Trileptal and Behavior Issues

Shayna - posted on 12/20/2011 ( 3 moms have responded )

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I have a 10 year old son who has a history of Patial Complex Seizures. He went seizure free for 8 years without medication. We thought we were in the clear. 6 weeks ago, had a seizure at school. Places him on Keppra. Took him off after 4 days. He was miserable to be around, hyper, laughing one minute, crying the next. We started him on Trileptal about 2 weeks ago and he is mean and emotional wreck. He cries at the drop of a hat, reminds me of a very hormonal teenage girl The Neuro said that these side effects should go away within 2 more weeks. Does anyone have experience with emotional issues with Trileptal? Thanks.

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Jenna - posted on 10/26/2012

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my daughter started having petit mal seizures,(absence seizures) we noticed about the time she turned six that she was dazing off alot and almost seemed to ignore us, we would have to tap her on the shoulder or snap our fingers to get her attention. she started getting really grumpy and had a hard time controlling her moods. we took her to a psychologist thinking maybe there was something bothering her that she didnt want to tell us. she suggested we have an eeg done. it came back positive, the doctor said this was a genetic form and not triggered by lights or anything we could control. they started her on trileptol. she did great the first couple weeks. Then they started up again, and so did the behavior. They raised the dose and the seizure have been very minimal maybe 2-3 times a week for a couple seconds apposed to multiple times a day for up to a minute. as of late her behavior has been out of control, she gets so angry if she cant make something shes crafting with, She will crumple it and throw it across the room slamming her hands on the table . she has gotten angry enough at her legos to throw them across the room, and smack me on the arms or hands. She was once a sweet girl who was always happy and was a bundle of joy to be around. now she really cant sit still, gets aggressive and is out right mean and rude to people and is having a hard time listening and following directions in school .Her father and I are really thinking about getting her off the meds, there has to be something better than this one ! it is breaking our hearts to see her like this !

Christy - posted on 05/16/2012

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My daughter has been on Trileptal for 3 years now. She also has complex partial seizures. She has been doing good on it so far, just here recently she has become very moody, purposely will come after you to hit or kick you, she has very bad temper tantrums when she does not get her way. This is not like her, she use to be so sweet and happy. She does not talk, she is 4 now. I asked her neurologist if this behavior could be a side affect from the Trileptal or what the deal is. She takes 6 mls 2x a day. I know i'm not much help, but at least your not alone on this.

Christy

Nicole - posted on 12/22/2011

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So far I haven't come across the behavior with my daughter with the Trileptal....But we just recently started it. She started it on the 13th at 1.5 for a week and I just upped her this past tue night to 4mls at night and 3mls in the morning...But she's also on keppra still....She's going to be start the wean off the keppra next week, but right now she's at 7mls in the morning and 8mls at night and she's just dropping to 7mls for a week and then so on and so on unless something comes up and meds have to be readjusted things....I am hoping that we don't have any problems....I was just told one of the major side effects with this med was the rash and if she get's it that I have to call her neuro's office along with calling her peds office and getting her in right away....So hopefully we do not have really any problems with the med though....Sorry it took me a few days to answer....just I'm very overwhelmed with everything going on with things with my daughter...I hope this helps a little...Good luck...Call the neuro and ask them about it..

Nicole

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