Seizure at night

Lisa - posted on 12/06/2012

When I read up on the emfit, it did not look like insurance covers it. Our daughter does not make much sound anymore when hers start, so last time I did not hear it on the monitor but just happened to check on her and found her seizing, thanks be to God. Agreeing with you that $600 is too much; I'm thinking about video monitor?? Someone else mentioned one that she uses.

Kristen - posted on 11/27/2012

I started giving my 3 year old who has epilepsy melatonin at night per his neurologist and it has definitely helped he still has a few seizures a night but he was having like 15 a night, I wonder if insurance covers any of these monitors you guys are talking about cause I cannot afford 600 dollars but really don't want him sleeping with me the rest of his life cause I'm too scared for him to sleep in his own bed in his room on the other side of the house

Julie - posted on 04/27/2012

Hi , my daughter has nocturnal epilepsy and just been diagnosed with sleep apnoea. At the moment we have an emfit seizure alarm through homecall services(uk) but are waiting for an upgrade to one that also monitors sleep apnoea . When I find out the make etc I will post info

Cathy - posted on 05/24/2011

It is scary I feel for u!

Jenny - posted on 05/24/2011

my 3 year old son has seizures in his sleep it so scary

Lindsay - posted on 04/13/2011

Hi,

Would the emfit seizure monitor help with absent seizures too though or only tonic clonic? My daughters are always different?? What about an apnoea monitor does anyone know if this would help? My daughter has never had one in her sleep (well not hat I know of) but I'm still petrified!!!

Cathy - posted on 04/13/2011

Thank you, I will try

Sandy - posted on 04/12/2011

Cathy ... try giving her Melatonin an hour before bedtime. It's with the vitamins/minerals. I give my son 3 mg. and he usually sleeps all night long ... sound to sleep. It lulls the brain and they get into a deeper realm of sleep, hence that the seizures may not happen because of being in a deeper sleep. Try it. It helped my son tremendously.
Sandy Lora

Cathy - posted on 04/12/2011

My daughters seizures have only happened at during sleep, early in the morning. I am always afraid I will not know but she makes a noise and I always wake up. I make surebi am always in ear shot while she sleeps wether it be monitors or sleeping in the same room. It is scary but God is with us! Trust in that!

Tori - posted on 04/08/2011

like everyone has mentioned, you can have seziures in you sleep. If you are worried about suffication while sleeping, you can purchase special pillows with holes in them that allow breathing. just a tip

Sandy - posted on 03/17/2011

Cornelia ... I sure hope the Melatonin works as well as it does for my son. A deeper seizure free (or just a few) made a world of difference when it came to his abillity to learn in school. Plus I have been able to sleep again.
Good Luck,
Sandy Lora

Cornelia - posted on 03/17/2011

My eldest son (11) has between 3 - 30 seizures a night for the last 2 years now. The sleep deprivation is wrecking havoc on our family but I'm now so used to it that I'm actually grateful his seizures are at night in the safety of his bed rather than during the day (last time he fell off a tractor and ended up having 8 stitches in his face!). Some of his nightly seizures are so brief that he doesn't even wake up but others do cause him to wake up from the fearful sensation that he can't breath. But its true, it seems that most seizures happen when he's going to sleep or nearly waking up i.e. during that non-deep sleep faze. Thanks for the melatonin advise - will definately try that.

Angela - posted on 03/11/2011

I purchased our alarm from the epilepsy centre in south Australia, Australia as this is where I live. I've googled them and they can be purchased in the USA and UK. Google emfit seizure monitor and you should be able to find one near you somewhere. Cost $600 her in Australia but well worth it!

Jeanette - posted on 03/10/2011

Hi Brandi
Where did you get the alarm? I would like to look in to how to get one for my daughter.

Fiona - posted on 03/09/2011

Hi,
My 17 year old daughter has had grand mal and petite mal seizures since she was three. They are totally random. No drug, therapy or surgery has helped. (still trying with keto diet now). She has hit her head several times and it never lends to a seizure ( odd i know) and when she does seize at night we can hear her if its a grand mal. Put him in your room, like a camp out for a few days so you can better hear him. My husband built us a small tepee for her to sleep in in our room so we could listen and watch her, she loved it and had know idea we were spying on her until she was 9!

Jeanette - posted on 03/09/2011

Where did you get it? I would like one for my daughter.

Sandy - posted on 03/09/2011

Angela and others whose kids have night time seizures. My son was having them nightly a couple years ago. 'Dr. Mom' looked into what MIGHT help. Since giving Joey Melatonin (vitamin/mineral on the shelf) has helped him so much!! I give him 3 mg of Melatonin and hour before bedtime. About an hour after taking he says I am going to bed. Love those words. Melatonin just turns the brain function down ... lulls it like a lullaby. Their brains have so much going on that they don't get a deep enough sleep and that allows seizures to happen. Joey gets a deeper sleep and has NOT had night time seizures. Makes me breathe easier. It's worth a try if you can help your child or even an adult with seizures. God Bless!
Sandy Lora

Michelle - posted on 03/09/2011

@Angela... thank you for mentioning that alarm system. I had no idea it existed but I think I will be getting one!

Michelle - posted on 03/09/2011

I don't know if my daughter has had seizures at night or not. But it def freaks me out to think she could and I wouldn't know. I got a cheap nanny cam off ebay and put it in her room. So at least I can watch her while I am up. But I have no way of knowing what is going on when I sleep. I hate it!

Angela - posted on 03/04/2011

Our daughter has seizures in her sleep almost every night. we have an emfit seizure alarm and it alerts us every time she has a seizure. We could not be happier with it as it gives us peace of mind and allows us to sleep. It alarms loudly when she is having a seizure to wake us up. Good luck with your son xo

K - posted on 03/02/2011

My daughter has had many seizures at night and we were able to be there for her. If it would help you I would recommend that you put a baby monitor in his room so you could here him if he was to have one.