SIDE EFFECTS OF KEPRA

Karen - posted on 05/15/2009 ( 87 moms have responded )

7

7

0

I have a 14 yr old son who was recently diagnosed with Epilepsy. He started out on Trileptal and has since been switched to Kepra. His dr says there should be no side effects besides moodiness. Does anyone else have a child taking Kepra and if so have you noticed any side effects?

MOST HELPFUL POSTS

Heather - posted on 05/15/2009

699

21

254

my son has the moodiness, but his neurologist said to give him Vitamin B6 to help with the mood swings. Worked like a charm!

Sandy - posted on 03/15/2013

267

866

16

Hi Melissa,
I suggest you give your son 3 - 6 mg. of Melatonin an hour before bedtime. It slows down the brain and helps them get into a deeper realm of sleep. My son had seizures before, during and upon waking but when I put him on the Melatonin .... he was going to sleep peacefully, not seizing during the night and waking up without having seizures. Trileptal has been my sons primary drug for 13 years. Also I recommend giving him 1 capsule of Lecithin 1200 mg., at least once a day. It is over the counter supplement. Trial and error is how I have helped my 14 year old son, since he was 9 months old. Good luck.
Sandy Lora

Melissa - posted on 03/15/2013

3

0

0

Hi Karen
I to have a 14 yr old boy taking keppra, he has tried 5 other types of medications and keppra seems to be controling his day seizures, but not controling his night seizures, he also is still very confused, and i have noticed that when he takes his keppra (400mg twice a day) on a empty tummy he becomes very aggresive and aggitated.

User - posted on 05/13/2011

1

0

0

Keppra is a rough drug. It caused me to be emotional & actually kinda crazy. I lasted on it a month & am a mom & new everyone was suffering from the moodiness it caused.

Christina - posted on 10/05/2009

9

26

2

My 3 1/2 year old has been on Keppra since he was 10 months old (along with many other treatments). Our main side effect was major sleeplessness and mild moodiness--Vitamin B6 help tremedously! When he was on too much (8ml/day at age 1) he had some issues with obsessive type behavior but it was likely that he was on too high a dose for his weight. Good luck!

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

87 Comments

View replies by

Paola - posted on 02/10/2014

1

0

0

My son is 7mounths and his first siezger was at 3mounths and his doctor just started him on kepprA the only thing that changed was that once i give him his medicen he gets drossy and sleepy but other then that he does his bby stuff..

Angela - posted on 11/18/2013

1

0

0

Yes slurred speech & no speech!! No eye contact & no fear of danger & not sensitive to pain!!

Rebecca - posted on 06/16/2013

8

0

0

yes my son on keppra he moody,realy angry,nasty,evil a horrible word but o.m.g i dnt knw if it hormones or keppra

Sandy - posted on 10/05/2009

267

866

16

Joey was on Keppra with Trileptal when he was 2 years old .. then Keppra was taken away. Joey has never been seizure free so I've had the chore of adding and taking away meds for over 10 years now. I should have my doctor bag now!! I tried adding Keppra to his Trileptal again about a year ago and the moodiness and aggressive behavior was horrilbe. Keppra went bye bye again. I tried Banzel which had it's own aggressive and moodiness side affects. These drugs may help stop the seizures some but ... they also add other problems. All I can say is to be careful and make sure the moodiness doesn't get into depression or aggressiveness. It can happen!! Puberty also plays a huge part in how the drugs interact with their bodies. Joey started going through puberty this summer at the age of 10 1/2. OMG! It's been crazy around here.

One day at a time is all I can say. If you don't like the Keppra, there are other drugs but beware of Banzel and Zonagran especially. Joey had horrible behavior and aggression with them. Violent behavior!!! Why did you take him off Trileptal? I have found Trileptal to be one of the best drugs with the least amount of bad side affects. I did increase his dose to 1200 mg. twice a day and he is still having one or so seizures a day. Joey is the exception to lots of rules. He has never been controlled by seizure drugs or 6 brain surgeries.

Best of luck and keep thinking positive!
Sandy

Natalie - posted on 10/04/2009

9

21

1

I have 8 month old twins that were on kepra for 3 months they were always sleepy, in a daze, and always moody they were a whole different child they are now on phenobarbital and thinkn its a good medication

Marie - posted on 10/01/2009

1

13

0

My so is going to be 3 in FEB. and has been taking keppra for almost 4 months and we are loving the medication... feel free to write me back but i also have another friend who has a thier son on it and loves it better than any of the other meds that they have given her son.

Antionette - posted on 09/28/2009

2

3

0

HI yes i have a yr old that was diagnosed with epilepsy and she 3 now from what i know she been on it since she was a year and only side affects is yes the behavior problem she can get ah little moody but its nothing i can't handle so yeah it really hard for me to see my daughter with this. she been like this since she was 6 mths and been in and out tha hospital..

Jesteen - posted on 09/28/2009

7

22

1

My duaghter who is 4 has been on kepra for a while and she has had no side effects from it. She takes it 2 times a day.

Sarah - posted on 09/28/2009

4

15

0

My son is four he we tried keppra a couple of months ago and it made him extremly hyper. I couldn't hardly get him to sleep at night. It was horrible.

Janice - posted on 09/21/2009

3

2

0

Hi Karen. My daughter is now 19 years old and has suffered seizures since she was 16 months old. Keppra is the ONLY drug that she has not been able to take because of the side effects. She was on Keppra for 11 months. During that time she developed severe mood swings, violent tendancies, and suicidal episodes. I kept telling her epileptologist that I thought it was the med, but Keppra was a relatively new drug for seizures at that time and such side effects just had not been documented. I switched doctors for her and her new doctor weaned her off the Keppra (it was an absolutely horrible experience - just like addiction withdrawl) and once she was again stabilized, the erratic behavior went away and our daughter was back to her same self. The prescribing epileptologist now agrees with me and has seen similar symptons in other patients. Our story is probably a worst case scenario example, but I wanted to share it with you. Some people never experience trouble with Keppra, but our daughter started experiencing "moodiness" and progressed horribly as her Keppra was brought up to maintenance levels. That has been about 6 years ago, so they may have changed the drug. I wish you the best of luck. Every person is different. Jenna was on Trileptal for years. Her seizures were almost uncontrollable. She has a vagal nerve stimulator implant and takes Depakote ER and Lamictal. She is almost seizure free now. :-)

McKell - posted on 09/19/2009

15

14

1

Beth- I am so happy to hear that your son is doing so well on Keppra! It is always nice to hear success stories! Finding the right med can be a never ending struggle and so I am so happy you've found it! :)

Candice - posted on 09/19/2009

2

39

0

Hi Karen my son is 14 mos and he is on Keppra but he's not having any side effects. The doctor told us that it does have side effects but my son isn't having side effects from taking it. His dosage is 2ml twice a day and that's working pretty good for us so far. If you have any questions feel free to contact me. Good luck and keep your head up sister! : )

McKell - posted on 09/16/2009

15

14

1

My daughter is 11 and we tried Keppra briefly, I was so excited to start it because it seems to really help a lot of kids, unfortunately it was a disaster for us. Within 1 week she began having severe mood swings by the 2nd week she was in a complete psychotic state and had to be hospitalized. From that point she started Zonisamide which we have now added Dylantin and Ethosuximide to, she is doing okay on these three, she is still having seizures but not like before.

Beth - posted on 09/15/2009

13

0

1

hey, my name is Beth , my son is 16 and has been taking Keppra for 2 years. He takes 1125mg. 3 times per day and is very moody, but is now seizure free. I think with anything in life things have the good and the bad, for him , we choose to live with the side effects and enjoy the life he now lives. He plays football on a varsity level, Is a swimmer who has had 2 years @ the state level, plays baseball, golf and races motorcycles. He drives with no restrictions and these are things I never thought we would see him accomplish. You know your child better than anyone. Follow your instinct and do what you feel is best for your child.

We didn't know what was wrong with him for so long. He has absent or petimal seizures. He finally was diagnosed in the later part of his 6th grade year. We've made a lot of progress and went through lots of meds. Keppra has been a changing experience for us . I was thankful to hear about B6 going to get it in the morning.LOL

good luck to all of you ! My prayer now for my son is that he will grow out of his before they turn into a worse type.

Raeshel - posted on 09/14/2009

1

22

0

Hello! I was diagnosed with partial epileptic seizures when I was 11 I am now 28 and still suffer from it I have been on Tegretol which put my body through full liver failure. I was then switched to Felbatol which actually worked but my doctor at the time found out that it could cause leukemia in some patients so I was taken off it my next drug was dilatin I was on that for 9 years the side effects from that was the over growing of my gums and the simple fact that it was an older drug and if I wanted to have kids some day they didn't recommend this drug. Lamictal was my next drug which was going great to get me off Dilatin but I was tapered off too quickly and suffered a really bad seizure since Lamictal didn't work and I was thinking about getting pregnant one day since I was now in my 20's my neurologist suggested the combo of Topamax and Keppra which slowly started to show its side effects on my 5'10 already slender frame. I dropped from 150 lbs to 129 lbs in 2 months my wedding dress wasn't even able to fully stay up and it did a few days prior. I did not feel the urge to eat with this combo I was lucky to snack I had no mood swings but did often feel tired. I ended up getting pregnant on this drug and my daughter who is now three has had no side effects from the drugs. I ended up losing the baby fat within a month which was 40 lbs, so I was 170 and got to 130 which was scary skinny to gain weight back we tried lyrica. I gained weight in three months I also lost energy, fell asleep at work and behind the wheel { not good when your driving with your child in the car} also had really bad spasms in different parts of my body with body lock ups to join it so I quickly got off it and back on topamax and keppra. Currently am in the process off getting off both topamax and keppra but during my three month tapering on my three week of completely being off both meds I had a really bad seizure I believe it had to do with not taking enough time tapering me off keppra since I was taking 2000 mg x2 and they took only three weeks to taper me down. So now am back on the keppra 2000 mg x2 I have my appetite back and of all the meds this is the one for me and just like everyone else said it depends on the person and their bodies reaction to the drugs and also how much of the drug the system is getting of it. Always read up on the medication and if you don't feel comfortable with it ask if they can switch you to something else its yours child well being and you only want the best for them or in my case the best for myself.

Sarah - posted on 09/13/2009

8

22

0



Quoting Sarah:

My daughter is now 4 and is on keppra she has been on it for 2 years, I really didnt notice any side effect except sleepiness....but my issue with it is it JUST STOPPED working....I just recently had to take her back to the hospital and get a new eeg and MRI they kept her on the Keppra because she has to be wined off of it, but she is now on Depekine and is like a totally diffrent child for the better!! She is not going to stay on Depekine becaues it could potentially cause liver failure but her nero said said in a few months she will be wined off of that and put on another medication



 



Reading other peoples replys I just thought my daughter was just being HER, because she was 2 young to tell me what she was feeling but what I was seeing was her being VERY light sensitive, Hyper, clumbsy i'm talkin, walking into walls  or if she was on a path to get something and a table or chair was in her way she would run right into it, and when she would have her seizures sometimes it it would look like to me almost like she was in verdigo almost like she was DIZZY. I'm so glad we are weening her off of it soon! 





 

Sarah - posted on 09/13/2009

8

22

0

My daughter is now 4 and is on keppra she has been on it for 2 years, I really didnt notice any side effect except sleepiness....but my issue with it is it JUST STOPPED working....I just recently had to take her back to the hospital and get a new eeg and MRI they kept her on the Keppra because she has to be wined off of it, but she is now on Depekine and is like a totally diffrent child for the better!! She is not going to stay on Depekine becaues it could potentially cause liver failure but her nero said said in a few months she will be wined off of that and put on another medication

Karen - posted on 09/10/2009

7

7

0

Thanks to everyone for all of your well wishes, information, feedback and prayers. I hope all of your loved ones are doing well and i keep them in my thoughts and prayers all the time. I know I don't have to tell any of you how difficult something like this is to deal with but it definitely helps to know that we can lean on each other and discuss openly things that our dr's might not tell us or listen to us about. We have to be our own child advocates. No one knows our children better than we do and no one will ever care for them the way or as much as we do! Thanks Again Everybody and wish you all of you the best.

Karen - posted on 09/10/2009

7

7

0

Quoting Sara:

yes my son matt has complained of aching all over and that he has been sick to his stomach. anyone who wants to talk feel free to email me at sarapicken@yahoo.com


 



Hi Sara,



How old is your son, Matt? My son did used to complain about his stomach being upset alot and it was extrememly hard to wake him up and get him moving the way he should be for school in the mornings.  Thank God, he has had only 2 seizures in his life beginning at 12 and then again 13.  He turned 14 in May.  His last EEG came back fairly normal and MRI showed nothing although his previous one and shown on a spot on the tempral lobe.  According to his dr she said that might have been a shadow because his seizures show frontal lobe.  When school let out this summer I weened him off of Kepra myself and has been seizure free without any meds.  I am not recommending this to anyone, especially since his dr doesn't know yet.  He goes for his 6month checkup later this month and she was planning to take him off if tests showed well anyway.  My son since being off is back to himself and I am so relieved.  I felt like I was raising someone else's child.  He is normally very laid back and although wasn't extrememly aggresiveness while on it, he did get mad at a video game and punched the window breaking it. Thankfully he didn't get hurt but it was completely out of character for him.  He did have headaches and dizzy spells while on it also.  I'm hoping and praying that he will remain seizure free and I wish that for your son and all the other mothers on here as well.  You can email me at kaycluv7@msn.com anytime

[deleted account]

I think it depends on the child and their tolerance. My daughter moved from Tegretol to Kepra and other than a sensitivity to sunlight (she burns a lot faster than a "normal" child) and shorter sleep cycles (she sleeps for 4 hours at night and then two 2 hour naps during the day) we haven't had any issues.

Minie - posted on 09/09/2009

3

8

0

Publicar una respuesta!yo tengo un nino de 10 años y fabuloso ese medicemento tiene ya 2 años tomandolo y muy bien...lo recomiendo vivo en Monterrey,

Susan - posted on 09/06/2009

2

13

0

My fifteen yo daughter has been on it for two years, no side effects at all that we have noticed.

Sara - posted on 09/05/2009

15

32

0

yes my son matt has complained of aching all over and that he has been sick to his stomach. anyone who wants to talk feel free to email me at sarapicken@yahoo.com

Ebony - posted on 09/05/2009

2

9

0

Hi Karen my name is Ebony i was diagnosed with Epilepsy when i was 14 but they think i have had it all my life, I'm know 27, I have also been on Kepra it is the worst of them all you are all ways in a bad mood and most of the time you don't know you are doing it, you would cry at the drop of the hat just watching tv and i would start to cry. Everyone at the Epilepsy group that i go to says the same thing you just don't feel like yourself. I hope your son is doing ok one thing we do need is more information at. if you need to talk please feel fee to e-mail me at ebonystarkie@rocketmail.com.

Ebony

Lisa - posted on 09/04/2009

3

24

0

I have a 16 yr old daughter who has just had her first seizure in July of 2009,and then another one in August 2009, they have now diagnosed her with epilepsy. In July they started her on 750 mg of keppra 2x a day, and then raised it to 1000 mg in August. Her levels were still a little low, so they have now raised it again to 1250 mg once a day and 1000 mg once a day. At what dosage do you start seeing the moodiness as I haven't seen anything real out of the ordinary yet. She appears to be very weak, and says she aches all over, but since the meds are still new, we are waiting to see if she has a virus or something and if the achy feelings will pass. Has anyone had complaints of their children hurting all over? Hopefully Keppra will work for all of us, including your son, and we will get through the moodiness if necessary.

Sara - posted on 09/04/2009

15

32

0

yes my son Matthew takes Keppra along with topamax trilleptal and diastat. and yes i have seen other side affects otherthan moodieness. matt is 14 too and has had seizures since he was a baby. he has always been the sweetest kid and now he is moody, aggressive and becomes violent. and this has all started since he started taking the keppra.

Susan - posted on 08/31/2009

2

21

0

my daughter started having seizures in her 20s, she is now 30 older then most on here, she is now on keppra, having been on every seizure med out there this one seems to be working the best..her siezures came on when she started using drugs..i have noticed when she stops using the seizures stop...she has grand mall seizures
regardless of the age..it is still the most scarcest thing to me...she has not had one in six months...pray for her please

Susan - posted on 08/31/2009

2

21

0

Quoting Karen:

SIDE EFFECTS OF KEPRA

I have a 14 yr old son who was recently diagnosed with Epilepsy. He started out on Trileptal and has since been switched to Kepra. His dr says there should be no side effects besides moodiness. Does anyone else have a child taking Kepra and if so have you noticed any side effects?


 

Samantha - posted on 08/28/2009

5

10

1

my daughter has been taking keppra 4 12mths she also takes epilim and lamictail

when she 1st started the keppra we did see different seiziures start but settled down v. quickly,she has diffrent types of seizures so we arn't sure weather or not it was the med

she has now been completely seziure free 4 8 mths (yay) and we will be taking her dose down in december!! keppra is either a miricle drug or it's not just like all meds with us the pros outwayed the cons and thew moodiness went away eventually too

good luck!!

Danielle - posted on 08/26/2009

62

30

4

I'm not 100% sure it's from the Keppra my daughter (almost 2 yrs. old) is taking or her other meds but she HATES to be moved. It's like her whole body just aches when someone picks her up.

Teresa - posted on 08/25/2009

4

22

0

I am new to epilepsy as my son was just diagnosed in April of this year. He is 16 years old. He was started on Keppra and I was warned about the mood changes as a side effect. As he was already moody and angry all the time, I was very concerned about that. The wonderful thing is that it has changed him into a more mellow person. Alot easier to get along with. Don't know why, but at this point, I don't really care. This has all been a challenge to me.

Michele - posted on 08/24/2009

4

11

1

my daughter was on keppra for a year, but they recently changed her med to depakote. Since they have taken her off the Keppra, I have noticed a big change in her behavior and attitude. I finally have my happy little girl back. I did not expect the changes that I have seen. But I do think it affects each child different.

Cassie - posted on 08/23/2009

4

36

0

My daughter (almost 3 yrs. old) is on Kepra. It was been AWESOME for her! She's on a really low dose and it's keeping her seizures in complete check! There have been no side effects that we've seen. She was on a different med (don't remember the name of it) first and it was AWEFUL...my dr. switched her to Kepra and my little girl is back! I am a huge fan of Kepra and I can't wait until chloe is old enough to take the pill instead of the liquid.



Good luck!

Gretchen - posted on 08/21/2009

6

22

0

My son has had seizures since he was 15 months and they started using Keppra last October and I am finally going to be weening him off of it. He also takes topamax and phenobarb. He recently started taking B6 and he seems to do very well with it. It seems to give him some extra energy which helps a lot when it comes to therapy time. My sons seizures also changed after a few months but they said that they might do that as time passes. Look into different kinds of meds if you are uncomfortable with the Keppra there are so many out there.

Laura - posted on 08/18/2009

4

8

0

My daughter was just put on Kepra(2yrsold) and it is hard to tell if moodswings are from med or her age. But she has lost her appitite and gets aggitated easily. she was diagnosed with epilepsy at 13months. we were on Topamax and Phenobarb. hoping Kepra will work.

Nanci - posted on 08/17/2009

76

22

3

Yes my son is on keppra and he is moody. Maybe that is causing his temper and behavier. Hmmm, He is also on toppamax. Just make sure he is eating a good diet and more fat.

Melissa - posted on 08/16/2009

9

38

0

Hello, my son has been taking Kepra for about 9 years now and I can say it does not seem to have any side effects with him. He is also taking Phenabarbitol, but that one does make him extrememly sleepy. Hope this helps.

[deleted account]

My 4 yr. old was initially on Keppra and I did notice he was very aggitated and overly aggressive. He's since been taken off it; it did not work for him. He's also been on Trileptal, Depakene, and now on Lamictal & Dilantin. He's so much "happier" now.

Marlene - posted on 08/14/2009

1

0

0

My daughter has been taking Kepra for almost two years and I have noticed no side effects.

[deleted account]

My son was on keppra a few months ago. He is four. He was a handful while on the keppra...moody, hyper, angry, etc. Since taking him off the med and switching to Zonegram he is back to his old self.

Heather - posted on 08/10/2009

2

5

0

My daughter has only been taking it for a month, but i've noticed increased moodiness and aggresiveness in just this short time.

Michelle - posted on 07/06/2009

1

8

0

My son has been taking both Trileptal and Keppra together for a few years now. He has no side effects from either of the drugs. His seizures are also kept at bay with these medications. He will be 20 years old next month.

Anna - posted on 07/06/2009

3

15

0

When they put my daughter on kepra, her entire attitude changed and she became a very angry child...I demanded they take her off of it.

Janessa - posted on 07/04/2009

22

20

1

Hi my daughter is on a small dosage of keppra since march09 and i have noticed that she is alot more aggressive and seems very frusterated.It has been hard for me to determine if it was the keppra or just her development,she just turned 8 but has severe developmental delays and is nonverbal so gets easily frustrated because its hard for her to express things.However after reading these post i feel like it just may have something to do with it. She has been on a prescription vitamin called Metanx prescribed by her neuro for over a month,but i still haven't seen an effect on the moodiness,it has a blend of b6 b12 folic acid and some others...She started having seizures at 2months and keppra has been the only drug to seem effective in controlling them after many drugs,she has a form of epilepsy called Dravet's Syndrome.I hope your find the right treatment for your son!!

Andrea - posted on 07/04/2009

31

37

0

My daughter is only 13 months & was put on Keppra around 7months & I haven't noticed any changes (although she is a bit younger than yours KarenDavis)

Kristy - posted on 07/03/2009

34

22

5

YES!! My daughter Kassidy is 33 months old and has been taking 500 mg Keppra for 22 months and she has ZERO side effects form this. This is quite a large dose for a toddler. She stopped taking B6 last summer. hope this helps!

Sallyanne - posted on 07/03/2009

31

13

6

hi my son is on keppra, and having lots ov issues, hes been excluded from school 3 times in the past year, and today hes been excluded from dinners for a week due to his anger, i asked his dr if his epilepsy or the medication could be playing a part in his behaviour and he didnt even think about it he just said NO, my son is 9 and was diagnosed with epilepsy when he was 7 he started on epilim, but was having alot of pains in his tummy so was switched to keppra, i actually think hes had epilepsy since he was about 3 but just had absent sezures, he used to look into the tv screen with his nose on the screen and was very unresponsive, i just thought he liked the colours, but his first sezure was due to the tv and every one since has been to do with the tv, thinking about it hes had behavioral problems for a long time, but recently his anger has got worse, all in all he is a lovely little boy and i hate to think he is getting into trouble if he cant help it

[deleted account]

My 4yr old son was put on Keppra right after he had his first grand mall, he was having major issues with moodiness, aggressiveness, trouble sleeping & hyperness. Lets just call him the energizer bunny x's 4, we would have to hold him down to get him to calm down. Boy that was so hard, especially watching him, he would get this wild crazy look on his face, until he calmed down. We have finally weaned him off the Keppra and he has started to go back to normal, no massive mood swings other than normal 4yr old stuff, however he is still having problems being very hyper. Does anyone know how long it takes for the Keppra to get out of the system?

Robin - posted on 06/29/2009

6

20

2

Would just like to say that every kid reacts differently is an understatement (lol)! My daughter was doing really well on the keppra when she first started but it brought out some weird issues with her. She is 13 so she's going through alot anyway. It definitely made her more aggressive, and very moody! It was like it intensified all of her emotions. She had trouble falling asleep, so then she was very hard to wake up in the mornings. She became very obsessive/compulsive about things like her room, she was not that way before. It did stop the grand mal seizures but the effectiveness on the petite mal wore off after a couple of months so she takes a smaller dose of keppra and she takes depakote. By changing the dose it took away alot of the weird little issues that were happening, the B6 does not seem to make a difference in the moodiness but it's not as bad now. All we can do is talk to each other and learn as much as we can for our children, I hope that the medication works for your son. God bless!

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms