Suzy - posted on 01/16/2011 ( 16 moms have responded )
Hi, I'm new to this site and I'm just wondering if I can get any feedback from mums who have or haven't put their kids on medication to control their seizures. My daughter started having complex partial seizures at age 11, usually at night and about 4 to 6 times a year. When she started her periods they became regular and happened every 28 days, about 5 days after she finished her period. In fact so regular I could predict a seizure down to the day!
I read on the internet that progesterone had been known to control some hormonal caused seizures so put her on the progesterone only pill. Amazingly, her seizures stopped for 6 months. However, in the last 2 weeks she has had 2 quite bad seizures. I am so perplexed as to why the progesterone seemed to work and now she's having the seizures again.
Now I find myself in the dreaded position of considering carbamazapine for her. The thought of her being on medication, especially seizure medication, scares the hell out of me. I'm scared that once she's on meds, that'll be it for her life, scared of bad side effects, scared of her not taking it properly (being a teenager) and going into status epileptus.... Her seizures lately seem to be triggered by late nights and as a teenager she resents me making her go to bed early and not go to friends cos i'm petrified of her having a seizure. All she wants is to be a normal teenager but she is not keen on meds as well! Any advice? Has anyone had success with meds and the eventual weaning off the meds and their child grow out of seizures. I hope someone out there can help!