Twitching & Jerking when falling asleep and right before waking

Denise - posted on 05/31/2011 ( 7 moms have responded )

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My 3 yr old daughter has been dx with Benign Rolandic and after more partials we finally decided to medicate..she is on Keppra and luckily it seems to be working. She has always had some twitching and jerking right after falling asleep and in the morning before waking but I was hoping that the medicine would stop or even help with the frequency because all of her partials have started out within seconds or minutes of falling asleep with her arms and legs jerking but more than usual...so I am frightened every time she moves! I feel a little better now that she is on meds but I have heard this is related to her epilepsy and I want to know if anyone has the same worries and if they have been told something from your neuro besides "its not harmful"...I just wish I could look forward to bedtime again. If anyone could give me some feedback on this I would appreciate it. I'm assuming it has everything to do with her first stage of sleep?

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Louise - posted on 07/22/2013

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My 9 year old has TS OCD ADHD. Our neurologist stated that TS ADHD are movement disorders like restless leg syndrome Parkinson's etc.. He also treated our son with iron plus c as his ferritin levels were low. He stated in general people with movement disorders have a ferritin deficiency. Apparently this deficiency affects the motor cortex part of the brain causing more movements. In short he said the brain needs more iron than the blood . As well as ferritin being the protein that iron bonds too in order to store it long term in the body. So going forward we have been in iron plus c- chewable natures plus for 6 months his tics virtually disappeared. No other meds ever. After a month off of the iron plus c his blinking eye rolling tic return. So now since the ferritin levels are in the normal range we are to try 400 mg magnesium and b 6. We found a chewable vitamin online called on task with the above ( roughly) mg. Anybody else try this?

Jackie - posted on 05/07/2012

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I was told that the twitching and jerking movements are myoclonic jerks which are common with j,m,e epilepsy but they normally occur in the morning.

The movements you are seeing at night might be her seizure threshold which is also common for everybody to have.

Leticia - posted on 05/02/2012

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The first and last i beleive my 9yo has nocturnal szs and take valproic acid, keppra, topomax, and adderall for ADHD!!!! I stopped expecting to sleep at night much less soundly!!! I am still trying to figure all this out but It can be overwhelming !!!!!!!!
Sorry I couldnt be much help but at least u know ur not alone ;)

Bridgett - posted on 04/21/2012

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Hey Denise my 2YR old was diagnosed with BRE after having a major prolonged seizure in January. His Nero said the twitching was just part of the epilepsy. He had a 2nd but milder seizure 2weeks ago. We haven't started meds and I know nothing about vitamin therapy. What's your option on both?

Kana - posted on 04/19/2012

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Hi there, my son is seven, and was diagnosed last year. He also twitches and jerks just after falling asleep, and also had some night terror episodes. He was placed on Keppra after his diagnosis due to the severity of the initial seizure, so I'm not sure if the jerking is related to the seizure disorder, or the Keppra. We did have an overnight EEG as well as a sleep deprived EEG and both showed no seizure activity during those periods of jerking. A lot of people jerk and sort of startle in the phase of falling asleep. I find it interesting that it seems worse after diagnosis. He has been doing well with Keppra and Vit B6. He was diagnosed also with periodic limb movement/ restless leg syndrome. This can be caused by low ferritin levels. (Part of iron level). We've started him on Vitron-C (an iron/vit c supplement daily- the vit c helps with the iron absorption), and the difference in his quality of sleep is noticeable. Lack of sleep can contribute, I think to seizure activity, and he's never been a great sleeper. Wish I had known about all of this sooner. Also hoping he'll grow out of it. Best wishes.

Denise - posted on 06/01/2011

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Thanks Karen...It just petrifies me when she moves so much. I wish I could give her something that would just make her go right to sleep without all those movements! She never had an MRI because they are positive of her dx of BRE..which is also outgrown but she is only 3.5 and puberty is a long way away! I am happy to hear your son is doing great on Keppra!!

Karen - posted on 06/01/2011

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Our son does the same. Based on the MRI, they expect him to outgrow it over time. However he too jerks in his sleep and twitches frequently. He takes Keppra and when combined with vitamins, does not have any side effects.

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