Seizures Early In the Morning???

Amber - posted on 08/22/2010 ( 47 moms have responded )

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My son has recently started having seizures and we have an appointment on Thursday with the Pediatric Neurologist... I am going CRAZY just wondering what is wrong with him. His sugar levels are great his blood tests are coming back great and he never has a temperature when a seizure occurs... They are always early in the morning (between 630am and 800am) Before he wakes up... This is not even the normal time that he wakes up, he sleeps in until no earlier than 10am, but usually 11am... His seizures seem to be like a tonic-clonic INTENSE seizure. Of course it naturally has me worried to death. After a seizure he always PASSES OUT COLD, and then he will have a jerk in his arms and wake up but still be unconcious (if that makes sense). I am just so worried about him, does anyone else have a child who has the same thing as my son????

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Dianne - posted on 12/21/2012

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My son had his first seizure at age 18 while on vacation with friends and their family. It was early in the morning and he woke his buddies up. (they can sleep thru anything) . The Doctor at the hospital said it was heat exhaustion and dehydration. He had one the next day, the day they were leaving to come home. We immeditally got him to the dr. and to see a neurologist. A week later at home in the morning he had another. Just yesterday morning after 2 1/2 years he had another always in the morning. He is on Keppra xr 1000 in the morning and 1000 at night. He has now been increased to 1250 morning and evening. He comes out of them with a slight headache and not feeling himself and of course the bitting on the tongue. All of his EEG, cat scans, MRI come out good. Yesterday his blood was draen to check levels. Some one said maybe his hormones have changed?? Thankness they are in the morning while he is in bed. Does anyone know why seizures are in the morning? I am a wreck again. I was almost myself again and here we go again.

Barbara - posted on 08/29/2010

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I would love to introduce you to my friend Vicki. Her child was having 100-150 seizures a month. She will tell you what she has done to reduce the seizures by 80%! And now he is down on his meds also. He was having all kinds of seizure from mild to grand mals. Let me know when would be a good time for you and I will connect you!
Barb

Karina - posted on 05/09/2012

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I wonder what causes these seizures. Every neurologist you ask tells you the same thing, there's no explanation. I feel that there is something that triggers it.

Jeri Lynn - posted on 07/31/2012

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Hi all, I am new to the posting situation, but not new to seizures. My son is 17 years old (will be 18 in November) he has had partial seizures since he was 7 years old. Last year on April 15, we witnessed, what we now know to be his second tonic-clonic seizure. His first one was on March 8, 2011, we know this now, because the only time his tongue is bitten up the way it was that morning when he woke up for school is when he has a seizure. All of his seizures happen within an hour of him being awake, except for the very first one, we don't know what time that one happened. My son had his last seizure on Thursday July 26, 2012. We had a neuro appointment on Monday and he was diagnosed with Juvenile Myoclonic Epilepsy a.k.a. Janz Syndrome or JME. The neurologist is wanting to take him off of Dilantin because it is not working as it is intended too. So for this week, my son will be taking 1,500mg of Keppra in the morning and at night, 400mg of Dilantin on even days and 500mg of Dilantin on odd days and he was also placed on 1,000mg of Depakote yesterday. For the rest of this week he is supposed to continue his Dilantin to allow the Depakote time to get into his system, then on Sunday he is supposed to take his final dose of Dilantin. Then Monday, he will continue the Keppra and Depakote only. I am terrified to completely stop the Dilantin just like that because I have read that stopping an anti-convulsant just like that can cause terrible seizures. But I guess that's why the Neurologist is the doctor and not me, he was also rated one of the top doctors by his peers in 2009! One more thing.... As I said my son is 17, going on 35, typical teenager, attitude included! But my husband and I noticed the last 3 seizures that he has had, starting as early as the day before, our son is as nice as nice can be. If I could bottle that nice kid, I could market and sell him as the perfect teenager. As soon as he wakes up from the long sleep after having a seizure, he is right back to the normal teenage attitude. Have any of you experienced things like this? His neurologist said it is a "prodrome" or like an early symptom of the seizure. I wish you all the best and will keep praying for all people with any form of epilepsy.

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Lena - posted 1 day ago

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my daughter is 39 yr old has tried all kinds of medicines had every kind of test and still she has seizures only in the morning.. neurologists cant tell her why or what causes them but a friend made sure her son who has seizures ate no msg or gluten and gave him herbal passion flower drops from health store in his tea every morning rite away when he woke up and he has gone 1 yr without a seizure
i want my daughter to try

Gail - posted on 04/23/2014

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My daughter had her first seizure last month and was put on Keppra. I have done non-stop research, and I have found that food allergies can be a trigger for seizures. MSG and gluten are big culprits. There are tons of stories of people who eliminated these toxins from their diet and have been seizure free. Google "Seizure Free Without MSG" to read about one young woman's journey. More and more of our young people are having seizures....why? I have even heard medical personnel say this is normal. This is not normal! Could it be all the processed food we are putting into our bodies?
Let me just say that I am not some crazy health nut. But the stories are out there. Keep looking for answers....our kids are depending on it.

Stephanie Ann - posted on 04/28/2013

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My 3yr old son woke up at 6:30 a.m and had his first seziure. He was so white, stop breathing, eyes were wide open but he wasn't there. He started gurgling. And finally my husband got him ti start breathing again. He was out cold sleeping for alittle over an hour. Once we got to the hospital he started acting like himself. He had no fever. Now he's gonna see a neurologist in a few days to check out his brain. I'm so scared he's gonna have another one. I hate bed time now because of it. What would make him start having seizures? Why is it so commen early in the morning? And what's the odds of this happening again. Please help!

Safiya - posted on 02/11/2013

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Hello everyone,

I have a 15yr old daughter named Jada and she was diagnosed with epilepsy at the age of 4. I was told that Jada would never be able to read or write due to the side of the brain that the seizures were coming from. I was devastated by that report and I didn’t know what to do but Jada is a fighter and defeat was not an option for her. Jada is in the 10th grade now and has been on the honor roll for the past 3 years.
Going back, Jada was placed on several different meds throughout her life to help control the seizures and all to no avail!!! Jada still has seizure activities and they mainly occur between 4-6am in the mornings. The doctors are now saying that they cannot detect where the seizures are coming from, I’ve even been told by one Neurologist that the seizures are coming from all over her brain. Jada has had numerous video EEG’s and other test to find out the cause and again…...nothing has helped. Just recently, her neurologist suggested that we try a procedure called IVIG, I (mom) had a hard time agreeing to do this because of the side effects and risk that could happen during this procedure but I eventually agreed out of desperation hoping that the seizures would stop. Needless to say they did not!!
The final quest that I’m endeavoring to take in hopes of finding a cure for my daughter is taking her to Minnesota’s Mayo clinic. I hope and pray that the doctors there will be able to get to the bottom of the seizure and help my daughter live a normal life.
If anyone has any information about this Mayo Clinic please feel free to share.
Thanks

Ganimete - posted on 01/20/2013

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Would i t be possible to get in touch with your friend? Our son has a seizure and the frequency keeps increasing since april this year.

thanks,
H&G

Ganimete - posted on 01/20/2013

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Our son started exactly the same in April 2012 and it never had one until October and now has more frequent. I understad that with your child has been couple of years and I hope he is fdoing better but if yu have time it would be great if you could let us know how is developing. We did an MRI and EEG and blood tests are coming back all okay. thanks and in hoe to hear from you and hopefully good news for your son too.

Terribly worried parents,

Jenny - posted on 11/27/2012

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HI all,



I have a 19 year old daughter who has suffered from epilepsy since she was 12. Her first seizure came out of the blue and that was that. She has been on almost every medicine you can think of. We have tried Dilantin, Depakote, Keppra, Topirmate, Lamictal, Clobazam, and Ativan. Now she currently takes 2500 mg of Keppra morning and night, 75 mg of topirmate morning and 50 mg of topirmate at night, 50 mg of lamictal morning and night, vitamin b6, and vitamin d. She is also on Prozac for depression due to the epilepsy. We have just recently started using medical marijuana as well to stop the break through seizures too. It's a nightmare. All of it. She does seem to have seizures in the a.m. when she is sleeping and then I can't wake her up to take her day meds and we end up having more seizures and confusion throughout the day until those meds get in her. Any suggestions out there? Epilepsy is a horrible disease and no one seems to have any answers as to why it happens. We are so tired of trying to figure out the right combination of meds. I just want my child to be ok. I wish all of you the best in your situations and pray for you. Jen

Belinda - posted on 11/25/2012

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My son is 18 had a few seizures about 2 weeks apart at age 16. All happened around 5:30 to 6:30am. He was put on Keppra after the 2nd one. He hated the medication at first but he takes it for me. It scares me. He moved about 6 months ago to start college. Still on medication for now. His MRI's are normal. Had a EEG. His doctor said he has BRE and thinks he may grow out of it. It has forever effected my life . I rarely sleep all night. I'm wide awake in bed as of 5:30am awaiting a phone call. I've gotten better but I never stop thinking about him. It's comforting to read I'm not alone.

Narelle - posted on 10/25/2012

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My son is 17 (18 in November). Jeri Lynn Martinez - your description sounds almost identical. he seems ti have his in the morning after waking. When I go to hold him, so that he doesn't hurt himself, he gets angry. He usually seems like he isn't there if it makes sense. Wh have had all the tests...nothing showed up. He has also lost about 25 - 30 kilos (we are metric here in Australia).

Connie - posted on 10/25/2012

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I have a 13year old son who had his first seizure at school in 4th grade than none till 7th grade (he had 2 that year) this year since the start of 8th grade in August he has had about 10 all an hour or so before waking up and he is completely exhausted with headache, shakiness and upset stomach afterwards. He can sleep for 5 to 6 hours after and then he is fine. He was originally diagnosed with iron deficiency anemia and put on iron therapy. His iron levels are fine now and he has had 2 eegs and an mri that all came back normal.He will be having an ambulatory eeg (24 hour at home) next week. Hopefully we get some answers.He has always been a straight a student but has missed 9 days of school in 3 months due to seizures and we are no closer to answers. I am so glad I stumbled onto this site because I now know he is not alone.

Lakesha - posted on 09/09/2012

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Oh my GOD ! My 3 yr old just did the exact same thing last week.He also had early morning seizures even though he usually gets up at 10 ish.very hard tonic clonic then he passed out for 3 hrs and then a 2nd one.He was in the hospital for 4 daygetting a lot of test to see why. 2 days after being released he had another early morning cluster.now he has started on tegretol increasing doses every couple of days.

Jeri - posted on 08/16/2012

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Hi Natalie,

My son is on day 11 of no dilantin and day 25 without a seizure. When he stopped the dialantin, I made my son and my husband sleep in the living room with me (my husband and I on the couch, my son on his mattress in the floor.) It was the best decision ever because I was able to finally feel relaxed enough to sleep because I had him right there next to me, where I was sure to hear anything if it were to happen! He's had lab work and a doctor appointment and his depakote levels are GREAT! He is more energetic and talkative (still trying to decide if that is a good thing or not ;-) just kidding of course!) he even finally talked to the doctor without my husband or myself having to be the "in between guy" for the conversation. The best thing he has said to me since April of 2011: "hey ummmm, I was wondering if I could ask the doctor about not taking my B-6 anymore. Since I don't take the dilantin, I don't feel sad anymore, so I don't think I need it, what do you think?" Inside I was doing the happy mom dance, and since my son is 17 (18 in November) I simply said "If that's what you think would be best for you, then ask him about it." He hasn't said he was happy since before April of 2011! Now that he is off dilantin, he scares my husband, today in the car my husband says "ummmm hey" *note the similarity with of the conversation starter my husband and son both use!* my husband continues.... "have you noticed that Lukas is being a lot nicer to me, and is actually starting conversations with me, and isn't talking back as much anymore?" Inside I'm cracking up because it always amazes me how my son is able to scare my husband!..... Right now, life is great!!! I will keep you and your daughter in my prayers, and greatly appreciate being able to vent and be excited!

xoxo!!

Natalie - posted on 08/16/2012

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Hi Jeri,
Oh that would have been horrible for you and your family.
I know when we first started dealing with them it was very confronting for all of us. My son and step daughters especially.
So you have had medication changes as well. My daughter was on Tegratol until she started having more frequent ones. NOw she is on Epilum. She hasn't had one since April touch wood.
Hope your son improves. It is hard for kids to deal with they feel so self concious.
Anytime you need to talk just post or email.
xox

Jeri - posted on 08/05/2012

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Hi Natalie, Your daughters seizures and my sons seizures sound exactly alike. All of his have happened within an hour of being awake. The first one we witnessed, our son was in the shower and we heard loud banging like he was opening and closing the shower door repeatedly but it was his head hitting the shower door. He too was foaming at the mouth and bleeding from biting his tongue. It's a scarey thing, I don't deal well with them and am very thankful that my husband has been home for every one. He is on Keppra, and Depakote, tonight will be his last dose of dilantin, and I am petrified about waking up Tuesday morning, because he will be without Dilantin for 24 hours plus at that point. Best of luke to your daughter and you. This is such a terrible age for them to start having tonic-clonic seizures, I know my son has a hard time dealing with it sometimes!

Natalie - posted on 08/05/2012

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Hi,
My daughter was diagnosed with epilepsy when she was 13. She is now 16. My daughter only ever has seizures in the morning within 1 hour of waking up. I found my daughter in our back bathroom having a tonic clonic seizure and foaming at the mouth. I was panicked thinking she had taken drugs forgetting she was with us all night watching movies. We were admitted to hospital for a week as they thought she would have more but didn't. She was diognosed with epilepsy after having a catscan and bloods taken. She had an EEG about 4 months into being diagnosed which showed her having it, Then we seen a pediatric neurologist who also sent her for an EEG which showed the same.The awful thing is she was getting ready for school one day and she felt weird and her brother thought she was faking being sick and left for school. I came home to my daughter with a black eye. I was horrified thinking she had been in a fight. But she said all she remembered was waking up on the lounge with a sore head. After the seizure we seen we realised that was her first one. We just thought she had a bug and fainted.
She had seizures every month for four months then they stopped. Her last seizure was 31st of October 2010 and then exactly a year to the day the seizures started again. She has a a medication change and was having seizures in her sleep as well. That was happening for about 4 months and they have settled again.
I understand exactly what you mean with his seizures.
I hope you get some answers soon.
Has your son started any medications yet?

Jeri - posted on 08/03/2012

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Hi Karina,

We are in the Las Vegas area. It is great to have someone to share information and advice with. I will be looking into your suggestions above and together with my son (because he will be 18 in November) and his neurologist, we will get the best care for him. My son sees a chiropractor already and takes Vitamin B-6 to help balance his moods. Wish you the best!

Jeri

Karina - posted on 08/01/2012

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Also, I'm not sure if you hear of chiropractic, but they are great. My son's sees one evey week and that is helping also. You should look into that for your son.

Karina - posted on 08/01/2012

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Hi Jeri,
My son's seizures don't occur that often and almost all of them occurred while sleeping. But of course I worry that they can really happen any time. As soon as we see him not feeling well or acting not as usual we are cautious. So right now they are not being controlled, he sees his neuro every 3 months and continue with his nutrition. As told by his neurologist, the stomach is connected to the brain , and what we need to do is make his immune system strong. When he got his blood work done, it showed that he was low on certain things and he had weak cells , also he tested positive for a gene mutation. This was devastating but there is hope. The herbal stuff include fish oil,black cumin see oil organis, vitamin b, vitamin d, but this should only be based on his blood work results, b/c everyone is different. To tell you that he went from having seizures almost every month to now 2 /1/2 months without one after the oils is an accomplishment. Try to find a alternative neurologist, they will guide you through what is best for your son. What area do you live in? I'm so glad to hear from you.

Jeri - posted on 08/01/2012

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Hi Karina,

I have never had an extensive blood test like that done, none of the many doctors he has been to have ever suggested that, but when he was diagnosed on Monday with JME, of course our first natural reaction was to search and search some more to figure out what this JME is. We have learned that JME is hereditary, and often linked to chromosomes 8, 11 and 15. Beings that there is no history of seizures of any kind on either my husbands side or my side of the gene pool, the first words out of my mouth were "we need to do blood work to find out what is going on." I greatly appreciate the information you gave. As a mom who is constantly worrying about her son, it's nice to have other moms to talk with about this and express my fears! I do have one question for you though. If you aren't giving your son medication, how are his seizures being controlled? I have met someone, older than my son but younger than I who told me about herbal, all natural products that he took to control his seizures. He was supposed to bring the information by our home, but he never did. Our sons neurologist has told us that if he were to go off his medications, he would go into status epilepticus, or a constant seizure which of course is not what I want to happen. I wish the best for your son and you.

Karina - posted on 08/01/2012

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Hi Jeri,

I never in a million years thought I'd be dealing with seizures. But here I am. I hate it but we all mom want the best for our kids. My son suffers from them too and he's not even 2. He's not on meds, b/c as many stories I've read sometimes they do not work and make him into another person. I found an integrative neurologist and she had a complete blood work done on him , from allergies to genes. Have you ever done any testing like that to your son? The results can guide into finding why he is having them and possibly what he is lacking in regards to nutrition that can help him become a stronger person.

Best Regards.

B - posted on 05/05/2012

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I'm wondering...many of these children have started having seizures at the onset of puberty, wonder if there is a correlation to that? Hormonal changes in the body?

Dana - posted on 05/04/2012

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Hi Amber, my son Draven is 10 and his seizures ONLY happen during sleep which as you know is SCARY stuff. He also passes out after. They used to only come once every 8 months then they were coming closer like 3 months after the last. Just this week he had one at 6 a.m. then one at 10 a.m. in the same morning. That has NEVER happened. They say that he could just grow out of this since his MRI's and sugar tests all come out clean. They could just go away as quickly as they came. We purchased a seizure monitor that acts like a smoke alarm to wake you if he has while while everyone is sleeping. This has given us all piece of mind but very expensive. If you want I could give you more info. Healthy vibes to you. ~ Dana~

Leticia - posted on 05/02/2012

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I do and Im wondering where u are at now on your journey... i have a 9yo had a grand mal june2010 and has had nocturnals ever since!!!1

Bridgett - posted on 05/02/2012

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My son (2yrs old) was diagnosed with BRE after having a grand mal seizure during his Sunday nap. We have not started meds b/c I am requesting a second neurologist appoint. He has had 2 seizures with only the first being more than 30 minutes in length. This is such a scary time in all of our lives but I am hoping he outgrows them quickly. As far as meds, we are considering a one month high dose valium regimen. Anyone else done this?

Daisy - posted on 05/01/2012

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my daughter just started having early AM seizure, she is 13 and they started about 4 months ago. i am really worry and going crazy thinking about what could be wrong with her, like your son, all the blood test, eeg, ekg are all normal. she also have the jerk in the arm right before she gets the seizure then becomes unconcious and dont remember anything after. going to see a neurologist soon but not soon enough

Angela - posted on 04/11/2012

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Please let me know what you have done to reduce seizures and meds. abcandmoore@aol.com

Daisy - posted on 04/10/2012

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Hello everyone my daughter is 13yrs and just started with seizures about 4 months ago, the first one was at 6:15 am right after i woke her up for school but back then she was an a new med for bipolar disorder, dr took her off meds to see if they happend again and today 6:20 am 4 months later it happened again i am really worry for her....... Thanks to everyone for the post cuz i was not sure what to make off all this and the info help me.

Sandra - posted on 09/13/2011

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My son was diagnosed with tonic clonic seizures as well. He is 15 now and had his first seizure at age 10 in the early morning hours. 5:30 to 6:30 am. He is on Depakote now and as long as he takes his meds he is fine. He just had a seizure the other day (once again at 5:30 in the morning). Come to find out he didn't take his meds for about 4 days. It is controllable as long as the medication is taken as perscribed. I thank God that they occure while he is sleeping or coming out of sleep and not out at school or some place and could get hurt. Good Luck and the best thing to tell your son is to take his medication daily.

Jennifer - posted on 09/09/2010

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Hi Amber, most of my daughter's convulsions take place in the morning between sleeping and waking. Her meds have improved her condition but before that we could predict what the day held for us by whether she made it out of bed in the morning or not. Her specialist says it's really common as the brain is rebooting into awake mode, lots of signals to-ing and fro-ing so easy for people with low seizure thresholds to experience problems then. I hope this is some help to you.

Angela - posted on 09/08/2010

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My son is 15 and has been diagnosed for several years with nocturnal seizures. He has them when he is waking up, with convulsions, turns blue in the face and lips and it lasts for a few minutes. He wakes with a headache and is tired and his body aches. He just had on this past week and it never gets easier. He also has asthma, and low oxygen during sleep could be causing some of the seizures. Your son's seizures are almost similar to mine. Good luck at the neurologist and hope they can get seizures under control. My son's medicine is always being increased as he is gaining weight and seizures are still occuring. The hardest thing is the side effects, last month the meds were having bad side effects of suicide so the doctor decreased it. Now we are going back to increase it, hoping that those thoughts don't return. It is a roller coaster and I feel for anyone who has to deal with seizures.

Kim - posted on 08/30/2010

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Hi Amber-
My son seizures are in the early am hours as well. They are tonic clonic and he seems to be concious in the postictal period but can hardly speak and is not aware of his surroundings. It is generally 20-30 minutes before he is coherent enough to answer questions. We bought a monitor for under his mattress that sounds an alarm in our room when there has been movement in his bed for over 20 seconds. We also have a video monitor in his room and a bed rail. These things have at least let us get some rest. The doctor insisted on Keppra, but it made his personality change for the worse, he became aggressive and short tempered. We requested a switch to Dilantin, which he had been on for several years when he was younger and he has now been seizure free for a yr and a half. The doctor didnt want to use this med at first, but we had success before and had tried other meds when he was younger. Dilantin is not the first drug of choice any more since many of the newer drugs seem to work for some people, but it works for him. Everyone is different, so keep trying and learn as much as you can. Also, it helps to have a neurologist who will listen to you and respect your input. These types of seizures are always so hard to watch. I wish you luck at the appointment.

B - posted on 08/30/2010

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It may not be neurological, they may be heart related.

My daughter has the same type of seizures, and they have put a heart monitor on her, and found her heart stops for a few seconds. They say it's related more to her blood pressure than her brain. And want to install a pace maker.

Jessie - posted on 08/30/2010

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my son has morning seizures. your sons behavior sounds pretty typical; in that he is very tired afterwards. seizures are very calorie expensive. he is probably very hungry a few hours later? Now that my son is on meds his seizures are shorter and he is not as tired. Hi are as he is waking or falling asleep. I hope the dr appt goes well.

Shelly - posted on 08/28/2010

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Find a good neurologist and they will test him to see what is going on he will probably have blood tests and other tests to find out exactly what kinds of seizure activity he has. The doctor(s) will decide what kinds of meds he should be on. If it is epilepsy you will need to learn as much about it as possible so you can be his advocate and help him through this. My daughter has had epilepsy since birth and is 29 now so I have been down this road and it is sometimes bumpy but always worth it because it is for your child. You want your child to have as normal and happy life as possible. There are many different kinds of seizures and different combinations of meds and treatments work differently for each individual so you will have to help the Doctors to know what is going on with your son so they can help make his life as normal as possible. I pray that your road is smooth and gets smoother as you go along. But be prepared it is not always easy but it is always worth it. Your child is the most important part of this journey. Help him and yourself and let your family help you get through this. I hope everything goes well. You can get through it and things will get better eventually.

Chelle - posted on 08/27/2010

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What Christine above me has said is what we do with my son also. Our doctor prescribed my son 2.5ml of trileptal a day. He takes 1ml in the morning and 1.5 at night so that it can last longer through his sleep cycle and hopefully ward off any seizures by the next morning. So far, it has worked. :)

Christine - posted on 08/27/2010

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my 16 year old daughter who was first diagnosed at 3 has had 6 seizures in her lifetime and have all been first thing in the morning. Her neurologist had her taking 100 mg topomax in the am and pm and since he switched her to 200 mgs in the pm she has had no seizures. If they are giving your child meds in the am maybe try switching them to pm?

Renee - posted on 08/25/2010

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Mine were wake to sleep.I always had one n the first stages of sleep.that's was true when they were grand mal as young chld and temporal lobe as teen

Candi - posted on 08/25/2010

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Hi - it is true that many seizures do occur when the brain goes from the sleep-to-wake cycle. My daughter has grand mals and it is the early morning hours (5:30 - 6:30 am) when she suffers them. I count my blessings daily that she has them far and few in between (October '06, July '08, then a "cluster" last year on 8/30/09 and again on 9/7/09), but I'm also scared to death of another one now that it's summertime, because she's off routine and that is a major trigger for her. She has been on Neurontin for the past 11 months and a recent EEG showed that she still has spikes in her brainwaves, so we have to continue to pray that another seizure is not imminent. Regarding the "jerking" after the grand mal...this sounds like the postical period following a tonic-clonic/grand mal seizure. My daughter was diagnosed with Benign Rolandic Epilepsy, which is known for the "early morning" seizures. The blessing of this diagnosis is that there is a good chance of outgrowing the condition in puberty. My advice is to try to do some online research and speak to a few different pedi neuros until you find one that you feel good about.

Bobbi - posted on 08/24/2010

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My son has had seizures for 10 years. He started with grand mal and has had just about every type there is to have. His neuro says he has sleep to wake seizures- the brain has a problem handling the time when it has to go from sleep (peaceful) to wake (usually not so peaceful). Not sure exactly how many different types of meds he has been on during the 10 years but he is currently taking 5 diff. anti-seizure meds and had a VNS stimulator implanted in his chest in 2005. Neuro isn't too sure which one/combos are working but he does not have any visible seizures unless we mess around too much with his sleep schedule. He definitely needs at least 12 hours of sleep but we can't let him stay up too late or sleep in too long. I teach PK and have a student in my class that also has sleep to wake seizures - we have to be careful in how we wake him up. The "big" seizures (some call grand mal) usually do wipe them out - their body tenses up so strongly that they get tired and need to rest. Just keep talking with your neuro and do a lot of searching on the 'net. However, seizures are like child birth, no 2 kids are the same.

Chelle - posted on 08/23/2010

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Amber,
I am new to all this and my son was just diagnosed this past week, but my son seems to be having the same issues. He has tonic-clonic seizures and the ones we have witnessed are in the morning. The most recent one he had I called the nurse line and she told me that it is very common that falliing asleep and waking up actually trigger seizures. We believe that is what happens with my son, and it sounds like that may apply to yours. How old is your son? Mine is 2. His first one he had he was 16 months.

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