Sharing Resources

Julie - posted on 05/04/2010 ( 2 moms have responded )

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I notice a lot of questions that are being asked are answered at the resources I have bookmarked and I am sharing with you now. Hopefully you have found some of these on your own already. I hope you will continue to do your research and still talk and support each other.

http://www.aesnet.org American Epilepsy Society
http:// www.ilae.org International League Against Epilepsy
http://www.epilepsyfoundation.org Epilepsy Foundation
this site has another site - http://epilepsyfoundation.ning.com
This contains ecommunities, at least 20 forums, and 137 groups where you can discuss certain subtypes of populations within the epilepsy community, talk about research, vent, etc. Please check it out if you haven't already.
http://www.epilepsy.com
http://www.coping-with-epilepsy.com
http://www.cureepilepsy.com
http://epgp.org Epilepsy Phenome-Genome Project
http://www.epilepsia.com
http://www.ibe-epilepsy.org/ International Bureau for Epilepsy
http://sudepaware.org
http://www.epilepsysociety.org.uk National Society for Epilepsy
http://www.cdc.gov/epilepsy/index.htm
http://www.cdc.gov/epilepsy/resources.ht...

These are other websites that relate to epilepsy:
http://www.whitehouse.gov
this site also has other links ex. Council on Women and Girls
http://www.whitehouse.gov/administration...
http://www.ssa.gov Social Security Administration
http://healthit.hhs.gov Health Information Technology
http://www.ada.gov American with Disabilities Act
http://www.hhs.gov U.S. Dept. of Health and Human Services
this site also has specialized sites ex. www.womenshealth.gov/illness-disability
http://www.ed.gov U.S. Dept. of Education
http://www.fda.gov U.S. Food and Drug Administration
http://www.nih.gov National Institutes of Health
http://www.nagc.org National Association for Gifted Children
http://www.cec.sped.org Council for Exceptional Children
http://www.nfgcc.org National Foundation for Gifted and Creative Children
http://www.collegeboard.com PSAT, SAT, AP , college info
http://news.sciencemag.org/sciencenow/ne...
Feb 21 2010, Feb 19 2010, Nov 12 2009, Oct 29 2009, Oct 21 2009, Oct 16 2009*, Sept 24 2009, Sept 10 2009, Aug 28 2009*, Feb 23 2009, Jan 21 2009, Jan 14 2009, Oct 30 2008, June 9 2008* all have an impact on understanding epilepsy.

Take care.

Julie

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2 Comments

View replies by

Bobbi - posted on 05/08/2010

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Thanks for posting these. Some people might want to contact their local Metro Health dept. and in San Antonio we have ARC which assigns a case worker and puts us in touch with different agencies that might help.

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