What is your experience with using diet to help control seizures in you child?

MOST HELPFUL POSTS

Patty - posted on 12/07/2009

23

13

1

We kept a food diary to try to find a food/seizure connection and the first trend we saw was that our son was worse on weekends and we often had pizza on Friday nights. Our first alternative doctor suggested putting him on a very low sugar, gluten free diet. Later we had our son tested for allergies (blood test not skin prick) and he did show allergies to wheat.
Our son is currently on the Modified Atkins Diet, which is very similar to the Ketogenic Diet but you don't have to be hospitalized to start it and you don't have to weigh all of the foods. On the diet, our son is having about half the seizures he was having - but the best part is we were able to get him off of the antiseizure drugs that we weren't happy having him on.

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

10 Comments

View replies by

Maureen - posted on 12/07/2009

7

23

1

hello my name is maureen and i have a 25 yr old daughter who has epilepty and has had seizure since she was 11. wwe tryed the keo diet but she had more sezure so we stoped. it will help u with the seizures but because she has seizures on both sides of the tempro lobes so i have been battling this for so long but we have tryed everything and then some hope 2 hear from u soon nice to meet u and merry xmas

Paula - posted on 11/28/2009

32

13

2

The question is....what is the next step? Surgery???? He has a great neurologist that believes in treating the patient rather than the seizures.

We can sort of know when he's going to have a seizure by the way his eyes look.....but he's had visits to the ER because of seizing at work and falling on something.

He & his wife have decided not to have children....and that's so sad. Not because we want Grandchildren....but because they would be wonderful parents....I hate the 19 year old that hit him with a car and caused all of this to happen!!!

Sorry to feel that way.....but I do. The 19 year old is probably 42 now....but I can only hope he's not having a good life.

Cathy - posted on 11/24/2009

7

25

0

It's good his Job is understanding.. that is extremely rare. I have a friend of mine who just lost her job when the migraines and black outs she has suddenly been plagued with were diagnosed as seizures. He is a lucky fellow.
My son also has Complex partial seizures primarily frontal lobe..he also has intermittent absence and petit mall but they are sporadic...and to most people they would be unaware. He is medically disabled and at home.

Paula - posted on 11/24/2009

32

13

2

My son is 34 and has had seizures regularly since he was 20. After EEG imaging....it was determined that his seizures are originating at a point in his brain that was injured when he was hit by a car when he was 12.
Some medications work so so....and they are the ones he is taking currently. But he is having complex partial seizures on a weekly basis.
He is married, holds down a full time job, and the entire family thanks the company he works for.....because he has benefits, they understand his medical problems, and when he has a seizure at work....it's basically no big deal.

Cathy - posted on 11/22/2009

7

25

0

My sons Seizures started at birth... he is now 25.... we have progressed long past that stage...and we have tried a multitude of things over the years.. while my son has many allergies, that could be in his adolescent years life threatening he has thankfully out grown those..and even though he was breast fed and I subsequently made all of his baby food to circumvent any issues of additional trips to the ER for acute food reactions it was never determined that Food in relation to Seizures was relative. He still has very distinctive different types of seizures..and has learned to be aware of when they will come..he also has multiple other medical conditions to make life ....interesting.

Laura - posted on 11/22/2009

132

13

32

My son has been on the ketogenic diet for over a year......we saw immediate results while still in the hospital.....better tone.....less tonic/clonic seizures and it also has helped his infantile spasms alot........ketogenic is closely monitored by a nutritionist.....you have to start it in the hospital........well worth it for us....I have heard some parents say that it didnt really help their child alot with seizure control though....it may be worth talking to your neurologist to see what they think in regards to your child :)

Cathy - posted on 11/18/2009

7

25

0

It might not be specifically the Wheat in and of itself..causing the Actual Seizure...but the seizure being 'Symptomatic' to an allergic reaction he may be having to a component in the wheat or in the pancakes...i.s) he begins to have an Allergic reactions.. the body 'stresses'.. this cause stressors..and an elevated amount of electrical activity in the brain...which in turn then trigger seizure activity. Seizure are directly a 'cause and effect' of electrical activity in the brain..synapses that get interrupted by scarring on or in brain tissue... Food allergies are merely part of a 'cause an effect' of the bodies 'over all' reaction that may or may not have any effect.

Jill - posted on 11/16/2009

21

10

2

the diet that is recomended in some cases is the ketogenic diet, which is high fat and really low carbs. it might not be the wheat, but the pancake itself. the only way to find out is talk to the neruologist. he could also be allergic to wheat and because his body is dealing with that, he is more prone to seizures. if you are interested in the ketogenic diet, talk to the doc because it is a hard diet and you need to have a nutritionist work with your child and test for high ketone levels alot.

Stephanie - posted on 11/15/2009

7

20

1

My son is having new, ever changing seizures and we have noticed a possible link to wheat. For example, we had whole wheat pancakes for dinner then my husband gave them to him again the next morning. Later that morning at school, after feeling fine and showing no evidence of illness before leaving, vomited and had a seizure. Any thoughts?

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms