Seizures inked to ear infections???????

Lindsay - posted on 01/28/2009 ( 24 moms have responded )

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Has anyone heard or experienced your child having a seizure when they have an ear infection?

It seems to happening with my child? Wondering if grommets will help? My theory is probably crazy...just wondering...

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Kristi - posted on 01/28/2013

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I just saw this posting i now it says 2009 but i see other responses from this year.. My son is 23 months old now and has had 3 complex febrile seizures since july. They are all from not catching an ear infection thus him getting a fever. He has had 8-10 duel ear infections since he turned 8 months old.. Ive brought him to ents and different doctors and no body took me seriously until the seizures.. Just this week he was admitted into the hospital after a recent seizure/ear infections for a eeg and a mri. Thank god all was clear and his brain is normal. Also my sons speech had completly stopped in july following 2 seizures i finally received an answer.. Its due to the ear infections he cant hear and when he can its like hes underwater.. the only answer we have is tubes. Also i was told that as soon as i feel my son getting warmer to dose him with tynelol or motrin due to my son has seizures at low grade temps his last was at 93.5.. I was also given a seizure gel that when he has a seizure it will stop it.. Im sorry this is kind of a rant but im hoping i can help someone thats looking for infomation on this.. AS i have looked up everything! thanks I hope everyone gets the answers they are looking for!

Stephanie - posted on 01/28/2009

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Yes, definately. My daughter had many many ear infections -- she was proned to them and always seemed to have quite a few seizures until the anti-biotics kicked into effect. Temperature elevates and they just can't tollerate the pain/awkward feeling. (or that's what I have been told), doesn't help that the throat is usually effected also, since they are "combined".. She got tubes in her ears  and her tonsils out at the end of this just past October and we have yet to have an ear infection which has minimized her seizures.

Frances - posted on 01/12/2013

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I believe that ear infections are linked to seizures...a viral infection can cause seizures. My son with autism 3 y.o. had his first seizure Sep 2012 and total of four ever since-last one in dec 2012...every time he had an ear infection and we wouldnt know he had an ear infection until in the er with the seizure(he has a high pain threshold) We are going to see an ENT(ear nose throat) doctor to get him evaluated for ear tubes next week is his appt.

We are trying everything we can to avoid medication as has alot of side effects. After the last one he had in Dec 2012 we started him on natural fish oil suppliment which can help the brain development(may also have something to do with seizures) and also vitamins to build up his immune system..wish you the best

Tifani - posted on 05/16/2011

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My son had seizures with ear infections also. I was told that they were febrile seizures due to his temp. But he has had the flu with a 105 temp and yes I said 105 and no seizure. They only came with ear infection fevers. And he also had a seizure at 99.5 temp which is not a high temp but still had ear infection. In Nov 2008 he had tonsils and adnoids removed and ear tubes and done great since til he got real sick (not ear infection) in Feb 2011 was not hardly breathing and found out his adnoids had grew back. So had them removed again in April 2011 and still battling allergies and asthma now. Good luck and I hope the doctors can help you real soon with this problem. My son has permanant hearing loss due to having an ear infection for over 6 months straight and the doctor just kept wanting to try new antibiotics. So when I changed doctors He got the help he needed.

Sandra - posted on 02/08/2009

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Yes ear infections can cause seizures. My son has a very high tollerance to pain and the only time I knew he has an ear infection was when his seizure were way out of control and we brought him to the hospital. he would have a real bad ear infection. Now I have one of those light to look into the ear. If his ears start getting red I take him to the doctor and get antibiotic before the seizures start.

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Amanda - posted on 04/28/2014

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I see this message is so old, I'm curious to learn how this worked out…..My daughter has had seizures since last year, she was 14 when they started and she was very sick and exhausted at the time and stressed out also when it all began....they diagnosed her with epilepsy and put her on anti seizure medicine, they were controlled for about 9 months then in this last Feb/March she started having auras, coincidentally also had a couple bad ear infections, then in Arch had a seizure and this weekend she had a seizure and coincidentally had fluid in her ear and a building ear drum….I made an ear appointment for her ENT tomorrow…..I do think there is a connection!!!!

Amanda - posted on 04/28/2014

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My daughter, 14, has had seizures since lat February, when it started she was very sick and exhausted and stressed out, they then diagnosed her with epilepsy and she has been on anti seizure meds... they were under control for about 9 months until this Feb. when she had two big ear infections back to back! She began having auras, a sign the anti=seizure meds were losing its effectiveness, then a seizure in MArch and then one this weekend, we were out of town so I took her to an urgent care clinic and she has the beginning of an ear infection!!!!! I am now convinced there is an infection and we will be going to her ear doc tomorrow!!! I just went from feeling helpless in this awful mess to feeling like I may be able to help her more.
I am thinking ear infections and epilepsy/seizures are connected!!! Please keep searching and share your findings!!!!!!

User - posted on 06/05/2013

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My 18 month old granddaughter had 3 seizures this past weekend, no fever but she had a bad ear infection

Summar - posted on 05/24/2013

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My son just turned 4 and found out when he was 2 that he had cronic glue ear in both ears and could only hear 20% in both ears, and so was responding by lip reading. He got grommets put in and after a week he actually begain to speak and walk straight and have way less tantrums as he was able to communicate and for once hear. Basically the geommets drained all the glue ear and were a god send and went from strenth to strength.
Last week I noticed his left grommet falling out and a few days later he had a seizure at pre school. It was one where he made a loud screem and then fell and went stiff etc. AandE checked him and he was fine, but to booked him in with a specialist to do more tests. Since the seizure I have been to docs 3 times as I new he wasnt right but they again checked his ears nose throte etc and couldnt find infection.
But last night he had really bad temp and ear pain and glue ear coming out his ear.and also difficulties breathing the docs said he has burst his ear drum and got an infection.
I do belive ear infections and seizures are linked. The problem is finding the infection. Middle ear infections can go unnoticed for a long time and cant be seen under a docs microscope as its too far in etc. And my child dosnt cimolain of bad ears as his pain threshold has gone up
.i know now when he gets a cold then high temp he will more then likly get an ear infection as he is prone to them.and now I have to push to ger gromments put back in and push to get his adanoids out as im guessing thats what made his breathing difficult.
But if anyone has the same problem believe me you have to be that pushy annoying mum ringing up the docs everyday and the ent specialist as otherwise it will take months to get seen. Hope this helps

Nancy Viola - posted on 10/13/2012

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Hi no you are not crazy. I am 49 and just got out of the hospital for a series of seizures and I think that I have had an ear infection. So, keep searching. You might be able to heal your daughter!

Nancy

Samantha - posted on 10/08/2012

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Wow !! This really helps because my son had'nt ever had a seizure until he had an ear infection, His temp spiked and he had a seizure.. But now the Dr wants him on Keppra...Im so confused because he hasnt had them alot. He has maybe had 3 since June. . I just dont know what to do . But im happy im not alone in this. All of these responses have helped me out.

Nancy Viola - posted on 10/02/2012

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Also, Lindsey, I am noticing a correlation between using Q-Tips and having seizures within 18 hours. If I do not use Q-Tips....no seizures. Makes you wonder. Nancy

Nancy Viola - posted on 10/02/2012

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Hi ,

I have been having seizures and am noticing it related to ear infections.





Nancy

Jo Ann - posted on 07/09/2012

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I have a 11 year old daughter adopted from China. She was reported to have small seizures when she was little but we never saw them. She came to us at age 5. For 5 years we never saw anything and she was very healthy with a very high tolerance for pain. In June of last year we put a healthy little girl to bed and found her the next morning lying in vomit and she was barely moving. She had lost her eye sight and we went to Childrens. She was in an unconscious state for 3 of the 7 days we were there. Final thoughts by the doctors were possible stroke or viral enphcyilist.. (spell wrong I am sure). We are now a little over a year out and we have been hospitalized 4 times for seizures that are not controlled by daily meds or even by her emergency medication. Each time now when she has a siezure, she has had an ear infection. When is it time for tubes???? Could I be missing something here???? Please help with any thoughts.

Romy - posted on 07/09/2011

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Know this post is older... Interested to see how it all turned out!
My son had chronic ear infections (just about weekly) from 4months old until he had tubes put in at just under 9 months old. He was diagnosed last week with epilepsy due to two eye rolling back incidents although they suspect he could have been misdiagnosed with an "immature nervous system" which were possibly mild seizures from a very young age. Definitely interested to see if other children have the same correlation and if they grew out of it!!

Mercedes - posted on 05/16/2011

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We actually have a theory (just between myself and my husband) that ear infections could have been what triggered my little guys epilepsy. He had TONS of ear infections from 3 months old until 2 years old. One even spread to his chest and ended him up in the hospital for three days. Finally we moved and the new ped here looked at his history and sent him immediately for tubes. The ear infections stopped but unfortunately the seizures remained. It was another year though before anyone realized that was what was going on and his epilepsy was diagnosed at age 3. By that time it had already done it's worst and left him with developmental delays. Now we're trying to control the seizures and hopefully get him caught up developmentally.

Karla - posted on 05/05/2011

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i was on epilim myself 900mg 3 times per day plus keppra 500mg 2wice aday and i still have fits expecialy wen i get ill

Karla - posted on 05/05/2011

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iv have seizures myself and yes ear infections can cause seizures any infection it can bring on more seizures iv had it since i was 12 im now nearly 22 still havin them! i had 3 seizures tuesday and that was down to antibiotics so be carefull if ur child has to have some in the future! all the best for ur child!.....

Clare - posted on 02/11/2009

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My daughter had her worst seizures while she was sick. She used to have ear infections every 6-8 weeks. Last December she had her tonsils and adnoids removed and tubes put in her ears. She is still on valproic acid for the seizures but has been seizure free since last January. I don't know for sure if they are related - she could be outgrowing them like the doctor said she might; or the medicine may be keeping them at bay.

Carolyn - posted on 01/30/2009

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My Sons trigger for seizures at the start seemed to be ear nfections with the increase temp ( seizures started at 9 months). He had grommets put in and was put on Eplim 6 months after his first seizure. Ear infections stop but he still had seizures even thou he was on Eplim whilst he had an infection. Gromments fall out after about 12 months depending how young your child is. His seizures went from 7min tonic clonic to drop seizures. Which was great. But he has been off Eplim now for 12months (he is 3.5years) and had his first tonic clonic seizure again and guess what it was triggered by an ear infection. So i may have to look at a 2nd round of gromments.

So to answer your question if ear infections are a known trigger I highly recommend gromments and at least you can stop the ear infections and cross finger may stop seizure activity

Eileen - posted on 01/29/2009

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I agree my daughter has an increase in seizure activity when she had ear infections or any type of sickness for that matter. Tubes stopped the ear infections.

Lindsay - posted on 01/28/2009

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Wow, thanks Stephanie for the info...hopefully I'm getting somewhere now. How old is your daughter?

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