seizure length?

Libby - posted on 04/21/2009 ( 13 moms have responded )

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I am overwhelmed sometimes reading peoples posts when they say their children have numerous seizures a day. My son has seizures every few weeks and it's scary enough. It just makes me wonder, how long are your children's seizures? My son's seizures are usually anywhere from three minutes to 8 minutes. For the people whose children have many seizures a day, are they this long? I just can't imagine that. Do you just get immune to it? I feel like every time my son has a seizure I'm breaking down. And maybe part of it is because there are more issues that the doctors still can't figure out, but, either way, it just scares me.

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Dr - posted on 10/18/2013

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If you keep them with a good diet and a strict bed time so they sleep well they will pass it

Kate - posted on 10/17/2013

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my daughter had 150 absences a day at one point but these werent grand mal and only lasted seconds and then he would click back to normal although i hated the constance of them and their relentlessness- the days when i witnessed her have a tonic clonic broke my heart in two - I didnt get over for some time, i was terrified. my heart goes out to the parents who witness this kind of seizure on a regular basis.

Billye - posted on 09/20/2012

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My granddaughter has very lengthy seizures at times. In the last month she has had two that lasted over two hours. Other than the emts and paramedics, nobody seems to think it's a big deal. At the hospital, they stop the seizure with large amounts of sedatives, do some blood tests and send her home. When my daughter calls the neurologist to let him know, the office rarely responds. We don't even want to call the ambulance. It is very frustrating.

Jul - posted on 05/27/2009

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Hi Libby and everyone else. My son is 10 and started having seizures at 1 year old. He has a shunt (2nd one) and his seizures last anywhere to 5 to 20 minutes. He is on 2 different meds 5 times a day. It never gets easier..I can ussually talk him out of seizing if I catch it quick enough . He responds to my voice. I tell him jokes and try to get his attention anyway I can. The main thing is make sure you take care of yourself so you can take care of your kids. Once every couple years I try to take at least 2 days where I go to a motel just to get some solid sleep without a moniter in the back ground.

Mandy - posted on 05/22/2009

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My daughter's seizures are pretty spaced out also. She has been having them for just over a year, and sometimes she goes for a couple months in between. They started at night, and then progressed to morning time, growing in length and severity. I agree with all the moms that say to be pushy. Get your questions answered, and keep asking and pushing until you get what you think is best for your son. No it does not get any easier to watch a seizure or to try and console and care for them after. I pushed and pushed and went to different hospitals until we finally got a peds neuro to make a decision. Now I have a suppository to give Jaci if a seizure lasts longer than 2 minutes. The prescribing doc (an ER doc after her last one) said that damage doesn't occur in a couple minutes, but no mom should have to watch her child go through something like that. Now we also have medication, Trilleptal, that Jaci takes everyday. And it is working, hallelujah! Jaci has only had one in the last 2 months, and it was much shorter and less severe than before. She also was able to warn me that it was going to happen. I do know that Jaci recovers faster when I am able to stay calm. She gets scared when she sees that I am scared. So what I have done lately is help talk her through it, and after she falls asleep I go into my room and have my mini break down where she and my other children can't see it. It's hard to see her go through any of it, and being able to keep her calm helps me deal with things too. Good luck, and I hope things get figured out for you.

Dawn - posted on 05/21/2009

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Hi Libby. My son's seizures (grand mal/convulsive) do not stop on their own. (longest seizure was over an hour. He was in intensive care for a little over two weeks after) When he first started having them, we would have to call an ambulance (nearest hospital was about 20-25 minutes away) They would have to give him Adivan (spell??). Now we have Diastat that we can administer at home which usually stops the seizure within a minute or so. We still get very shaken up every time he has a convulsive seizure (even though it has been 6 years) I don't think you ever get quite used of anything when your baby is suffering.

Andrea - posted on 05/01/2009

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Hi there! My daughter is 1yr & 1month TODAY :-) and she began taken seizures at exactally 5months old.. She just took one on EasterSunday actually. She takes a seizure every 1-3months...but they last MUCH longer than the ones I've read about in the posts above..--- now 1st I might want to add that she has Hydrocephalus & a Shunt, & some brain damage from all the water from the Hydro. pressing up against her brain for so long while she was in the womb..ANYWAY, her LONGEST seizure was a full blown, "Grand Mal", & I woke up in the mid. of the nite2check on her &she was seizing for WHO KNOWS how long, &then continued to seize until we got to the Hosp. & they gave her Valum&Ativan. From the time I realized she was seizing, to the time they got her to the hospital, got an IV & the meds in her & it stopped, it was approx. an hour & 15minutes..but WHO KNOWS how long she was laying in her crib seizing b4 I found her that way ya know? THANK GOD that nite I woke up & went2check on her ya know? So that was her very 1st seizure, & we haven't had a seizure since that hasn't lasted less than 45minutes.. She also takes Keppra 2x daily. Thats our story, & I totally agree w/ the one poster above who said your little man is a cutie pie! Really adorable =)

Stephanie - posted on 04/30/2009

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My daughter is now 3 1/2, has been having seizures since almost 4 months of age. When the first started they seemed to be 'minor' and lasted only about 2 minutes. They gradually got longer and longer.. her longest one was 47 minutes (but those don't happen often). She has seizures usually at least once every week or two (two weeks seizure free for her is amazing). They now generally last from 2-4.5 minutes. If she has not stopped, her paediatrician gave us a prescription for Ativan which she takes at the 5minute mark of seizing, if has not stopped, takes another at the 10minute mark and the ambulance has to be called.. due to lack of oxygen. She started off on 0.5mg tables at about 6 months of age, at about 18 months the dose was up'd to 1mg tablets. She doesn't need the ativan often anymore, but did frequently for a very long time when she was younger. We were admitted into the hospital basically every weekend for about a year. I am not 'immune' to them, but have learned to 'deal with them' better, for my daughters sake. For the first year or so, everytime she would seize I would be a total disaster, bawling my eyes out and in a huge panic. We have learned that this is what god has given us, very unfortunate but this is her. We have adapted to her behaviour and needs and just worked from there. Never in my life did I suspect that anything like this could happen after giving birth to my first child. She has even grown to 'deal with them' in a sense, even though she can't talk, she knows when they are coming on and lets us know in her own way. She now knows to sit down before they start so she dosen't hurt herself, and gets very very irritable (which is her way of informing us). With no known cause and a TON of tests done on her throughout the last 3 years, we do what we can and just take extra precautions. Poor kids, I couldn't imagine going through what they do.

Brandee - posted on 04/23/2009

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In Dec./Jan. my son started having seizures for the first time in 6 months. Some of his started going over 4 minutes and I stressed out. Our neurologist just upped his meds and my son turned into a zombie who still seized. We started having 7 minute seizures and still didn't get any answers...I changed neurologist, and I won't hesitate again!! We changed some of his meds and within 4-6 weeks he was seizure free. We are still seizure free and very happy!Most importantly he has started making great gains in PT and OT because he has not been held back by seizures and over medicating. Good luck!

Melissa - posted on 04/23/2009

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Get him to a specialist seizures should never be over 5 min. at this point they should have diastat or emergency care. I am not sure about your area I had a hard time getting adequate care for my daughter and she is 3 never stop asking questions to the medical community. A child nuerologist is who you need on of the best is Dr. Harry Chugani in Detroit childrens medical hospital look him up. Don't ever get use to seizures if it goes on to long it will make them regress in many different functions. I don't know what tests he has but some are eeg, sleep 24 hr eeg, mri, log all seizure activity how long and what exactly happend to him, like maybe racing heartbeat-blank stares it depends on the type of seizure disorder he has. Hope this helps

Vanessa - posted on 04/23/2009

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Hi Libby, my daughter first got diagnosed with Epilepsy at the age of 4. She is now 6 1/2. It didn't really become a problem until just after her sixth birthday, she went through three months of having seizures on and off, and being hospitalised, which was really hard on our family, as we have a two year old son as well. The worst day we had was 22 seizures in 9 hours, the first one lasting 40 minutes and the subsequent ones lasting anywhere from 30 seconds through to two minutes. That is a day I never want to repeat again... We have diazapam that we can administer at home but usually she needs to go to hospital to have phenytoin if she has a "cluster" of seizures, as once they start, they just don't seem to stop. It was hard getting through those three months and wondering if any medication was going to work, and even harder watching your child having a seizure. If she has a lengthy seizure, or a cluster of them, she tends to lose use of the right side of her body when she comes out of it, which lasts for around 10 minutes. Almost like a stroke victim - very scary! She is now on "Tegretol" 3 times a day and seems to be doing much better at school this year, as she would have been having "absent seizures" during the school day last year which went un-noticed, and was definitely affecting her school work. I don't think you become immune to it, but it does get easier, I don't seem to panick anymore. So far, the ambulance staff, hospital staff and pediatricians have all been amazing. We still have seizures, (and a lot of lip twitching), especially if she gets over tired, or is sick, but nothing that we can't handle at home these days. My advice is "Mum's know best, just keep pushing to get answers". I hope everything works out. He really is a "cutie"...

Katy - posted on 04/22/2009

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My son who has absent seizures would have several a day. But they only last any where from 5 to 15 seconds. I don't think you ever get immune to them. For me it tore me up everytime I saw my son have one. But I didn't want him to see me getting upset because he would feel bad. He had enough on his plate. He was 5 when we realized that these were actual seizures he was having. We thought he was just day dreaming. So he has been struggling through school because the seizures inturupt his learning. He was on medication, but it wasn't completely stoping them. His dr decided to do a VEEG and that is when we found out with the depakote he had 30 seizures that day. That was just one day. My husband and I couldn't believe when they told us that. So they put him on another medication and now he has been seizure free for 6 weeks. It has made such a difference in him and now I don't feel so stressed and worried for him like I was. I can't imagine having his seizures last as long as your sons. I really feel for you. I honestly think for me I just learned to be strong and act like they didn't bother me. But it will always bother you. It's your child and they're having these seizures and there is nothing you can do about it. And I think that's what makes it so hard. I hope that they finally find out what is going on with your son. Sorry for such a long note. I wish you and your son the best!

Sandra - posted on 04/22/2009

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hi libby my son last about 2mins any think over 5 and i give him diaspam not sure i spelt that right. that stops it 9 times out of 10. he would have around 2 a day. there r not as bad as they use to be. im guessing thats ur little boy in the photo what a cutie

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