seizure monitors devices?

Kayla - posted on 12/13/2011 ( 3 moms have responded )

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My son has grand mal seizures. I cant sleep sometimes because i am so afraid that he will go into a seizure at night. Which has happened several times before. I am afraid that i dont hear him and he throws up while he has seizing, which has happened almost every time he has seizures.
His last seizure which was last night when me and my hunney were making dinner. It was a grand mal. He didnt throw up but he was drooling like crazy.

I am looking for a seizure monitor that would be able to monitor his seizures. He is 2 1/2 and weighs 28 lbs.

Anyone have any that have worked with toddlers?

I am expecting my second baby. I am due in July 2012. We are hoping this baby doesnt have a seizure disorder, but if it does, we will deal with it like we do with my son.

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Kayla - posted on 12/15/2011

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it sounds like they could be seizures. You could try going to a sleep specialist. My son was having seizures at night too. So we are going to do a sleep study on him for that and also because he doesnt sleep very well. Especially if they are seizures and they are lasting over 5 mins, he would need an emergency seizure med to stop it. When you go in for an EEG, it isnt going to tell you much. My son has seizures and he has had two EEGs and they both have come back normal. So the EEG machine will only tell something if he is having an episode or a seizure while they are testing. If you really think it is seizures i would have him so see a neurologist. Doctors arent really trained that well if they are seizures. A neurologist can tell you more about what he is having. Explain what his symptoms are and they can better help you. A neurologist might even schedule him to do a brain scan to see if there is anything wrong with his brain. My son had one but they didnt find anything. But it is better to be safe and to know for sure these episodes are not happening because there could be something wrong.
The thing that concerns me about his episodes is because his left arm is going limp while his right is strong and bent. Usually when my son has a seizure his whole body is stiff. When only half of his body is reacting to these episodes could mean that something is happening in his brain. But i am not a doctor. Keep at it. If you arent getting the answers with this doctor, dont be afraid to search for a new one. I had to do that several times because the doctor that i had wasnt doing what i wanted her to do. So we searched and went to several doctor appointments until we found one that would help us.
How is he after these episodes? Is he still sleeping? Does he wake up and cry? Is he lethargic after it happens. These are also good questions and answers to tell your doctor. I am sorry that this is happening with your son. I hope anything i said will help you to find the answers you are looking for. Feel free to ask anymore questions about this. I am all ears and have no problem helping you out.

Happy Holidays! :-)

Dani - posted on 12/15/2011

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My son had what I call his "Episode" when he was first 8 months old. After a few hours of being asleep...He would start gasping really fast with short spurts of a short cry. His left arm was also completely limp, while his right arm was strong and bent up. He has now recently done it again a couple weeks ago. I told his pediatrician about it today and she ordered a EEG to be done. Do these sound like seizures?? she thought they were night terrors..but after reading over the pamphlet she gave me..it's not that at all. He remains asleep..eyes closed and impossible to wake up and normally last 3-10 min. It is really starting to scare me especially after this 2nd "episode"

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