Seizure advice wanted

Haley - posted on 04/06/2009 ( 3 moms have responded )

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My son is 7 years old and has just been diognosed with absence seizures. We have been told there is a real possiblity of him having a grand mal seizure. I was told that you just move things out of the way and phone the ambulance if it lasts more then 5 minutes. Since talking to other people about it I've been told that they can turn purple and foam at the mouth? I've also been told that you can lean over the top of them to keep them from moving around, is this right? Please all advice welcome, I would like to know what to possibly expect.

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Tonda - posted on 04/07/2009

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my 3 yr old has had absence siezures since he was 18 mo old we were given 2 diastat pens incase he had any siezures lasting over 5 minutes to give to him rectaly. Luckily we have not had to use it but you should really ask your doctor for a diastat pen just incase and keep it with you. I have noticed my son will only have a grand mal siezure if he hits his head really hard or falls on his head. His doctor said its because thier brains are wired diffrently so a bump that a normal person could handle his brain cant fix the signal when hit hard so he has a grand mal siezure until his brain figures it all out. Hes only had about 3 grand mal siezures luckily. Without meds he has 20+ absence siezures a day and with his meds just about 1 a week that I notice

Brenda - posted on 04/06/2009

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My son started having grand mal seizures on his first birthday. He is 20 years old now and lives a very normal life - his medication has controlled his seizures for the past 14 years. If your son has a grand mal seizure, yes, moves objects away from him so he does not hurt himself., and turn him over on his side, just in case he would start to vomit. This happened when my son seized. My son's seizures last 2-3 minutes. I always call an ambulance - they need oxygen afterwards right away. Do not ever lean over them - the movement will stop when he would quit seizing - trying to stop the movement could hurt him. During my sons seizures, he did turn purple / blue from lack of oxygen and he also frothed at the mouth. All normal with this type of seizure...try to remain calm. That was the hardest thing for me...watching my son go through the seizure was scary - if he had one tonight, it still would be, but we would make it through. I'll keep you and your son in my prayers.

Connee - posted on 04/06/2009

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my daughter has also been diagnosed with the same condition about 5 yrs ago. she is almost 13 now. The doctors told us the same thing that she could have a grand mal, but to this day she has not had one(knock on wood). I think you should sit down with the doctors and have them tell you some of the warning signs and ask them if there is any medicince to help. my daughter has been on an anti-seizure med since she was 8. they have had to up the dosage to 3 pills 2times a day,but she is doing great. She just recently started playing volleyball in school. all the school teachers and nurses know her condition and know what to do. even her friends and little brother know what to do if she were to have a seizure. I think some sound advice for you is to educate yourself and family with the help of your doctor to know what the best advice for you and your son is. i hope all goes well for you and your son. best of luck and god bless

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