Patricia - posted on 06/24/2009 ( 14 moms have responded )
Hi everyone...we found this out the hard way and I thought I'd pass it on. My son was born with multiple developmental delays (speech, walking, coordination, etc.) and epilepsy. We never had anyone suggest that we file for Social Security Disability...not Easter Seals, not any of his doctors, not his therapists, not his social workers, NO ONE. We never thought to file for disability because he was a child and we were supporting him, of course...we weren't even sure if his disabilities would affect him for life. When he was 23 and losing his health insurance through us and we realized he would never hold down a job, we filed for SSI and were turned down (multiple times)...we were told that if he was born with a disability, we should have applied then and he would have received it FOR LIFE. Because we didn't, his disabilities are not considered "severe" enough and we can't "prove" that he just doesn't want to work. It's been a nightmare. If your children have disabilities...file for SSI now, or at least BEFORE they are 21 and it's too late.