Moms of Kabuki Syndrome children

Children diagnosed with Kabuki Syndrome ( a rare genetic deformity)

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Hi

Single mom with a soon to be 4 year old daughter with KS. I live in Orange County CA.

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Hi

Single mom with a soon to be 4 year old daughter with KS. I live in Orange County CA.

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HI

Hi I have a 15 yr old son with kabuki Syndrome. we live in Northern New York state and would love to correspond with others.

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hello from another KS mom

Hi everyone. i am Sophie...mom to two wonderful kids... Joshua age 10 with KS and his little sister Madison age 8 who is neurotypical. you cfan read Joshua;s story on his web...

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hello form another KS mom

Hi everyone. i am Sophie...mom to two wonderful kids... Joshua age 10 with KS and his little sister Madison age 8 who is neurotypical. you cfan read Joshua;s story on his web...

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Welcome

Thanks for joining Moms of Kabuki Children on facebook. I started this because my daughter is five years old and her name is Lindsey. She was diagnosed with Kabuki syndrome in...

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Support

I can't tell you how lucky we are to have KSN they have been an absolute life saver to me. I just wanted to add that I now have a secondary support forum and it has a live chat...