Rob. - posted on 07/29/2009 ( 30 moms have responded )
My son has suffered seizures during sleep all his life, he is 13, he has never had a seizure when he has been awake, I am just wondering how common this is and is it assosiated with other impairements. Doctors say he not able to be classified as autistic even though they admit he has autistic characteristics , school system ascertained him highest level intellectually impaired. Cant get him to complete IQ or hearing tests. i have suspected some sensory processing disorder symptoms. We cant get much government assistance for him as he doesnt have a diagnosis. We have had a long road to travel during his life. We have tried many different types of medication all of which i feel have side effects that cause just as much damage if not more than the seizures. As he has got older the seizures have slowed a little. Tests show he still has seizure activity even though he hasnt had a proper seizure for almost 2 years. when he was a baby doctors thought he suffered febrile convusions but now say spike waves during slow sleep such as falling asleep or waking from sleep. Does anyone else have this with their kids. our Peadiatrician says in his whole 30 year doctor career he has never seen another child like our boy and he has no explanation of how or why he is the way he is he told us years ago that it is just one of those freak of nature things.....