Adult Children with Developmental Disabilites Living at Home

[deleted account] ( 4 moms have responded )

What happens after our children reach Adulthood and are suddenly out of the School System that once provided ongoing Services and Support to our kids?

This is a question I am posing to any of you Parents, who would like to share your stories, your wisdom, your "I wish someone had told me that" information. Here's our opportunity to Network. So please add your deep vast pools of experiences and we will all surely benefit by them. Thanks. Susan.

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Elizabeth - posted on 12/28/2011

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My son (autistic) still lives with me and my sig other and just turned 32. We all share household chores and expenses equally as he works part-time through Supported Employment and gets SSA. I was recently "Medically Retired" at 49 so I get a very small retirement allotment. We 3 take care of the needs of each other. When I cannot function due to my back fusion, my son or my sig other does household chores. Philip will NEVER drive, and has no desire to even try to learn. He also goes to a "Rehabilitation" center for 3 different classes on Tues/Wed and Thurs, this and Special Olympics gives him (and often me!) an opportunity to get out of the house and socialize. My sig other is 24 years older than me, and works part-time having retired over 20 years ago!!! He always wants to keep active which keeps him looking younger than he really is!! My sig other and I have a weekday "Date" luncheon and my son goes to his father's home from Friday evening to Sunday evenings!! Philip's main chores are keeping his room CLEAN, cleaning the "main" bathroom on Wednesday evenings and taking out the garbage on Thursday nights.

Ivonne - posted on 09/14/2011

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Susan, this is an extremely good question! I have a 30 year old at home and my oh my, I love her to death but what can one do to motivate our children after they're 20 years old but still live with you! Please help me. I really would love to hear from you on this question. Thanks!

Michelle - posted on 11/27/2009

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I wish I had an answer for you. I have an 18yr old at home and I am scared to death about whats to come once he reaches 21 and he will no longer be in school

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