Other Moms Starting Ketogenic or Atkins Diet..

Leah - posted on 06/23/2010 ( 6 moms have responded )

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My 7 yr old daughter has tonic/clonic seizures that are under control with meds, only she is vomitting them up 4-5 times a week and has behavioural side effects and anger rages. Now we are prepping to start the Ketogenic. Are there any moms out there that have recipes they have used on this diet that their kids liked? Or any advice they can share with a first timer? Either food related or how to deal with picky eaters etc.. we are nervous.

Anything is appreciated!

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Leah - posted on 08/12/2010

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Well we have been prepping and doing many tests and now are ready to start the Ketogenic Diet. We believe it is the only way to get our daughter med free and seizure free. We start in 4 days, just waiting for set of meal plans from her Dietician. She had to start Carnitor on top of her Zarontin and Valproic and in one day, we have seen her rages spike again. We pray this diet works for her so she can get off these meds!
We will post after we have been in it for a couple weeks and let u know how it is going.. If anybody has any recipes to share, would love to see them. Feel free to email me at info@leahchevallier.com

thanks!

Donna - posted on 07/31/2010

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We've been on the Ketogenic Diet 11 months today....I have a lot of recipes I'd be happy to share.....You and others on the diet or considering the diet should join the Ketogenic Yahoo Group....It is a LIFESAVER....we exchange ideas, recipes, vent, etc...There are some wonderful parents on there - great resource! Go to www.yahoo.com and click on Groups....Find the Ketogenic Group and join....The ketogenic diet gave our son freedom from seizures, it took a little tweaking, but we are seizure free and med free as of December 09.....It is truly a blessing....hard work, but nothing compared to watching your child have seizure after seizure and have side effects from meds that may or may not be helping......

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My daughter has been on the Ketogenic Diet since Oct 2003. It is very helpful. My daughter gets her diet through her g-tube. She is also taking Banzel, Keppra and Clonazepam for her seizure in addition to the diet,

Amanda - posted on 07/30/2010

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Wondering how things are going for you & your daughter. Our daughter is doing well so far, after 2.5 weeks. She's adjusted to the difference in diet & getting less tired. We're also seeing less seizures, so hoping this trend continues for her! Blessings to you & your daughter.

Heather - posted on 06/29/2010

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My daughter is only 11 months, but we are also looking into this diet. Our doctors gave us a website: www.charliefoundation.org. Make sure you use .org, not .com. There are recipes and a lot of information posted from parents who have used this diet...I would love an update after you've been on the diet...We are also nervous; sugar is one of the few pleasures our baby gets, and now we are taking it away. Good luck and God bless.

Amanda - posted on 06/25/2010

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I was about to begin the same conversation! I don't have any help for you from my experience yet, tho' I can share the resource list our doctor/dietician gave us. We are also very nervous & scared & scared to be hopeful. My daughter, 2.5yo, will begin the Classic Ketogenic Diet July 12. We had med control for 5 months two years ago and are basically out of med options now. Best wishes and blessings to you & your daughter!

Oh, our resource list:
www.charliefoundation.org
www.matthewsfriends.org
(Both have community forums & there's a yahoo community)
Keto Kid by Deborah Snyder (book by a Keto mom with recipes and tips)
The Ketogenic Diet by John Freeman (The John Hopkins guide to starting the diet)

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