Ok new question on the febrile seizures...

Harley - posted on 12/15/2009 ( 12 moms have responded )

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Well we are here for her 4 day e.e.g and they are going to put her on a seizure medication even if they dont find any activity...should i give it to her or should i get a second opinion?!? this is all so scary!

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Joy - posted on 12/19/2009

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My daughter had febrile seizures from 9 months until she was 8. She was a bit unusual as she would not stop fitting for about an hour so we were offered Valium for her when she started fitting, but we refused all other medication. She is now 10 and has not had a fit for 2 years. The biggest help was when she had gromits inserted as the fevers were mainly coming from the sudden rise in her temp. from ear infections. How did the e.e.g. go?

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Brandie - posted on 12/31/2009

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Seizures are definitely a trial and error condition. My son, now 9, started having febrile seizures 2 days after his first birthday. His doctors did not find any activity in his brain at the time per the EEF, but we soon learned that he is epileptic and the reason why (brain malformation we did not know about until an MRI). My suggestion would be to trust your doctor and if it continues, put her on the meds BUT on the flipside, I would ask for an MRI if there is no other typer of seizure activity found when they do the EEG (if they do an EEG that is to test for more activity) just to be on the safe side and especially if you start to notice things about her that may indicate seizure activity (staring spells where you can't get her attention, staring spells with specific body parts that seem to stiffen or twitch....etc...). With seizures, it is better safe than sorry and narrowing it down to the last possibility is the best thing you can do for your child and yourself. Also, if something IS found, educate yourself about the condition. I am a full believer in that. Educate yourself about her condition, meds she is on, what to do in case of a seizure etc.... Best of luck to you!

Clair - posted on 12/30/2009

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Daughter had 17 convulsions and a status fit in a year and i asked for her to be put on seizure medication...she is five years old now and in febuary this year we weaned her off the medication and in september she was discharged from the paediatric clinic..it's to give you the piece of mind that the seizures are under control..xx

Rhianna - posted on 12/28/2009

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my son has febrile seizures as well. the drs gave us a medicine to give him if the seizure lasts more than 5 minutes, or is in the category of "grand mal" seizure. they dont want to put him on any meds that they dont have to, as he only has one kidney and we need to protect it. we jsut keep a very close eye on him and are planning on seein a specialist very soon. i opted for more drs visits ans less drugs

Gwendolyn - posted on 12/27/2009

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FEBRILE SEIZURES CAN TURN INTO LONG TERM SEIZURES NOT TO SCARE ANYONE BUT BY MY EXPERIENCE MY DAUGHETER ALMOST DIED FROM HERS AND WHEN THEY PUT HER ON THE MEDS IT STOPPED IT FOR A SECOND BUT THEN SHE STARTED HAVIN SEIZURES LIKE 14 TO 20 SEIZURES PER DAY THEN I TOOK THE DOCTORS ADVICE HAD LET HER TAKE THE MEDS TO BE ON THE SAFE SIDE CAUSE I ALMOST LOST HER BUT NOW SHE'S 6 AND SHE STILL HAVE HER STARIN SPELLS, HER FALLIN OUT SPELLS, FIGHTIN SPELLS BUT LONGS AS SHE TAKE HER MEDS SHE IS FINE. SO TAKE THE DOCTORS ADVICE AND GIVE HER THE MEDS IF YOU DON'T UNDERSTAND ASK QUESTIONS IT WON'T HURT CAUSE I DID I WAS SCARED TO THE FIRST TIME BUT AS I STARTED ASKIN QUESTIONS I UNDERSTOOD BETTER. GOOD LUCK AND I WISH YOU AND YOUR DAUGHTER THE BEST. GOD BLESS KEEPIN YOU AND THE BABY IN MY PRAYERS.

Surinder - posted on 12/27/2009

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Get a second opinion. I have a 13 year old daughter who had 12 febrile seizures from age 1 to 8, she has been seizure free for 5+ years. I also have a 7 year old who had had 15 seizures from age 1 1/2 to a day before her 7th birthday this October. Doctors don't want to put her on anti-seizure meds because of side affects and the fact that she would have to take it for 2 years before comming off it and then they would see if she has anymore. She is on the meds only for 3 days in a row if she has a fever or if she has had a seizure. Both my daughters are doing fine in school and are developing both mentally and physically as expected for their age ranges. The younger one had been diagnosed with borderline ADHD and is very tall for her age, but I don't think it has anything to do with her seizures. If your 4 year old hasn't had any seizures longer than 10 minutes and you know what to do if she has one, get a second opinion don't rush to give her meds. My eldest daughter had a seizure longer than 45 minutes when she was a little over 1 but I never saw any negative effects. Ask about rectal valium/diazepam to keep with you if she has one over 10 minutes while you are trying to get a second opinion. By the way I have a 5 year old son who has never had a seizure so I don't know if it was in the genetics. Best of luck and try not to worry too much.

Harley - posted on 12/19/2009

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Her eeg went great she was a very good little girl. no results for another 2 to 3 weeks but the lady who watched her monitoring all week said that it was a very good thing we came and that it wasnt a waste of time but thats all she cld tell us. Ill keep everyone posted thanks for the help!

LAVENA - posted on 12/17/2009

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Quoting harley:

Ok new question on the febrile seizures...

Well we are here for her 4 day e.e.g and they are going to put her on a seizure medication even if they dont find any activity...should i give it to her or should i get a second opinion?!? this is all so scary!



WELL MY DAUGHTER IS NOW 6, SHE'LL BE 7 ON JAN 1ST. SHE HAS BEENON SEIZURE MEDS(LAMICTAL) NOW (ZARONTIN) SINCE THE AGE OF THREE. SHE HAS ABSCENCE SEIZURES(STARING SPELLS). IM NOT SUREOF WHAT FEBRILE SEIZURES ARE, BUT THE MEDS HAS HAD A TREMENDOUS IMPACT ON MY AND MY DAUGHTERS LIFE. SO I WOULD SAY GET AS MANY OPIONS AS U FEEL CONFIDENT WITH, BUT MEDS DO MAKE A DIFFERENCE. I WAS RELUNCTANT AT FIRST TOO SO THATS WHY I SAY GET AS MANY OPIONS AS YOU CAN BECAUSE I SURE DID.

Valissa - posted on 12/16/2009

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i was offered to put my son on the medication but i chose not to because he has febrile seizures and i didn't feel right putting him on medications that may not work. its trial and error with the meds. but it is completely based on how you feel about things and if you want to wait onthe results to see where things are going. my sons eeg came up clear and has not had any seizures in over a year. but it is not the same for everyone. you are allowed to get as many opinions as you want and all the info you want. i would base the decision on what is right for you and your family. good luck with everything and hope your daughter is well.

Helen - posted on 12/16/2009

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Hi i was in the same position as you a few weeks ago. I was dreading putting my 3 year old on seizure medication . The girls on here gave me so much help and i started my daughter on the medication (she has started on a very small dose 2.5 ml of tegretol carbamazapine) and 3 weeks down the line shes had no problems.

Good luck with your daughter i know its all so scary x

Lorie - posted on 12/15/2009

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As a person that was seizures from day one and now Iam 27, I would %100 give my child the meds and see how it goes { as a mother of two and one on the way }. I hate to say it but with seizure meds its all about trail and error.

good luck and I hope everything works out for your family.

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