Amanda - posted on 08/23/2010 ( 27 moms have responded )
how do you know they;ve had one? my son screams, hes terrified, shakey, and is nearly impossible to calm down. i caught one or two of these when he was little and in his crib, the one i remember most clearly i woke up in the middle of it and it went on for another 2 minuets. im terrified that i don;t know how long they;re lasting. the doctors also seem to think since i don;t SEE them he;s not having them. i know how he is when he;s just had a scare... he is absolutly a wreck after having a seizure. it is the most upset he ever is. he gets over IVs easier then seizures.
one night he didn;t get his meds (he spat them out.) he was up every hour with them. this is terrifying. he;s on 17mg clobazam at 2. he went through a month where he kept having them every night. they upped the dose three times.he went from 12. to 15 and then to 17.
i just dont know what to do. the doctors stopped looking for the problem after one eeg and one mri. the eeg showed seizure tendencies and the mri was clean.. but why is he having them? and what are they? my mom has epilepsy when she was younger and the doctor said it was partly hereditary.. does that mean its epilepsy?
I;m just so worried about him...