Seeing things???

Sandie - posted on 11/28/2009 ( 15 moms have responded )

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My son is almost 8 years old, He has had seizures since the age of 2. With some of seizures when he comes out of them he will tell us he saw things. He will say about monsters and ghost and where he sees them and ect. Just this morning he had a seizure and when we went into his room he was half way off his bed. When he came out of the seizure he said there was Ghost and they were pulling him off the bed. Has anyone else had any experience with situatiions like this? We dont really know what to say to him, except tell him things are going to be ok and we wont let no one get him. Our house is not that old and as far as we know no one has died in it.

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Tracey - posted on 12/01/2009

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Hi Sandie,



I'm not sure what kind of seizures your son has but there are many diffierent types of seizures. And it is possible that your son may be experiencing some of the symptoms from one of the types of simple partial seizures that the doctors refer to as "sensory seizures". Even if he has been known to have another type of seizure in the past, seizures can change. It is also possible that your son has experienced this when he was younger but he is just now getting better at communicating exactly what he is feeling when he has a seizure. And every detail will help your specialist make a more accurate diagnosis. Below is a little info about sensory seizures. I hope this helps.



Good luck and take care,



Sincerely,

Tracey Alderson,

Administrator, Epilepsy Awareness 2009



Sensory seizures:

These cause changes in any one of the senses. People with sensory seizures may smell or taste things that aren't there; hear clicking, ringing, or a person's voice when there is no actual sound; or feel a sensation of "pins and needles" or numbness. Seizures may even be painful for some patients. They may feel as if they are floating or spinning in space. They may have visual hallucinations, seeing things that aren't there (a spot of light, a scene with people). They also may experience illusions—distortions of true sensations. For instance, they may believe that a parked car is moving farther away, or that a person's voice is muffled when it's actually clear.

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Alexis - posted on 04/03/2014

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My name is Alexis, I'm 17. I use to have siezures up until fifth grade, that was when I had my surgery. I've always wanted to know why I would see ghost and monsters that came up from the ground and cracks and grab me by the leg and try to pull me down with them.. And I really want to know why I would feel home sick even if I was at home, and how I can tell my parents were my parents, but I would feel like they're not when I know they are.. It's very confusing to explain..

Nicolas Thomas - posted on 02/07/2013

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I'm with Tracey on this one. I could totally see how a kid would describe the weird lights as ghosts. I didn't know what to call what I was seeing until I saw the aurora borealis up north.

Kirstin - posted on 01/14/2013

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No need tobe worried my 8 year old daughter suffers from epilepsy too only she has had this sence she was 8 months old.many medications she has been on.Epilim and leveteracium she is on now.when she was about 6 in a bit she had screaming attacks where she saw snakes and worms on her body and every were else she ended up in hospital they put this down to an anxitey or medication back then she was on lemotrogen and epilim.no more of those screaming attacks thank goodness,we as parents have tobe the first doctor as we no our children better than the rest,and this was not at all normal.I also look at what triggerd this and could not find a single thing so I put it down to one of her medications and her specialist looked into the medications and it was the lemotrogen.

Elizabeth - posted on 12/10/2009

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Hi my name is Elizabeth and my oldest child Bryana has had epilepsy for 4 years now due to a brain injury. When ever she has had grand mal or petite mal seizures she would always wake up crying and saying she saw things like dead people and monsters and weird things.She has not had any seizures in a year that were obvious until recently we started noticing she keeps saying she sees things that are not there or flashes of light and seeing the room spin while she was sitting still. We talked to her nero and he said she was having sensory seizures. I know it sounds weird but we are actually happy because at a time her brain injury was not healing for 3 years and her seizures were life threating. Now she is in 3rd grade doing regular work and her comprehension and memory is beautiful.Only problem are the sensory seizures and she's teased alot by her classmates when she starts crying for seeing things that are not there. All I can say is pray and hope that he gets better thats all that we can do for our little girl and be there for him with comfort and security. Maybe oneday they will stop. Take care.

Sandie - posted on 12/09/2009

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Thanks for everyones responses. It is a neuro. I am not sure where the focus is, I know its the right side. They have also told us that he has different types of seizures and not just one type.

[deleted account]

if his seizure focus is near the temporal lobe, it is not uncommon to have hallucinations. Medications can also cause this type of thing as well. Is your son's doctor a neuro or an epileptologist? It may be time for a second opinion if the doctor is this clueless. I am sorry this is going on! My son has had the aural and visual hallucinations. The team of doctors are not sure if it is part of his temporal lobe/frontal lobe epilepsy of more. He started taking medication that has helped the hallucinations go away. He did have just the aural hallucinations when he was about your son's age with his seizures as well. THese latest have changed so we are unsure if it is new stuff.

I hope you find answers soon!

Tracey - posted on 12/02/2009

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I would like to ask Tammy...have you or your neurologist ever experienced the type of seizures I'm talking about? I can tell you from first hand experience it is not a joy ride. And unless this boy is experiencing something other than seizures, I'm sorry but there are no angels floating around protecting a person during this experience!!! I would suggest keeping religion beliefs separate from facts that are pertinent to a person's illness or disorder. Having faith and religious beliefs are fine but you cannot camouflage the truth with it everytime there is trouble.

Tammy - posted on 12/02/2009

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MY daughter has had many many seizures in her 20 years of life,and I was told by a nero, that she has a feeling of complete joy right before the seizure,also she might see things as well, it's the brains way of protecting us.Jessica has sang said her abc's talked to God and or angels.I do believe your son is really seeing things but I just think it's his fantasy world come to life thru a seizure.I just hate they are scary to him,because Jessica always loved it when she saw stuff.But Boys do think about monsters and ghost.I wouldn't worry to much about it ,other then making him not be so scared and do talk to your doctor(nero) about it!

Tracey - posted on 12/01/2009

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Hi Sandie,



I just wanted to add that certain drugs and other medical disorders can also cause hallucinations. But if your son is only experiencing these episodes of "seeing things" during his seizures then I would still be more inclined to think he is experiencing symptoms related to the partial seizures I mentioned before.



Best of luck.



Sincerely,

Tracey Alderson,

Administrator, Epilepsy Awareness 2009

FARHANA - posted on 11/29/2009

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Hi...perhaps spk to your neuro. Could it not be hallucinations? I remember at one stage my son kept saying that there was something in his room. Of course with our culture, we do believe somewhat in these things. So I took him to someone & perhaps it was a mind over matter thing, bcos things settled for a while. But den he started his aggressive behaviour and after numerous visits to drs, we found out he has a mood disorder (bipolar). Part of Bipolar is sometimes da hallucinations, so maybe you could look into dat. Wish you luck & take care! Oh & da last religous 'priest' I saw confirmed that it is a medical pblem!

Sandie - posted on 11/29/2009

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Quoting Jess:

wow that is really interesting to hear. but must scare the hell outta ya.
have u taken him to the doctors? to do brain scans ect?


Well he has had MRI's and the eeg for the seizures thats it. All they know is he has a abnormality on the right side of his brian with his firing sequence. Everything looks normal with a MRI but with the eeg it shows the abnormality. We have talked to the doctor about it and she really dont know what to say about it. Its kinda of a thing on if you believe in Ghost then u believe him and maybe he has like a 6th sense and if you dont then its he has a wild imagination. He has told us about these Ghost and monsters since he was small. He has told he teachers about things that he sees and ect. So I am not sure what to think.

Jess - posted on 11/29/2009

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wow that is really interesting to hear. but must scare the hell outta ya.
have u taken him to the doctors? to do brain scans ect?

Jess - posted on 11/29/2009

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Quoting Jess:



Quoting sandie:

Seeing things???

My son is almost 8 years old, He has had seizures since the age of 2. With some of seizures when he comes out of them he will tell us he saw things. He will say about monsters and ghost and where he sees them and ect. Just this morning he had a seizure and when we went into his room he was half way off his bed. When he came out of the seizure he said there was Ghost and they were pulling him off the bed. Has anyone else had any experience with situatiions like this? We dont really know what to say to him, except tell him things are going to be ok and we wont let no one get him. Our house is not that old and as far as we know no one has died in it.





 





 

Jess - posted on 11/29/2009

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Quoting sandie:

Seeing things???

My son is almost 8 years old, He has had seizures since the age of 2. With some of seizures when he comes out of them he will tell us he saw things. He will say about monsters and ghost and where he sees them and ect. Just this morning he had a seizure and when we went into his room he was half way off his bed. When he came out of the seizure he said there was Ghost and they were pulling him off the bed. Has anyone else had any experience with situatiions like this? We dont really know what to say to him, except tell him things are going to be ok and we wont let no one get him. Our house is not that old and as far as we know no one has died in it.


 

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