Labial Adhesions

Allison - posted on 03/03/2010 ( 27 moms have responded )

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My 2-year old daughter has Labial Adhesions and the Dr. has prescribed Premarin cream. Before I start applying the cream I wanted to know if anyone else had this experience and if there were any concerns that I should have, etc.



Thanks!

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Staci - posted on 10/05/2012

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My daughter, 17 months has had a fused labia for as long as I can remember. Her Dr. presrcibed Premerin cream around 9 months and we used it for a week or two, but it seemed to cause her a lot of irritation and she screamed when I tried to apply it. Needless to say, it didn't work. After that the Dr. said not to worry about it and to let it resolve itself. However, recently she acts like it hurts when we wipe her and she reaches for her vagina any time I change her. Also she just in the last few days started putting her hands down her pants and holdinf herself. I'm worried that she is uncomfortable. Any other experiences like this?

Jessica - posted on 07/12/2012

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Well my daughter is about to turn 4 years old and she has a labial adhesion and she has had it since the doctor noticed it when she was about 1 years old, maybe a bit older and he said to wait and see if it separates and opens on its own. Well lately she's had issues with it hurting down there and hurting when she pees and she's just been feeling awful so I took her to the doctor and there was blood in the urine and she's been in pain due to her playing it ripped a bit and the urine causes irritation and burning and having an open wound going potty has caused an infection. I am having to put an estrogen cream on it for 2 weeks and then 2 weeks off and then 2 weeks back on but he did say that it's estrogen and it will absorb in my body if I don't put gloves on and children do have a tendency to grow hair down there and get breast tissue so it's serious stuff but it's either trying this and hoping it will work and if it doesn't we have to see a urologist and have it surgically cut open/apart. So it's serious and something to make sure that it is taken care of or checked if you have a young toddler.

M - posted on 12/24/2013

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To all moms - don't worry just yet, been there - we had a successful recovery in just 2 days! Full opened back to normal - no hormone creams. Discovered at 9 month check up (not sure how long it was there - the last time doctor checked at 3 months and forgot to check at 6mnth). Closed about 80%, prescribed hormone cream. The recovery plan was simple:
1. Every diaper change - put on a pea size of Lansinoh Lanolin (nipple cream) down there with a qtip, and if baby allows - gently apply pressure while applying the cream. If not - leave it till next diaper change. I was successful with the pressure thing no more than twice each day.
2. During each diaper change spread labia apart with fingers to the point of stretching, and as long as the baby is comfortable, and again if the baby resists, try later.
3. Change diapers often, 8+ times a day.
4. Clean poop immediately and wash the area with plain water.
(I never failed with step 4 in the past, but guilty abut step 3, which may have caused the problem...)
5. Night diapers - I don't change, unless there is poo, which never happened.
6. After bath - let it dry on the air for 3-5 minutes, repeat steps 1 (cream) and 2 (gentle stretch).
7. Optional (we did only 2 times) - imitate a horse ride by putting your baby on your laps with legs spread apart and go for a jumpy ride - it's fun & might help too. Especially consider if your baby is not crawling yet (our does). Also I think that having your baby in a baby carrier might do the trick too.
Voala! Exactly 2 days later - full success on the 3rd day in the morning as I write this.

Other things:
- avoid diaper rashes, hormones are hormones, but if the area is raw and aggravated down there it will fuse. Especially after bath when its raw and clean and baby goes to sleep right after. That's why the cream is so important. I believe simple Vaseline will work the same way (though some moms don't approve petroleum jelly).
- my plan B (if we weren't successful) was to try Weleda Calendula Ointment, which has hormone like properties, and that's not just rumors - the exact alternative treatment & brand of cream has been recommended in the Book by one pediatrician. So, it's proven to work.
- your goal is to: a) soften the tissue down there gradually over several days b) prevent the labia from rashes c) as it opens up prevent it from closing back. All that is achieved with a cream (lanolin, vaselin or whatever you choose to try).
- and finally, what to expect: I saw a real visible result (she began to open up) only on the second day in the evening, before that I felt like we're moving nowhere, but kept my routine. So be patient as the skin there softens and stretches over the time, don't force it soon, you'll succeed eventually.
Good luck!

P.s. if you have a question about diapers: I use Target brand up&up.

User - posted on 12/12/2012

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My daughter was diagnosed with labial adhesions when she was at her 2 year checkup. The doctor prescribed the Premarin which I did for 2 weeks and it did not seem to help, and it seemed to irritate her. She wasn't having any urinary symptoms at the time so he said to just let it go to see if she would open up on her own in puberty. But, she is now almost 3 and has had 2 UTI's in the past 2 months and when I looked at her vagina, it was significantly fused all the way shut. From top to bottom, so I started the Premarin again tonight hoping to give her some relief from the infections, but we are probably going to have to see a pediatric urologist. Good to know that there are other moms out there experiencing the same questions I am.

Genna - posted on 12/12/2013

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My daughter was 2 months old when I noticed labial adhesion I took her to the doctor who seperated it and gave us estrogen cream it kept it open until she was 3 and then it fused again off and on until she was 6 it was terrible anytime she would fall just right it would tear and we would be back getting more cream luckily she is 8 now and the problem seems to be gone .... Hope this helps and good luck!

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April - posted on 11/18/2013

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My first daughter's vagina was fused when she was an infant. Her doctor didn't tell me anything when I asked, "is this normal?". She just prescribed the estrogen cream. It worked like a charm and her vagina stayed open. Now, with my second baby girl, her doctor said to only use vaseline and it should open on it's own. It's been two months and it's still closed except for the area that her pee comes out. The doc said it's fine as long as she can pee, but I'm leaning towards getting the estrogen cream to see if it will work. I breastfed both girls and used disposable diapers.

Ana - posted on 11/14/2013

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And to add to my other post, I think that because I had a hard time fitting my daughter in diapers correctly, it made it much easier for her labial to mend.

She has what we in our family call "a little bubble butt" and her diapers always fit a little tight. And when I went bigger she spilled out.

Anyhoo... hope this helps..

Ana - posted on 11/14/2013

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WOW.. I am so glad I found this group.

Ok. My daughter is 3.5 and she just got rid of her Adhesion...here's the story...

She got it at about 8mths old.. I tried to stop it with Vaseline as my dr told me but it didn't work. Also I was offered hormone cream (I did not use it for fear of early puberty and menopause).

So for the last 2 years I have lived in agony thinking that she may have some sort of issues later down the line because everything is just closed off inside her..(mind was going wild).

I got desperate and went back to the dr to see what else could be done. Cutting was an option and again the cream.. At this point I just prayed to God that she was ok and always watched for discoloring or some sort of opening.

So last week, she was wiping herself after peeing and her nails were not cut short and she just scratched it enough and the little skin was hanging off.. she was a little sore with pain, but I medicated her, gave her a bath with baking soda for a few days, then took her to the dr to make sure everything was alright, and she is totally FINE! I was sooo happy.. I still am.

I use A&D cream now to keep it open until it heals (Dr recommended) and I love the stuff.

Before when she was 8month old I was told not to use Desitin, because it's sticky and helps it to mend together, but my mother was soooooo convinced that Desitin could not POSSIBLY hurt a babies vaginal condition... HUFF... so I kept using it and I kept letting the daycare use it for her as well.

I know better now, (I have 2 girls now and the other didn't have the adhesion).

So this is what I did..hopefully it doesn't come back I'm working hard daily to keep it away until she heals...

Brandy - posted on 11/04/2013

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I was told to use cloth diapers and make sure she's dry all the time only to wash her privates with water but what do I do wait till it completely grows over the pee hole then what surgery I'm a single mom with a two year old stressing out

Brandy - posted on 11/04/2013

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my daughter is 2 and when she was 11 months old she was just getting used to using her potty until I started noticing she was having pain and had a problem with me wiping her and I just figured she was sensitive but about a week later she was getting worse and got really red and I took her to the doc and she started gettin yeast infections then he told me she had skin growing over her pee who and recommended using the steroid cream I did but after abouta month it wasn't working so I stopped tried to get her in to a specialist about it but still no call! What do I do to fix this I can't potty train her I'm trying but with no pressure cause I figure the faster I get her outta diapers the easier it will be for her and cheaper for me going thru soooo many diapers

Cara - posted on 10/24/2013

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Irma, I have been wondering the exact same thing about the cloth diapers possibly contributing to this problem.
We are going through this right now with my 2 yr old. We were prescribed Premarin, and are on day 2 (out of 3, per my ped). However, the Premarin has made her incredibly red and sore. Have any of you experienced this? I think I should discontinue it, and perhaps just try the A&D method after she heals.
For now, I have put away our cloth diapers :( for fear that they: A) might get ruined in the process of helping her with these adhesions and B) perhaps may be part of the problem.
The cloth diapering community may virtually stone me for this, but I really think there may be a link...at least in our case. Anyone else care to weigh in?
And for anyone who has tried the "wait it out" method - what has your experience been? That's kind of my gut instinct - let nature take its course and just wait for her body to produce its own estrogen - but I am afraid that the adhesion may get worse (longer/ thicker) over time.

Irma - posted on 09/17/2013

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I see that alot of moms were prescribed estrogen creams. My daughter has had this problem since I can remember. we have been able to keep it open by rubbing vaseline and massaging the closed part with vaseline and a cloth. We did it every diaper change for 3 weeks and its open now. Now she is having her clit area stick to her lebia. Pediatrician said to keep massaging that area with vaseline. Which like i said helped the opening from closing completely and now is ok. Now I am wondering if its do to my daughter 1yr old, being breastfed or being in clothediapers. any of you do one of these two things?

Ashley - posted on 04/19/2013

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My youngest daughter had this when she was a couple of months old. During that time the Dr. proscribed me hormone cream, which caused my daughter to grow boob tissue :-/ She is now 3yrs old and has the same issue, I went to the Dr. that I have her seeing now (he is a bit more in the try natural things before prescribing) and they said as long as it is not bothering her, cover her urethra hole, then in time when the irritation on that area dies down that it will open back up. This happens more often then people think, it is a mixture of the irritation of the area, and the lack of hormones which makes the skin begin to form.
The thing her new Dr told me is that the only time he likes to give out hormone cream if its bothering her going pee (sometimes the skin can cause the pee to puddle when can cause a bladder infection). But if it doesnt bother her, just make sure that she takes showers or showers after her bath, make sure when she is done bathing to dry that area really well, dont use soaps that have perfume or anything that might cause the irritation, and help her wipe and teach her to make sure that she is wipping really well.
Hopefully this is helpful!!!

Jelena - posted on 04/15/2013

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Hi there! I see there are a lot of mums and daughters with this problem. My 7 months old daughter has also the diagnosis of labial adhesion. Dr. prescribed a estrogen cream to apply for ten days but it didnt work. Now we are directed to a specialist for endocrinology and i am curious whats the procedure? I read about estrogen creams and they are not safe at all, they can cause cancer of genital organs. Have any of the moms had the same problem and have you been directed to a surgeon and whats the procedure, is it painful an doea a baby recover easily? Thanks

Rachel - posted on 01/15/2013

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My daughter is 1 1/2yrs old and we've had this problem since July 2012. Our Dr. prescribed Premarin Cream as well, it opens up and after a few days-to a week starts to re-close. We are back at the Dr trying to figure out why this is ongoing. As he said from all previous experiences the cream has always worked. We are seeking information from a gynocologist now. Good Luck with your experience and I hope the cream works for you.

Candi - posted on 10/22/2012

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my daughter had this before, and is actually going through this again right now. In the past it was only partially fused and was prescribed Premarin cream. It worked immediately. This time, it is closed completely so I started using the cream again tonight. I hear it is very common so I am trying not to worry.

Gloria - posted on 09/01/2012

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My daughter's pediatrician noticed she had labial adhesion last week at her 6 month visit. He prescribed estrogen cream which had me a little worried but i see that it worked for everyone here so I def feel better.

Sandra - posted on 07/26/2012

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How old was your daughter? Mine is two almost three I only just noticed since we started the potty training her pediatrician thinks we should just let it be although I am worried because she is sensitive when wiping and quite frankly it looks like she struggles to urinate. I am going to suggest the Premarin cream to her dr. However I just hope it's not to late. It is also very red beefy red looks like it hurts. Appreciate any input.

[deleted account]

I found it on my daughter when she fell down on a rock one day and I was afraid she hurt herself down there. I pulled her little skin flaps apart and noticed the didn't have a vagina hole. There was a dark spot where I could see the hole was supposed to be, but there was a thin layer of skin covering it up. The cream worked great and only took 2 weeks. Now, I put vaseline on it about once a week to keep it open, but she's doing great! :)

Kelly - posted on 03/13/2010

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It wasn't obvious to me, even with two daughters. I noticed it because it made my girls pee to the front instead of down when they sat on the potty. So prior to that age, I don't know how you would notice it if the doctor didn't catch it. If you have a baby niece or good friend with a baby girl I guess you could look at their vagina and see if it looked like your daughters LOL but if you don't have a convenient baby then your out of luck! :)

[deleted account]

WOW! I've never heard of this......I'm gonna do a lil' research but I was wondering if any of you can explain how I might know if this is the case with my daughter? Is it obvious?

Shaena - posted on 03/10/2010

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My neice had a labial adhesion. Her pediatrician told her that it can happen in little girls because they do not produce estrogen like we do. And your vagina needs the estrogen to keep the labia from fusing. If I can remember right the cream has estrogen in it, and it will help separate the labia and keep it that way. It is not harmful.

Ellie - posted on 03/08/2010

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We had the same thing. When my daughter was 16 months old (she is 18 months old now), she had labial adhesions. Her labia were open only enough that she could pee, but not enough that they could even stick a catheter in (they were worried about a UTI because she had had a high fever for a few days - it turned out to be a mild case of pneumonia). The doctor prescribed an estrogen cream to be applied once a day and we went back to him periodically to check on the progress. It took about 20 days to open up fully and now I try to keep an eye on the situation to make sure that it is not happening again. I don't believe that there is anything to be concerned about.

[deleted account]

All three of my girls have had this. The premarin works well if you apply it every day for the prescribed time. It doesn't work as well if you also use diaper cream - use one at a time if possible. Also, it has estrogen in it so your daughter can develop a little breast tissue. We were "warned" about it & it was still a shock to feel that on a 2-year-old. That goes away as soon as you stop using it. Also, after you are done using the premarin, use vaseline to keep it open. You may only have to use it for a while.

[deleted account]

my 1 year old had that. I found it when she was 6 months old and showed it to the doc. He prescribed the Premarin and it worked great! I still have to check it every once in a while (becasue he said it can close back up), but it's doing fine and she never noticed a thing! :)

Kelly - posted on 03/04/2010

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It's strange, I had never heard of this until I had daughters, but both of my girls had this (what makes it really weird is that one is adopted, one is biological). With our oldest daughter we went to a specialist because she was peeing straight out to the front instead of down, causing her to have a hard time with potty training (she had to lean forward on the potty a lot). He didn't do anything, said she would grow out of it by puberty when changes started happening in that area with growth. Our second daughter actually was almost "grown shut" as her pediatrician said, and we did get the Premarin cream for her, and it worked really fast. I think I only used it like maybe a week, and I could see that it had opened up. No side affects or problems. I would say go ahead and use it. Good luck!

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