New parent of FASD Child

Rachel - posted on 04/14/2009 ( 4 moms have responded )

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Hello, my name is rachel and i am the parent of a child with FASD. She was diagnosed 2 years ago while living with her grandparents. Despite the diagnosis, little information was shared with me about her disability, behavior issues, troubles with school and so on. When she was returend to me I recieved papers saying she had a cognative brain development issue, a phonlogical development issue and FASD. The previous caregivers, despite getting this diagnosis did very little in terms of helping her manage her disability and as I result I know very little about what trouble she is having or what issues may arrise.

At this point I am eager to learn about how I can help her and will keep this message up to date with questions tha may arrise and look forward to your feed back.

Thanks

Rachel

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4 Comments

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User - posted on 09/16/2011

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wow, glad I found this site.. my child is 13 now, and has multi-disabitilies, inculding FAS!! very stressful! Genevieve

Clara - posted on 09/18/2009

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Both of my children are fas/fae they are adopted, I had them tested. here is a web site that is very helpful www.come-over.to/FASCRC/ and also read the book The Explosive Child, By Ross Greene.to help you understand the behavior patterns and hands on parenting interventions for your child,Children with FAS have alot of problems with math and socialization skills,they need to be on a strict schedule and they have a hard time sleeping ,my 8 year old slept 2/3 hours a night since birth the Doctor finally put her on melatonin very good stuff its a natural substance that the brain makes to let us know when to sleep, if you need to talk I cheak the site every day. take my prayer are with you.

clara

Rachel - posted on 04/22/2009

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Thanks a bunch. After writing this I was able to do some more reaserching and I have done a lot to get her supports put in place. She has an education assistant full time, and we were able to get her IEP, from her previous school. I have gotten a key worker through the ministry of children and families, that specializes in dealing with children, with FASD. She has been waitlisted for speech therapy and occupational therapy. She is also on a wait list for a full time aide at her daycare. We are looking into private funding as well to be able to deal with her speach issue sooner as most people can only understand about 30% of what she says and it is increasly frustrating for her and her care givers.

I have been able to find a local support group, where I can go to learn about other parents and caregivers and some of the challenges and rewards of raising a child with FASD. I have also gotten a book about this disorder in order to better understand what I might expect. Thak you though for your concern and I lookforward to chatting with you again soon.

[deleted account]

I don't know where you're from, but you must immediately look into Early Intervention in your area. they will either test her or tell you whom will test her, but you have to do it soon. If it should become a school age issue, you will have to meet w/the school administrators to get an IEP. If you are unsure of what to do, ask someone to go with you to the school meeting. Good luck and email me if you need more help.

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