Kerry - posted on 08/26/2010 ( 16 moms have responded )
My daughter is 7 months old, and was just diagnosed with Occipital Lobe Epilepsy a month ago. Her seizures are more of the focal kind where her head nods, eyes flutter and roll in the back of her head and her hands twitch. We are truely blessed with an Angel!! Since two months old, she has slept through the night, always smiling, NEVER cried. If she is hungry, tired or needs a new diaper she just fusses a little bit.
After the diagnosis, they started her on Phenobarbitol. Ever since then, she has been getting up 4-5 times a night just screaming! During the day she is so irritable and fussy, and always tired. Shes had 3 seizures (in a month) since being home from the hospital. The Dr mentioned that irregular sleep pattern can bring her type of seizures on, yet the meds they have her on keep her up all through the night, so no wonder shes still having seizures.
They notified me yesterday that they want to add Keppra on top of her Phenobarbitol, and I am so scared of the side effects. I dont want my 7 month old daughter "doped up". They already have to check her liver due to the high dosage of Pheno, and now they want to add a second med into the mix?
I'm new to this and dont know what to do anymore? Any suggestions?