old daughter who has significant speech delays, learning delays, and white spots in her brain where they shouldn't be. Her neurologist said the spots look like what would be found in a premature baby. However, I had five due dates with her spanning the month of November and they induced me the day after the first due date because my OB's didn't think she was growing in utero. When she was born she still had the white fuzz covering her body that babies have until the last month of pregnancy. Her first and second EEG's were normal.

My daughter wets the bed occasionally at night. Usually 3 or 4 times a week. She has had all sorts of test to figure out why her speech is delayed and why she doesn't retain what she learns and nothing has been found. Her neurologist is now thinking that when she wets the bed she is having a seizure. She says that would explain the speech and the learning problems.

They are going to do another MRI, a 24-48 hour EEG and a CAT Scan.

I know a lot of kids wet the bed until they are older than she is so I never thought anything of it, but now I am wondering if the Dr. is right.

Could this be a possibility given her history or is the neurologist taking a stab in the dark?

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Just some advice. Don't give up. Also is your neurologist an epitologist. I highly suggest you get a neurologist who specializes in pediatric epilepsy. I learned the hard way, and after 3 years of getting know where, finally got to a specialist. They saw things that the neurologist never saw (in the EEG).



Also don't give up. It also seems odd they would do a CAT Scan and a MRI. My experience is just a MRI.



The bed wetting could be directly related to seizures in the night.



My son is 10 and has had epilepsy since he was 3 1/2. He also has learning disabilities, as well as a number of other conditions. His seizures are still not totally controlled and still have daily events. He also has a VNS implant.



If you have other questions, let me know.

Melissa - posted on 10/26/2009

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As a mother of an 11 year old daughter who still sleeps with me everynight due to seizures, I think it's entirely possible. Our daughter was diagnosed at 4 yrs with Epilepsy. Her seizures happened primarily at night and were unnoticed for a long time. We are not really sure when the onset was due to them being nocturnal. The video EEG will tell you the tale. We have run the entire gambit of tests and had 3 brain surgeries trying to correct the problem. We now are still not seizure free but better, with learning delays and right sided weakness along with maturity problems. We also went throught the bed wetting issues during seizures. That has gone away but she still refuses to sleep alone and I am not comfortable with her alone in another room. We are still in search of answers. However, diagnosing seizures is the easier part. They should be able to tell you if that is the problem you are dealing with. Good luck!

Libby - posted on 10/25/2009

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It's interesting you mention this. My son is only just over two so the peeing-in-the-night issue isn't so clear, but it's something I've wondered about. He often has mornings where he wakes up completely soaked (or in the middle of the night) with pee. And it's strange to me, because it doesn't seem to correspond with how much he's had to drink right before he's gone to bed (or during his time in bed--since I give him a sippy cup then). It's possible that I'm just reading into this, but it is interesting to me.... He often doesn't sleep well on those nights. And just last week I was with him when he had seizures in the night. Maybe he does have more seizures in the night that I don't know of.... the doctors have always asked, and I've never really known. I don't have a monitor on him at night (at least, not one I can hear in my room), so I wouldn't necessarily hear small noises like seizures, etc. I mostly just hear if he's crying or whimpering loudly for a while.

Anyway, those are some of my experiences. Do write with an update from the doctor. I'll be interested to hear news!

Jessica - posted on 10/25/2009

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Hello! I have a four year old daughter with absence seizures. She has also had 3 grand mal siezures due to kidney infections with high temperatures she was having. Seizures can affect their speech and delay them developmentally. My daughter is speech delayed and delayed in some of her cognitive and fine motor skills. She was also born 6 weeks premature so I am not sure how much that has to do with it. She started on Keppra when she was 2 1/2 years old. Within a month i noticed a difference in her at least trying to speak. She now attends a developmental preschool in which she has been enjoying it and learning alot. We go back to the neurologist tomorrow to discuss her last EEG which also came back with abnormal brain waves. I would have never guessed my daughter was having seizure activity if it wasn't for her kidney problems. I thank god every day that we discovered it. I still have problems recongizing the siezures. Good luck to everyone who has to walk down this road. They are definately a scarry thing. My daughter still sleeps in our room a lot of the time due to me being afraid she might have a seizure in her sleep. I have found that sleep is very important to a child with seizures. Any way that is just my two cents. Glad I found this group.

Michelle - posted on 10/20/2009

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Quoting Alexis:

hi my 4yo has had epilepsy since he was 10 1/2 months old, so far he dosnt have any speach or learning difficulties, but in saying that he will begin to learn quite a lot in the next year... so time will tell with that one....
as for your daughter you never know.... my son has a majority of his siezures during the night. i still use a baby monitor so i can hear if he is having one....
just a question.. do you notice a lot of wet patches on her pillow and does she complain of a headache or seem disorientated after waking.....
these could be signs of siezures... also my son has the occssional absent siezure which is like a daydream for 30seconds ..... with these they will not even hear what is being said or realise what is going on around them.....
not sure if this helps but it is something worth looking into if you havent already....
take care.. alexis


Hi Alexis,



I have never noticed wet patches on her pillow but I have never really looked either.  I will keep an eye on that.  She does seem disorientated when waking at times but I always just figured it was her not being all the wake yet. 



The type of siezures my son has are partial or absent seizures.  He will look like his staring off into space for like you said 30 seconds or more at times.  Then we he comes out of it he is disorientated.  I haven't seen these in my daughter and would never have thought of seizures being the cause for my daughters learning disablilities or speech delays.  I am anxious to see what her neurologist finds when she does all the test.



Thank you for your information.



 

Alexis - posted on 10/20/2009

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oh also my son has had a EEG, a Cat scan and a MRI and they have all come back normal... aparently this is quite common in kids with epilepsy....

Alexis - posted on 10/20/2009

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hi my 4yo has had epilepsy since he was 10 1/2 months old, so far he dosnt have any speach or learning difficulties, but in saying that he will begin to learn quite a lot in the next year... so time will tell with that one....

as for your daughter you never know.... my son has a majority of his siezures during the night. i still use a baby monitor so i can hear if he is having one....

just a question.. do you notice a lot of wet patches on her pillow and does she complain of a headache or seem disorientated after waking.....

these could be signs of siezures... also my son has the occssional absent siezure which is like a daydream for 30seconds ..... with these they will not even hear what is being said or realise what is going on around them.....

not sure if this helps but it is something worth looking into if you havent already....

take care.. alexis

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