Stacy - posted on 07/19/2009 ( 3 moms have responded )
Hi. My daughter was born w/ BOR syndrome. It's a genetic disorder that affects hearing, shape of ears, cysts in neck, pits in ears, etc. Does anyone else have a child w/ this? I'd love to talk. She is profoundly deaf in her right ear and severe to profound in her left. She does wear an aid on her left ear, but it is also the ear that is shaped different so we use sticky tape to keep it on her. I won't keep going, but if you'd like to respond, feel free.